Mental Health Nursing Research Unit Launch Event Event

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Mental Health Nursing Research Unit Launch Event

Mental Health Nursing Research Unit Launch Event

Event Overview 10. 00 am Welcome & introductions 10. 05 am Gill Green (Director

Event Overview 10. 00 am Welcome & introductions 10. 05 am Gill Green (Director of Nursing & Governance) 10. 10 am Background to MHNRU 10. 25 am Sarah Leo (Head of R&I) “The MHNRU and GMMH’s R&I strategy” 10. 30 am Jonothan Orson (Clinical Research Nurse) “Pathways into research for MH nurses” 10. 40 am Dr Robert Griffiths (Clinical Research Fellow in Mental Health Nursing) “NIHR Fellowships – one route into research” 10. 50 am Professor John Keady (Professor of Older Peoples’ Mental Health) “My journey into research” 11. 00 am BREAK 11. 10 am Event continues 11. 15 am Professor Karina Lovell (Professor of Mental Health) 11. 25 am Q&A 12. 00 pm Event close “Public and patient involvement in research”

Event hashtag: #MHNRU

Event hashtag: #MHNRU

Gill Green Executive Director of Nursing & Governance

Gill Green Executive Director of Nursing & Governance

Background to the Mental Health Nursing Research Unit (MHNRU)

Background to the Mental Health Nursing Research Unit (MHNRU)

Mental health nursing and research • Mental health nurses make up the largest proportion

Mental health nursing and research • Mental health nurses make up the largest proportion of professionals working in NHS mental health services • Nurses work with people across the lifespan (from children/adolescents to older people) • Combining clinical and academic roles benefits the NHS and improves the quality and relevance of healthcare research • HEE’s (2015) ambition is for a clinical-academic nursing workforce that is capable of producing high-quality healthcare research • However, levels of research conducted by nurses are lower than for other groups of health professional (Webster-Henderson, 2017) • HEE (2014) want to create parity of opportunity for all staff groups to contribute to research, including nursing

Nursing and research: What are the barriers? • Lack of dedicated time • Insufficient

Nursing and research: What are the barriers? • Lack of dedicated time • Insufficient information about how to become more involved in research • Lack of encouragement from senior colleagues • The absence of a clear infrastructure to support the career development of nursing researchers • Lack of clinical-academic nursing role models (Ford, 2017)

Mental Health Nursing Research Unit (MHNRU) • Robert Griffiths, Karina Lovell, and John Keady

Mental Health Nursing Research Unit (MHNRU) • Robert Griffiths, Karina Lovell, and John Keady successfully applied for NIHR Research Capability Funding (RCF) to establish the MHNRU • The MHNRU builds on existing Trust initiatives aimed at increasing nursing engagement with research (e. g. Nursing Academy) • Strong support for the creation of a MHNRU within the Trust from senior nursing colleagues, including Tim Mc. Dougall (Associate Director of Nursing and Governance) and Gill Green (Director of Nursing)

What is the Mental Health Nursing Research Unit (MHNRU)? • GMMH has made a

What is the Mental Health Nursing Research Unit (MHNRU)? • GMMH has made a significant financial investment to establish the MHNRU. Initial funding lasts two years and will cover: • • Support for a Clinical Research Fellow in MH Nursing post A new research nurse post Service user involvement costs Funding to support a nurse to develop a clinical-academic career (more on this later!) • The MHNRU will join GMMH’s six existing research units and two other newly formed research units

What are the aims of the MHNRU? • Support the research activities of mental

What are the aims of the MHNRU? • Support the research activities of mental health nurses affiliated with the Trust • Produce research that aims to improve psychological, social, and physical outcomes for service users, relatives, and carers • Ensure that service users and carers are involved in the research we produce • Develop research capacity amongst GMMH nurses • Support a clear clinical-academic career pathway for nurses

Our initial priorities • Become self-sustaining through successful grant applications • Ensure meaningful input

Our initial priorities • Become self-sustaining through successful grant applications • Ensure meaningful input from service users and carers • Identify opportunities to support GMMH nurses to develop research skills and knowledge • Build on the work of the Nursing Academy to create a programme of events focused on mental health nursing and research

POLL 1: What support do nurses need to become more involved in research? 1.

