THE JGH PATIENT EDUCATION NETWORK PEN WORKING GROUP

THE JGH PATIENT EDUCATION NETWORK (PEN) WORKING GROUP: A HOSPITAL-BASED INTERPROFESSIONAL COLLABORATION TO FOSTER PATIENT EDUCATION MAGGIE NEWING, RN, MSC(A), PNC(C) FRANCESCA FRATI, MLIS AWHONN WINNIPEG OCTOBER 17, 2009

THIS PRESENTATION WILL: OBJECTIVES • EXPLORE THE PROCESS OF NURSES WORKING IN COLLABORATION WITH THE LIBRARY TO CREATE AN INTERPROFESSIONAL WORKING GROUP BENEFITING THE MATERNAL CHILD HEALTH DEPARTMENT AND THE ENTIRE HOSPITAL. • DISCUSS THE RESULTS OF A NEEDS ASSESSMENT. • DISCUSS THE CHALLENGES PRESENTED WHEN ATTEMPTING TO IMPLEMENT SPECIFIC PATIENT EDUCATION BEST PRACTICES. • SHARE SOME LESSONS LEARNED DURING THE EXPERIENCE.

THE SETTING • JGH – An acute-care Mc. Gill University teaching hospital – 637 beds • Maternal-Child – Tertiary care centre – ~4700 deliveries/yr

THE SETTING • Health Sciences Library – Support for research & clinical activities – Access to Mc. Gill biomedical resources • Patient and Family Resource Centre – Health information service for patients & families – Consumer health collection – Departmental patient education support

THE CULTURE • Multicultural, multilingual, “care for all” • Committed to addressing issues such as literacy, health literacy, patient safety & patient-centred care • Committed to fostering patient empowerment, shared decision-making

PARALLEL EFFORTS • Maternal Child Health – Working to develop patient materials – Looking for guidance in the process (creation/dissemination) – Recognize usefulness & importance of sharing resources and knowledge with other departments • Library – Working with departments to develop patient materials & recognized duplication of effort and need for more support – Received copy of Mc. Gill University Health Centre Guidelines & recognized usefulness of adapted version – Recognized need for interprofessional collaboration

CONVERGENCE OF EFFORTS: INTERPROFESSIONAL WORKING GROUP GIVEN THE IDENTIFIED NEEDS OF THE JGH COMMUNITY AN INTERPROFESSIONAL WORKING GROUP WAS SEEN TO BE THE BEST RESPONSE.

Assembling the team • Nursing • Library • Occupational Therapy • Physiotherapy • Quality program • Nutrition & Dietetics • Family Medicine • Public Affairs & Communications • Social Services • Pharmacy?

PEN Raison d’être • Patients – Safety – Literacy & health literacy issues – Multiculturalism / multilingualism – Empowerment & shared decision-making

PEN Raison d’être • Health Professionals –Support for the creation of patient education materials –Avoid re-inventing the wheel & duplication of effort –Easier access to patient education materials –Interprofessional environment so access to skills

PEN’S GOAL • To improve the quality and dissemination of patient education materials developed by Health Care Professionals at the JGH

PEN’S OBJECTIVES 1. To develop guidelines for the preparation of patient education materials to meet the specific needs of the JGH. These guidelines will be made into a Handbook that can be accessed by all JGH staff online. 2. a) To assess the current status of patient education materials at the JGH. b) To create a centralized patient education materials database. 3. To act as a resource in the preparation of patient education materials at the JGH. 4. To promote the JGH Patient and Family Resource Centre and increase awareness of the PEN Working Group’s activities as described above.

OUR FIRST PROJECT: THE HANDBOOK

The handbook • Adapting –Working with Mc. Gill University Health Centre • Promoting –Nursing Grand Rounds –JGH Now • Harvesting –Handbook is being used by JGH staff –Increased awareness of health literacy issues –Included in Mc. Gill Masters of Nursing course pack

OUR SECOND PROJECT: THE DATABASE

The database • Needs assessment survey –N = 38 – 30% response rate

NEEDS ASSESSMENT SURVEY RESULTS

NEEDS ASSESSMENT SURVEY RESULTS

NEEDS ASSESSMENT SURVEY RESULTS

CREATING THE DATABASE • Working with MUHC • Technical issues • Environmental scan/benchmarking • Fundraising

CONCLUSIONS

Lessons learned • Importance of understanding the culture • Potential strength of interprofessional team • The importance of sharing & transparency • Knowledge translation

Future directions • Continued collaboration of departments within hospital • Possible partnership with other institutions • Continued promotion of Patient and Family Resource Centre • Continued support for creation and dissemination of patient materials • Branding of patient materials

Acknowledgements • The Members of the JGH Patient Education Network • The JGH Health Sciences Library • The JGH Auxiliary • The JGH Quality Program • Mc. Gill University Health Centre (MUHC)

References • Coulter, A. , & Ellins, J. (2007). Effectiveness of strategies for informing, education and involving patients. BMJ, 335, 24 -27. • Epstein, R. M. , Alper, B. S. , & Quill, T. E. (2004). Communicating evidence for participatory decision-making. JAMA, 291, 2359 -2366. • JGH Patient Education Network Working Group. (2008). How to create effective written patient education materials. Montreal: Jewish General Hospital, Adapted by the JGH Patient Education Network (PEN) Working Group from the Mc. GIll University Health Centre Standards for Developing Effective Written Patient Learning Materials 2007. • Nicolson, D. , Knapp, P. , Rayno, D. K. , & Spoor, P. (2009). Written information about individual medicines for consumers (Review). Cochrane Database Systematic Review, 15(2), 1 -64. • Rootman, I. & Rootman, B. (2005). Literacy and health research in Canada: Where have we been and where should we go? . Canadian Journal of Public Health, 96, S 62 -S 77. • Shieh, C. & Halstead, J. A. (2009). Understanding the impact of health literacy on women’s health. JOGGN, 38, 601 -12.