Meaningful Use and Personalized Patient Education Consumer Health

Meaningful Use and Personalized Patient Education: Consumer Health Information Activities at the National Library of Medicine James J. Cimino, MD Chief, Laboratory for Informatics Development NIH Clinical Center and the National Library of Medicine

Disclaimer This presentation is not intended to promote any commercial entity, including healthcare providers, knowledge resources or children’s entertainment.

Personal Health Records

Personal Health Records • State of the art in PHRs

Personal Health Records • State of the art in PHRs • NLM Personal Health Record

How does it differ from other PHRs? • Single web page for efficient data entry • Generates input forms “on the fly” • Can capture almost any kind of structured data • Aims to code all key facts with US standards • Intelligent, patient-specific reminders

Personal Health Records • State of the art in PHRs • NLM Personal Health Record

Personal Electronic Health Knowledge Records Resources

Electronic Knowledge Resources • Medline. Plus

Medline. Plus • Consumer & patient health • English & Spanish • Coverage: – Diseases and conditions – Health and wellness – Drugs, herbs, and supplements – Videos, interactive tutorials, etc. • Stringent quality criteria

885 English 856 Spanish ~1, 000 drugs 100 supplements 172 tutorials 78 anatomy videos 112 surgery videos 5 Sp surgery videos 15 -20 news stories daily 1, 445 links to Clinical. Trials. gov >40 languages >250 topics >3, 000 links ~ 3, 500 encyclopedia articles > 2, 000 images

http: //www. nlm. nih. gov/mobile/

Electronic Knowledge Resources • Medline. Plus • Genetics Home Reference

Genetics Home Reference • Website of genetics information for the public • Currently more than 1, 400 summaries – Incidence and prevalence – Gene/disease relationships – Common vocabulary terms, defined • Background information about genetics – Handbook: Help Me Understand Genetics – Glossary of genetics terms

Electronic Knowledge Resources • Medline. Plus • Genetics Home Reference • Clinical Trials. gov

Clinical. Trials. gov • Access to data about individual clinical trials • 97, 835 registered trials from 7, 961 Sponsors • 2, 467 Results entries from 449 Sponsors • 43% with associated publications • Powerful search tools • Users can identify and track trials and outcomes

Electronic Knowledge Resources • Medline. Plus • Genetics Home Reference • Clinical Trials. gov • Infobot

Infobot • Augment an EMR with pertinent information from evidence-based resources • Provide access to key facts needed to support clinical decision making and evidence based plans of care 39

Inside of CRIS

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Electronic Knowledge Resources • Medline. Plus • Genetics Home Reference • Clinical Trials. gov • Infobot

Personal Electronic Health Knowledge Records Resources ? Infobuttons

Infobuttons • Context-specific links out to information resources

Infobuttons • Context specific links out to information resources • Resources that respond to specific information needs

Medline. Plus Connect for Diagnoses

Spanish Medline. Plus Connect for Diagnoses

Medline. Plus Connect for Medications

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Infobuttons • Context specific links out to information resources • Resources that respond to specific information needs

Personal Electronic Health Knowledge Records Resources ? Infobuttons LITE

Healthcare Institution Page of Links i Patient User Clinical Application with Infobutton Link Infobutton Manager The Librarian Infobutton Tailoring Environment (LITE) Institutional Librarian (or other LITE users) Infobutton Manager Knowledge Base

Personal Electronic Health Knowledge Records Resources ? Infobuttons LITE

Thanks to… • Thomas Graf, Geissinger Health System • Louise Lang, Kaiser Permanente • Clem Mc. Donald, NLM • Swapna Abhayankar, NLM • Joyce Backus, NLM • May Cheh, NLM • Deborah Zarin, NLM • Dina Demner Fushman, NLM