POLL 1: What support do nurses need to become more involved in research? 1. 2. 3. 4. 5. 6. 7. 8. 9. 10. 11. Dedicated time for research activity Support to develop research knowledge and skills Opportunities to participate in small research projects, audits, and QI projects An increased emphasis on research within the nursing role Access to mentorship Visible nursing research leaders Support from managers and senior colleagues Access to research open days/dissemination events More clearly defined research career pathways for nurses More opportunities to discuss research with colleagues (e. g. journal clubs) Other (please specify in “chat”)

Research & Innovation at Greater Manchester Mental Health NHS Foundation Trust Sarah Leo, Head

Research & Innovation at Greater Manchester Mental Health NHS Foundation Trust Sarah Leo, Head of R&I Office

R&I Strategic Aims GMMH strategic objective: To continuously improve services for users through Research,

R&I Strategic Aims GMMH strategic objective: To continuously improve services for users through Research, Innovation and Digital Technology to achieve the best outcomes for them. We are currently refreshing our 2017 -2022 R&I strategy but our broad objectives will remain constant: Participation in research so that the GMMH community gain the benefits from new developments Relevant to service user & carer needs, and supporting Trust and NHS priorities Opportunities for clinical services to engage in ground breaking research for service improvement Maximising value for money by utilising the breadth and scope of financial income Outstanding world-leading contributions to research through innovation & collaboration Trusted outcomes of research so that GMMH is recognised as a place of quality Emphasis on prevention as well as treatment for mental health conditions.

Grant Activity and Research Units NIHR grant income to GMMH for 2019/20 was just

Grant Activity and Research Units NIHR grant income to GMMH for 2019/20 was just under £ 3 m and is set to exceed £ 3. 6 m in 20/21. Strategic use of associated Research Capability Funding (RCF) has enabled the Trust to support 9 Research Units (including 3 new awards for 20/21). Each Unit is currently monitored against 3 key areas: • • • Income generation (NIHR grants and commercial income) Alignment with Clinical Services Service User involvement Increased participation in research has been added as a metric for 2020/21. Our Units are: Patient Safety Research Unit New Units for 20/21: Mental Health Nursing Specialist Perinatal ADe. PT – Anxiety and Depression Psychological Therapies

We usually have around 60 actively recruiting studies in GMMH at any one time

We usually have around 60 actively recruiting studies in GMMH at any one time ranging from student projects to large scale multi-centre trials across both mental health and dementia (see https: //newintranet/research-innovation/currentresearch) Clinical services contributing to research in 2019/20 have received research engagement rewards between £ 250 and £ 3000 based on consented participants from their service. Recruitment April 2019 - March 2020 2500 2200 2017 1847 1833 2000 1660 1650 1827 1467 1500 1283 1100 1287 1187 1096 957 810 673 Target ODP (Confirmed) ODP (Confirmed+Provisional) ch M ar y ru ar Fe b ry nu a Ja ec em D N ov em be be r r be r ct o O pt em be r t Se A ug us ne Ju ly 421 Ju ay 204 811 674 582 322 M 0 367 322 204 183 il 500 550 421 733 582 1192 1099 1649 1293 959 917 1000 A pr GMMH Participant Recruitment Activity

Questions Please contact the Research & Innovation Office with any further questions: Tel: 0161

Questions Please contact the Research & Innovation Office with any further questions: Tel: 0161 271 0084 Research. Office@gmmh. nhs. uk

Pathways into Research for Mental Health Nurses Jonothan Orson (RMN)

Pathways into Research for Mental Health Nurses Jonothan Orson (RMN)

Research Nurse or Nurse Researcher? Research Nurse Researcher • Works across a portfolio of

Research Nurse or Nurse Researcher? Research Nurse Researcher • Works across a portfolio of research projects • Leads on their own study as Principal Investigator • Identifies, assesses and recruits service-users to clinical studies • Develops their own research question and investigations using robust methodology • Communicates effectively with participants and takes informed consent • Seeks approval from ethical and clinical bodies • Develops their own study materials and investigation tools • Completes analysis of study data to support findings • Disseminates their findings through publication in academic journals • • • Delivers investigational treatments as part of clinical trials and collects follow-up data Collects data as part of observational studies Monitors participant safety and adverse events

My Research Journey Staff Nurse Trial Therapist Senior Clinical Research Nurse Principal Investigator

My Research Journey Staff Nurse Trial Therapist Senior Clinical Research Nurse Principal Investigator

