THE JGH PATIENT EDUCATION NETWORK PEN WORKING GROUP

THE JGH PATIENT EDUCATION NETWORK (PEN) WORKING GROUP: A HOSPITAL-BASED INTERPROFESSIONAL COLLABORATION TO FOSTER PATIENT EDUCATION FRANCESCA FRATI, MLIS MAGGIE NEWING, N, MSC (A) ARLENE GREENBERG, MLS PAULA CALESTAGNE, B. A. CHLA KINGSTON JUNE 10 2010

THIS PRESENTATION WILL: AGENDA • EXPLORE THE PROCESS OF WORKING WITH NURSES TO CREATE AN INTERPROFESSIONAL WORKING GROUP THAT FOSTERS PATIENT EDUCATION • DESCRIBE PROJECTS TO DATE HANDBOOK, DATABASE • HIGHLIGHT THE LIBRARY’S LEADERSHIP ROLE IN PATIENT EDUCATION • SHARE SOME LESSONS LEARNED DURING THE EXPERIENCE.

THE SETTING • JGH – An acute-care Mc. Gill University teaching hospital – 637 beds

THE SETTING • Health Sciences Library – Support for research & clinical activities – Access to Mc. Gill biomedical resources • Patient and Family Resource Centre – Health information service for patients & families – Consumer health collection – Departmental patient education support

THE CULTURE • Multicultural, multilingual, “care for all” • Committed to addressing issues such as – literacy/health literacy – patient safety – patient-centred care • Committed to fostering patient empowerment, shared decision-making • Awareness & valuing of librarian skill set

PARALLEL EFFORTS • Health professionals – Working to develop patient materials – Looking for guidance in the process (creation/dissemination) – Recognition of usefulness & importance of sharing resources and knowledge with other departments • Library – Duplication of effort and need for more support was recognized while working with departments to develop patient materials. – Received copy of Mc. Gill University Health Centre (MUHC) standards & recognized usefulness of adapted version – Recognized need for interprofessional collaboration

CONVERGENCE OF EFFORTS: INTERPROFESSIONAL WORKING GROUP GIVEN THE IDENTIFIED NEEDS OF THE JGH COMMUNITY, AN INTERPROFESSIONAL WORKING GROUP WAS SEEN TO BE THE BEST RESPONSE.

Assembling the team • Nursing • Library • Occupational Therapy • Physiotherapy • Quality program • Nutrition & Dietetics • Family Medicine • Public Affairs & Communications • Social Services

PEN’S GOAL • To improve the quality and dissemination of patient education materials developed by Health Care Professionals at the JGH

PEN’S OBJECTIVES 1. To develop guidelines for the preparation of patient education materials to meet the specific needs of the JGH. These guidelines will be made into a Handbook that can be accessed by all JGH staff online. 2. a) To assess the current status of patient education materials at the JGH. b) To create a centralized patient education materials database. 3. To act as a resource in the preparation of patient education materials at the JGH. 4. To promote the JGH Patient and Family Resource Centre and increase awareness of the PEN Working Group’s activities as described above.

OUR FIRST PROJECT: THE HANDBOOK

The handbook • Adaptation • Promotion • Results – – Handbook is being used by JGH staff Increased awareness of health literacy issues Included in Mc. Gill Masters of Nursing course pack Will be further adapted by Guelph General Hospital and attached to their Patient Education Materials Policy and Procedure – Invited to join JGH Bill of Rights Committee

OUR SECOND PROJECT: ACCREDITATION

OUR THIRD PROJECT: THE DATABASE

The database • Needs assessment survey – N = 38, 30% response rate Emergency Surgical Suites Thrombosis Research Surgery Hematology oncology Pharmacy ICU Geriatrics ICS médecine Ergotherapy/Psychiatry Cardiology/Medicine Cardiac/Neuro Hemodialysis NICU Infection prevention & control Electrophysiology EEG Head and Neck Oncology Gynecologic oncology patient information service Breastfeeding clinic

SURVEY RESULTS Buy in: • 97% want database • 97% would contribute to database

SURVEY RESULTS

CREATING THE DATABASE • Technical issues – Following in the footsteps of the MUHC – Practicum student, Lisa Lin • Environmental scan/benchmarking – Listservs • Budget/Fundraising – Evolving budget – Finding support

CONCLUSIONS

Lessons learned • Importance of understanding the culture – JGH values: • Initiative/Creative problem solving • Building on your successes and learning from your “mistakes” • Potential strength of interprofessional team – Knowledge translation, networking, skill sets • The importance of sharing & transparency – Adopting the “librarian” attitude – Not reinventing the wheel

Future directions • Develop data entry and search interfaces 2010 • Launch database 2011 • Help secure financial support for creation/translation of patient education materials? • Collaborate with other hospitals?

Acknowledgements • Members of PEN • User’s Committee • Auxiliary • Nursing department • Hope & Cope • Quality Program • MUHC Patient Education Network Committee & MUHC Education Portfolio

References • Coulter, A. , & Ellins, J. (2007). Effectiveness of strategies for informing, educatiing and involving patients. BMJ, 335, 24 -27. • Epstein, R. M. , Alper, B. S. , & Quill, T. E. (2004). Communicating evidence for participatory decision-making. JAMA, 291, 2359 -2366. • JGH Patient Education Network Working Group. (2008). How to create effective written patient education materials. Montreal: Jewish General Hospital, Adapted by the JGH Patient Education Network (PEN) Working Group from the Mc. GIll University Health Centre Standards for Developing Effective Written Patient Learning Materials 2007. • Nicolson, D. , Knapp, P. , Rayno, D. K. , & Spoor, P. (2009). Written information about individual medicines for consumers (Review). Cochrane Database Systematic Review, 15(2), 1 -64. • Rootman, I. & Rootman, B. (2005). Literacy and health research in Canada: Where have we been and where should we go? . Canadian Journal of Public Health, 96, S 62 -S 77. • Shieh, C. & Halstead, J. A. (2009). Understanding the impact of health literacy on women’s health. JOGGN, 38, 601 -12.