Trial Therapist • Applied for a job as Trial Therapist on the Investigation of

Trial Therapist • Applied for a job as Trial Therapist on the Investigation of Attention Training Technique for Psychosis study at the Psychosis Research Unit • Trained to deliver Attention Training Technique (ATT) • Metacognitive intervention aimed at discovering attentional control and flexibility, and targeting maladaptive responses such as worry, rumination, threat-monitoring and avoidance (Cognitive Attentional Syndrome) • Not available on the NHS • Received clinical supervision from field experts and researchers • Presented at the 2019 International Conference for Metacognitive Therapy in Prague • Founded my interest in trial therapies and clinical research

Trial Therapist Recruitment and Randomisation Therapy Follow-up • Research Assistants assessed and consented 76

Trial Therapist Recruitment and Randomisation Therapy Follow-up • Research Assistants assessed and consented 76 eligible participants • Participants were randomised to either the treatment or control ‘arm’ • I delivered Attention Training Technique to participants randomised to the treatment arm • I offered participants up to 12 sessions of ATT over a 3 month therapy window • Research Assistants followed up all participants at 3, 6 and 12 months • Participants in treatment arm offered a qualitative interview

Senior Clinical Research Nurse • Applied for a job as a Senior Clinical Research

Senior Clinical Research Nurse • Applied for a job as a Senior Clinical Research Nurse with the Research Delivery Team • Wanted to learn more about the research process and how clinical research is delivered within GMMH • Act as Clinical Team Research Link for community and inpatient teams (identify and recruit participants, raise profile of research in clinical areas) • Act as Study Delivery Lead, coordinating set-up, recruitment and delivery of studies within the Trust (liaise with study teams/universities) • DLB Genetics, SNR-05, Scimitar+, CAPRI-Voc, Ca. FI-2, CARMS

Principal Investigator (via Research Capability Funding) Inspired by experience as Trial Therapist on i.

Principal Investigator (via Research Capability Funding) Inspired by experience as Trial Therapist on i. ATTp and research disseminated at MCT Conference… Applied for Research Capability Funding to complete a study on male suicidality and metacognition! Nursing Masters’ dissertation was on male suicide… could I marry the two?

Principal Investigator (via Research Capability Funding) • 75%+ of UK suicides completed by men

Principal Investigator (via Research Capability Funding) • 75%+ of UK suicides completed by men • Men experiencing suicidality may present with rumination, avoidance and maladaptive coping strategies – all features of the CAS Why? What? • Semi-structured interviews with men under Home Based Treatment Team • Investigating experiences of suicidality, masculinity, care and help-seeking • Metacognitive Profiling • Trial of ATT • Prepare application for NIHR Research for Patient Benefit grant for larger study of metacognition, male suicide and potential interventions • Complete MCT Diploma What Next?

Nursing Academy Workshops • Available to GMMH staff who are interested in learning and

Nursing Academy Workshops • Available to GMMH staff who are interested in learning and developing research skills • Contribute towards Continuing Professional Development for NMC Revalidation • Writing for publications • Speaking at conferences • Getting involved in Research and Innovation activities • Developing a clinical academic career • How to access funding and grants

Academic and National Institute for Health Research (NIHR) Funded Routes • Masters in Clinical

Academic and National Institute for Health Research (NIHR) Funded Routes • Masters in Clinical Research (MClin): develop knowledge of research skills, theory and robust methodology in health and social care practice • Professional Doctorate (DProf): develop advanced research skills and apply them to clinical practice whilst gaining academic recognition at doctoral level • HEE-NIHR Integrated Clinical Academic Programme: research training awards for professionals, combining clinical research, leadership, practice and development, funded time away from practice to complete research project (5 levels of award available) • https: //www. rcn. org. uk/professional-development/research-and-innovation/research-training-andcareers/postgraduate-research-training • https: //www. nihr. ac. uk/explore-nihr/academy-programmes/hee-nihr-integrated-clinical-academicprogramme. htm

Thank You

Thank You

HEE-NIHR Fellowships: One route into clinical research Dr Robert Griffiths Clinical Research Fellow in

HEE-NIHR Fellowships: One route into clinical research Dr Robert Griffiths Clinical Research Fellow in Mental Health Nursing GMMH Mental Health Nursing Research Unit

My clinical background • Completed graduate training in mental health nursing at Uo. M

My clinical background • Completed graduate training in mental health nursing at Uo. M in 2002 • Worked in Assertive Outreach and Early Intervention in Psychosis services • Held a variety of roles: CPN, Senior Practitioner, Psychological Therapist, Clinical Lead • Interested in psychosocial approaches to working with people • Completed an MSc in individual and family CBT for psychosis

My route into research • Had an interest in research, but was unsure how

My route into research • Had an interest in research, but was unsure how to get started • Able to write up my MSc dissertation for publication • Worked as a trial therapist for a clinical trial of CBT for people experiencing bipolar effective disorder • In 2014, I applied for an HEE-NIHR Clinical Doctoral Fellowship (encouraged by a very supportive manager) • My second application was successful (persistence paid off!) • Completed my Ph. D in Clinical Psychology between 2016 -2019

Doctoral research • Randomised controlled trial of a new talking therapy – Method of

Doctoral research • Randomised controlled trial of a new talking therapy – Method of Levels - for people experiencing first-episode psychosis • Primarily interested in the feasibility and acceptability of the research design and Method of Levels therapy • Participants (N = 36) were recruited from GMMH Early Intervention Services • Participants were randomly allocated to treatment as usual (TAU) or TAU plus Method of Levels • A proportion of participants (N = 12) were also interviewed about their experiences of therapy

Findings • Proved feasible to recruit and retain participants in the study, and retention

Findings • Proved feasible to recruit and retain participants in the study, and retention rates were high at final follow-up (97%) • Method of Levels was reported to be helpful and acceptable by participants • Participants appreciated having control over what was discussed in therapy and how they accessed sessions • Method of Levels was deemed suitable for further testing in a larger trial

Life as an early career researcher (and mid-career nurse!) • After completing my Ph.

Life as an early career researcher (and mid-career nurse!) • After completing my Ph. D, I moved into a newly created Clinical Research Fellow in Mental Health Nursing post • Joint post split between GMMH and Uo. M • In collaboration with Professors Karina Lovell and John Keady, successfully applied for funding to establish the Mental Health Nursing Research Unit

Future plans • Apply for further funding to build on doctoral research • Beginning

Future plans • Apply for further funding to build on doctoral research • Beginning work on a new project funded by the Burdett Trust • Project aims to explore alternatives to restrictive practices for children who selfharm in mental health inpatient settings • Applied for NIHR Clinical Lectureship – aim is to develop a peer support intervention for relatives of people experiencing psychosis • Attempt to find the right balance of clinical and academic work

Relevant publications • Griffiths, R. , & Carey, T. A. (2020). Advancing nursing practice

Relevant publications • Griffiths, R. , & Carey, T. A. (2020). Advancing nursing practice for improved health outcomes using the principles of perceptual control theory. Nursing Philosophy, (February), 1– 8. https: //doi. org/10. 1111/nup. 12301 • Griffiths, R. , Mansell, W. , Carey, T. A. , Edge, D. , Emsley, R. , & Tai, S. J. (2019). Method of levels therapy for first -episode psychosis: The feasibility randomized controlled Next Level trial. Journal of Clinical Psychology, 75(10), 1756– 1769. https: //doi. org/10. 1002/jclp. 22820 • Griffiths, R. , Mansell, W. , Edge, D. , Carey, T. A. , Peel, H. , & J. Tai, S. (2019). ‘It was me answering my own questions’: Experiences of method of levels therapy amongst people with first-episode psychosis. International Journal of Mental Health Nursing, 28(3), 1– 14. https: //doi. org/10. 1111/inm. 12576 • Griffiths, R. , Mansell, W. , Edge, D. , & Tai, S. (2019). Sources of Distress in First-Episode Psychosis: A Systematic Review and Qualitative Metasynthesis. Qualitative Health Research, 29(1), 107– 123. https: //doi. org/10. 1177/1049732318790544

My journey into research John Keady Dementia and Ageing Research Team Mental Health Nursing

My journey into research John Keady Dementia and Ageing Research Team Mental Health Nursing Research Unit Division of Nursing, Midwifery and Social Work The University of Manchester/ Greater Manchester Mental Health NHS Foundation Trust john. keady@manchester. ac. uk

About myself § Mental Health Nurse; asylum training in Warley § § § hospital

About myself § Mental Health Nurse; asylum training in Warley § § § hospital 1983 -1986 Worked in dementia care since 1986: NHS inpatient and community settings Ph. D part-time 1993 -1999 [mentor Mike Nolan] – focus on the construction of dementia using classic grounded theory First professorial chair 2005; joint appointment University of Manchester/GM MH Trust: 2006 Lead the Dementia and Ageing Research Team NIHR Senior Fellow [via School for Social Care Research; 2019 -2024]

Editors: John Keady, University of Manchester/GMMHFT Penny Harris, John Carroll University Editorial Board [2002

Editors: John Keady, University of Manchester/GMMHFT Penny Harris, John Carroll University Editorial Board [2002 -2019] Over 30 academics and personnel from 12 different countries, including people with dementia First Edition: Feb 2002; impact factor awarded 2014 [Gerontology: now 1. 768 14/32] There were 230, 000 articles downloaded in 2018 Gloria Sterin: Vol 1; issue 1; page 1

Dementia and Ageing Research Team n DART started in 2008 and has 12 inter-disciplinary

Dementia and Ageing Research Team n DART started in 2008 and has 12 inter-disciplinary members the everyday experience of people living with dementia and their care partners and finding ways to engage those n DART’s primary research interest is in perspectives in transforming, shaping and leading our work n Up until July 2020 DART have led, or been involved in studies, that have been funded through a range of bodies: NIHR, ESRC, HIEC, Alzheimer’s Society, BUPA, Salford City Council, MICRA, Manchester Camerata n DART is predominantly a social research group and we use a range of social research methods to conduct our work, including with our Ph. D students.

DART Group Recent Ph. D completions n n n n Person with dementia peer

DART Group Recent Ph. D completions n n n n Person with dementia peer support and advocacy [ESRC programme-linked Award: Katie Davis]* Couple work in dementia [Therese Bielson; CEDER, Sweden] Atmospheres and dementia [Sarah Campbell]* Complexity in dementia [NIHR CAT Ph. D studentship: Lesley Jones]* In the moment music evaluation [ESRC CASE Ph. D studentship with Manchester Camerata: Robyn Dowlen]* Neighbourhoods and dementia [Xia Li]* Intergenerational family care in dementia [May Yeok Koo]*

NEIGHBOURHOODS AND DEMENTIA: A MIXED METHODS STUDY Study Reference Number: ES/L 001772/1

NEIGHBOURHOODS AND DEMENTIA: A MIXED METHODS STUDY Study Reference Number: ES/L 001772/1

Regent Road, Salford 1959 1970 s Place attachment disruption (Calvert et al. , 2020)

Regent Road, Salford 1959 1970 s Place attachment disruption (Calvert et al. , 2020) 2015

What matters most to people living with dementia 1. 2. 3. 4. 5. 6.

What matters most to people living with dementia 1. 2. 3. 4. 5. 6. 7. 8. 9. 10. 11. 12. 13. Continuing good relationships with people who are important to you Being able to communicate with others Feeling safe and secure at home Feeling valued and respected by others Feeling able to have a laugh with other people Being able to do things that you enjoy and want to keep doing Keeping interested in things you like Being aware of your surroundings indoors and outdoors Being able to find your way around a familiar place Being as clean and comfortable as you would like Not falling at home or when out and about Being able to see, hear and understand Feeling able to keep your identity (Reilly et al. , 2020)

Planned next steps n Developing a research programme constructed around complexity and a continuum

Planned next steps n Developing a research programme constructed around complexity and a continuum of ‘moments’: creating the moment n being in the moment; n ending the moment; n reliving the moment n n Importance of measuring moments in dementia care n Participatory case study work/book [Routledge; in production: due October 2020]

References and Links § § Papers: Reilly, S. T. , Harding, A. J. E.

References and Links § § Papers: Reilly, S. T. , Harding, A. J. E. , Morbey, H. , Ahmed, F. , Williamson, P. R. , Swarbrick, C. , Leroi, I. , Davies, L. , Reeves, D. , Holland, F. , Hann, M. and Keady, J. What is important to people with dementia living at home? A set of core outcome items for use in the evaluation of non-pharmacological community-based health and social care interventions. Age and Ageing, 2020, 1– 8; doi: 10. 1093/ageing/afaa § Calvert, L. , Keady, J. , Khetani, B. , Riley, C. , Open Doors Research Group and Swarbrick, C. ‘. . . this is my home and my neighbourhood with my very good and not so good memories’: The story of autobiographical place-making and a recent life with dementia. Special edition ‘People Living with Dementia’ (Guest edited by Open Doors and Caroline Swarbrick). Dementia: the international journal of social research and practice, 2020, 19(1): 111– 128. DOI: 10. 1177/1471301219873524 § Weblinks: The Changing Face of our Neighbourhood: § https: //www. youtube. com/watch? v=SIKs-Ac 1_eo&list=PLxq. VG 8 W 1 ALf. RZ 8 P 9 FA_R 941 Oqi. Z 8 Riyj) ITN Productions/ADI film on co-production and dementia [filmed in Eccles] § https: //itnproductions. wistia. com/medias/pmck 1 nt 1 y 3 § §

Thank You John. Keady@manchester. ac. uk

Thank You John. Keady@manchester. ac. uk

BREAK – Time for a brew – Back in 10 minutes, stay online, we

BREAK – Time for a brew – Back in 10 minutes, stay online, we will be back!

POLL 2: What do you see as the most important topics for the MHNRU

POLL 2: What do you see as the most important topics for the MHNRU to focus on? 1. 2. 3. 4. 5. 6. 7. 8. 9. 10. 11. Role of the mental health nurse Improving outcomes for BAME communities Mental health impacts of COVID-19 Role of physical health in relation to mental health Delivery of psychological interventions by nurses Non-medical prescribing Self-harm and suicide Mental health interventions in primary care Mental health interventions in secondary care Delivery of digital interventions by nurses Other (please specify in “chat”)

Patient and Public Involvement in research Professor Karina Lovell

Patient and Public Involvement in research Professor Karina Lovell

What is PPI Ø ‘research being carried out ‘with’ or ‘by’ members of the

What is PPI Ø ‘research being carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them (Involve 2012)

PPI Ø “No matter how complicated the research, or how brilliant the researcher, patients

PPI Ø “No matter how complicated the research, or how brilliant the researcher, patients and the public always offer unique, invaluable insights. Their advice when designing, implementing and evaluating research invariably makes studies more effective, more credible and often more cost efficient as well. ” • Professor Dame Sally Davies (Chief Medical Officer)

Involvement, Participation, & Engagement Participation Involvement

Involvement, Participation, & Engagement Participation Involvement

PPI throughout the research cycle Dissemination and implementation Prioritising research Consultation Collaboration Co-production Data

PPI throughout the research cycle Dissemination and implementation Prioritising research Consultation Collaboration Co-production Data collection and analysis Research design Advisory / Management

Examples of PPI Ø Devising research questions and design Ø Selecting questionnaires (outcomes) Ø

Examples of PPI Ø Devising research questions and design Ø Selecting questionnaires (outcomes) Ø Co authoring/authoring papers Ø Conducting research Ø Advising on research (Advisory Groups) Ø Co-applicants on research studies Ø Dissemination activities (twitter, theatre productions, podcasts, animations

Example of PPI Ø Qualitative study completed by a service user researcher – designed,

Example of PPI Ø Qualitative study completed by a service user researcher – designed, conducted, analysed and published the study. Produced an animation for dissemination. http: //research. bmh. manchester. ac. uk/equip/10 Cs/ • Grundy C, Bee P, Meade O, Callaghan P, Beatty S, Olleveant N, Lovell K. Bringing meaning to user involvement in mental health care planning: a qualitative exploration of service user perspectives. Journal of Psychiatric and Mental Health Nursing 2016; 23 (1)

Example of PPI Ø Qualitative study completed by a family member (carer) researcher who

Example of PPI Ø Qualitative study completed by a family member (carer) researcher who designed, conducted, analysed and published the study. Produced an animation for dissemination. • http: //research. bmh. manchester. ac. uk/equip/mentalhealthcarepla nning • Cree, L. Brooks, H L. Berzins, K. Fraser, C. Lovell, K. Bee, P. Carers’ experiences of involvement in care planning: a qualitative exploration of the facilitators and barriers to engagement with mental health services. BMC Psychiatry 2015; 15: 208

Exemplar of involving service users and carers/families in research

Exemplar of involving service users and carers/families in research

Rationale for developing and delivering a research methods course Ø The importance of user

Rationale for developing and delivering a research methods course Ø The importance of user and carer involvement in research has been increasingly recognised Ø But often last minute PPI involvement in developing grant proposals Ø As a research group we were keen to enhance user and carer involvement in developing proposals, data collection, analysis and dissemination Ø We felt that if users and carers have insufficient knowledge of research methods they were unlikely to feel included or to make a meaningful contribution to research

Aim of the course Ø To develop a research methods course for users and

Aim of the course Ø To develop a research methods course for users and carers of mental heath services with the ultimate aim of involving them in future research

Recruitment and selection ØAdvertised in 2 NHS Trusts ØPotential participants completed a single page

Recruitment and selection ØAdvertised in 2 NHS Trusts ØPotential participants completed a single page application form. ØReceived 25 applications, 13 candidates were short listed and invited to interview (9 Manchester, 4 Nottingham). ØSome candidates who were not shortlisted did not have lived experience of care planning in secondary care.

Development Ø 6 days delivered once a month for 6 months Ø Course was

Development Ø 6 days delivered once a month for 6 months Ø Course was designed to reflect Masters level Ø Participants were enrolled on a non-credit bearing course, enabling full student access to University of Manchester facilities, Blackboard, IT systems and library resources (databases, e-journals and books). Ø Range of teaching and learning methods incorporated including lectures, small groups, interactive exercises Ø Between session work (book chapters and articles)

Key issues in development Ø Many research methods books were not engaging, user friendly

Key issues in development Ø Many research methods books were not engaging, user friendly or at the right level. Ø Needed to find materials at the right level Ø Purchased ‘Bad Science’ for all participants

Content Ø Definitions of Research, Learning Styles and Introduction to Online Resource ‘Blackboard’ Ø

Content Ø Definitions of Research, Learning Styles and Introduction to Online Resource ‘Blackboard’ Ø Research Awareness (understanding the process of research) Ø Systematic literature searching Ø How to Read a Paper Ø Qualitative Methods Ø Quantitative Methods Ø Health Economics Ø Ethics and Governance

Delivery Ø Sessions divided into 50 minutes Ø Subject experts delivered some sessions eg

Delivery Ø Sessions divided into 50 minutes Ø Subject experts delivered some sessions eg Professor Peter Bower (systematic literature searching) Professor Anne Rogers (Qualitative methods), Professor Linda Davies (Health Economics) Ø Range of teaching and learning methods incorporated including lectures, small groups, interactive exercises. Ø Between session work (book chapters and articles)

Outcome Ø Of the 13 recruited 9 completed the course. Ø Two service users

Outcome Ø Of the 13 recruited 9 completed the course. Ø Two service users and two carers withdrew for personal reasons (including one service user who was offered employment) Ø All of those who withdrew stated that they would attend the course again given the opportunity.

Training Development Ø Developed a ‘train the trainers’ course (4 days) Ø Developed a

Training Development Ø Developed a ‘train the trainers’ course (4 days) Ø Developed a course for health professionals (2 days plus elearning and supervision)

Evaluation Ø The course was very well received Ø The ‘Bad Science’ text was

Evaluation Ø The course was very well received Ø The ‘Bad Science’ text was highly regarded by participants who felt that it provided the necessary depth of knowledge to understand core research concepts Ø Improved confidence and provided opportunities. Ø Value was also afforded to the added extras (e. g. Food, support, recordings, printing, breaks), Ø Engaging staff and the genuine involvement of service users/carers. Ø Being treated as an equal amongst health professionals (a new experience for many of the group).

Evaluation ‘I would just like to say thank you for giving me the opportunity

Evaluation ‘I would just like to say thank you for giving me the opportunity to take part in the research program; it made me feel so good about myself as it really boosted my confidence. It made me realise just how much of a difference I can make with the right tools and training. I would also like to thank all the tutors who took time to help; I learned a lot especially from Ann Rogers. I also enjoyed doing team work and being part of a team. I learned so much by being able to take part in the research program. It has been a dream come true attending university: it just proves that no matter what disabilities someone may have – physical or mental – with help dreams can come true. I hope I can be part of future research programs and I look forward to finding out what the future holds for me. ’ Service user

Evaluation – Academic facilitators Ø All trainers commented on the enthusiasm of the participants,

Evaluation – Academic facilitators Ø All trainers commented on the enthusiasm of the participants, and their course commitment Ø Trainers identified a number of value added components including the resolution of remuneration to enable cash payments, provision of lunches & refreshments, and the development of learning materials in a variety of formats. Ø One of the key messages that emerged from the trainers was that the training itself had enabled them to feel more confident working with users and carers. Ø None of the trainers had taught research methods to user and carers and we learnt some valuable lessons Ø Training was resource intensive

Post course Ø During the course participants began engaging in PPI activities to provide

Post course Ø During the course participants began engaging in PPI activities to provide feedback on several grant applications. They expressed a desire to continue to undertake this role and engage in developing service user/carer-led research projects. Ø A number of participants were co-opted into the programme grant application (successful) , advisory group, co applicant status, employment as RA s, consultancy work Ø Participants have authored own papers, led dissemination activities, invited lectures, and one participant has started their Ph. D.

Post course Ø Course cited as example of good practice by MHRN and NICE

Post course Ø Course cited as example of good practice by MHRN and NICE Ø 2 further successful 6 day courses Ø 2, 2 -day courses for MHRN Ø Increasingly handing over leadership of courses to service users Ø Developing on line materials Ø Incorporated into recovery colleges

Research Methods book for service users and carers/family members

Research Methods book for service users and carers/family members

PPI in Indonesia Ø We have trained service users, carer/family members and health professionals

PPI in Indonesia Ø We have trained service users, carer/family members and health professionals in PPI and co-production Ø The commitment and energy to enhance PPI in Indonesia is strong

Exploring the potential of civic engagement to strengthen mental health systems in Indonesia IGNITE

Exploring the potential of civic engagement to strengthen mental health systems in Indonesia IGNITE • • Applicants: Brooks, James, Lovell, Irmansyah, Keliat, Rose, Colucci Funders: MRC Health Systems Research Initiative £ 125, 678 Start date: November 2017 Duration: 18 months A mixed methods study underpinned by a realist approach will be undertaken across four phases in two study sites (Jakarta and Bogor). In order to explore the potential use of civic engagement within Indonesian mental health services this study will coproduce a civic engagement by synthesizing evidence from a systematic review and qualitative data from mental health service users, carers and professionals.

Improving mental health literacy among young people aged 1215 in Indonesia: IMPe. Tus •

Improving mental health literacy among young people aged 1215 in Indonesia: IMPe. Tus • • Applicants: Bee, Brooks, Lovell, Irmansyah, Savitri, Renwick Funders: MRC/DFID/NIHR £ 346, 571 Start date: September 2018 Duration: 30 months A mixed methods study will be undertaken across four phases in three study sites (Jakarta, Bogor and Magelang). An evidenced based tool kit designed to promote depression and anxiety self-management amongst children and young people with be co-produced with key stakeholders. The intervention will be implemented and evaluated in 9 case study sites designed to represent different levels of urbanization and implementation pathways. We will produce best practice evidence-based guidelines to optimise the use of this intervention in practice.

Thank you for listening

Thank you for listening

Mental Health Nursing Research Unit: Career Development Opportunities

Mental Health Nursing Research Unit: Career Development Opportunities

MHNRU research nurse post • The MHNRU has funding for an NHS Band 5

MHNRU research nurse post • The MHNRU has funding for an NHS Band 5 MH research nurse post • 12 month fixed term/secondment; 80% WTE • Postholder will support the research activities of the MHNRU, including the project exploring restraint alternatives for children • Represents a great opportunity for exposure to a research environment and could be a stepping stone to a clinical-academic career

MHNRU research development opportunity • We also have funding to release a nurse for

MHNRU research development opportunity • We also have funding to release a nurse for one-day a week for 12 months • Aimed at nurses who would like to develop a career in research • Will enable the successful applicant to pursue activities that will support their clinical-academic career progression • In addition to shadowing/networking opportunities, the applicant’s time could be used in a variety of ways (e. g. prepare a fellowship application, conduct a small project, write a paper)

POLL 3: What future events would you like to see from the MHNRU? 1.

POLL 3: What future events would you like to see from the MHNRU? 1. 2. 3. 4. 5. 6. 7. Short virtual conferences Research methods workshops Full-day conference Research dissemination events Regular e-mail updates Research events within individual clinical teams Other (please specify)

Mental Health Nursing Research Unit: Logo and Branding Ideas

Mental Health Nursing Research Unit: Logo and Branding Ideas

Logo feedback Using the “chat” function, please let us know: 1. What do you

Logo feedback Using the “chat” function, please let us know: 1. What do you like about the icon(s)? 2. Is there anything you don’t like about the icon(s)? 3. Do any particularly stand out?

Mental Health Nursing Research Unit Logo Concepts 1 2

Mental Health Nursing Research Unit Logo Concepts 1 2

Mental Health Nursing Research Unit Logo Concepts 3 4

Mental Health Nursing Research Unit Logo Concepts 3 4

Mental Health Nursing Research Unit Logo Concepts 5 6

Mental Health Nursing Research Unit Logo Concepts 5 6

Comments and Questions

Comments and Questions

Thank You! • The MHNRU is based at various Trust locations (Knowsley Building, Prestwich;

Thank You! • The MHNRU is based at various Trust locations (Knowsley Building, Prestwich; Rawnsley Building, MRI) • If you have any questions or suggestions, please contact: researchoffice@gmmh. nhs. uk OR robert. griffiths@gmmh. nhs. uk