Defining and Promoting Hope Patti Strawn RN CHPN

Defining and Promoting Hope Patti Strawn RN, CHPN 2016

OVER 2, 000 WALLS

IN 70 COUNTRIES

30 LANGUAGES

d i a r f a e b t o n To Write a novel To be the one that she believes I am

Objectives • Define the various facets of Hope • Explore communication techniques to foster hope • Learn techniques to foster hope in professional life • Discover how a participatory art exhibit can promote Hope in the community

What is Hope? Hopeless? Hopeful? Peter Opal

Hope • Noun: State of Hope; confidence or optimism • Verb: something you do rather than something felt; Sustaining an idea or belief • Adjective: Hopeful or Hopelessness; Inner strength; inspiration

Definition of Hope Snyder (2002) • “the perceived capability to derive pathways to desired goals, and motivate oneself via agency thinking to use those pathways. ” Snyder, C. R. (2002). Hope theory: Rainbows in the mind. Psychological Inquiry, 13(4), 249– 275. Itzhaky et al (2004) • “Hope involves recognition of reality and the difficulties it involves and an effort to cope with and overcome them by offering a more effective behavioral alternative for coping than denial. ” Itzhaky, Haya, Lipschitz-Elhawi, Rachel. Hope as a Strategy in Supervising Social Worker of Terminally Ill Patients. Health and Social Work 2004; Vol. 29, No. 1, 46 -54.

• Experiential Behavioral Affective Cognitive • Rational Thought • Relational Searching for Hope Interpersonal Connectedness Reframing; Goal Refinement Meaning and Purpose • Spiritual/ transcendent

7 Dimensions of Hope Time Undesirable starting point Goals Likelihood of success Locus of Control Relations Personal Characteristics

Dynamic and Changing • Environment • Health or change in health • Loss • Pain • Any successes or Achievements • Relationships • Spirituality • Attitude

What about Peter and Opal? Hopeless? Hopeful?

How is Hope Measured? • Dispositional Hope Scale • State Hope Scale • Children’s Hope Scale • Miller Hope Scale • Gottschalk Hope Scale • Herth Hope Index

Cognitive • Explore and define realistic goals • Find new meaning • Acknowledge and respect perspectives • Positive feedback Behavioral • Focus on strengths Affective Fostering Hope Environment • Engage in dialog regarding hopes and fears acknowledging concerns • Empathy and acceptance • Relationships, trust, presence, spirituality, symptom burden

“ Ask-Tell-Ask; Hope for the best, plan for the worst ” Campbell, Toby C MD, et al. Discussing Prognosis. The Cancer Journal 2010; Vol. 16, No. 5, 461 -466.

Promoting Hope for Professionals Shanafelt 2005 • Be cognizant of professional and personal values • Examine what promotes meaning in your work • Promote self care and wellness strategies Koenig 2006 • What is your experience with developing goals? • How have you used hope to deal with your current circumstances? • What has helped you learn to be aware of hopeful moments? • How do your emotions affect your growth and use of hope? • What kinds of relationships with older adults and other have fostered your hope? • What kinds of relationships with the environment have fostered your hope? • What is the role of spirituality or selftranscendence in helping you to develop and sustain hope? • What actions have you taken in your personal life as a result of hope in your capacities to change?

Candy Chang Plenary speaker at the 2016 AAHPM/HPNA Annual Assembly Recipient of the American Academy of Hospice and Palliative Medicine 2016 Humanitarian award Creator of the first Before I Die Wall in New Orleans 2011 http: //candychang. com/work/before-i-die-in-nola/ http: //beforeidie. cc/site/naples/

Why Build? • Public forum • Sparks public conversation • Anonymous • Quiet can be heard • Space is safe • Unique • All handwriting and comments are individual • Reflection • Life, death, personal reflection • Community Connection • Conversations or thoughts about Mortality

Love Family Helping Others Personal Well Being Travel

Before I Die Wall in Wenatchee, WA November 2016 during National Hospice and Palliative Care Month 5 Steps in Building a Wall 1. 2. 3. Choose a site Get permission Spread the Word http: //beforeidie. cc/site/build-your-own-before-i-diewall/

• 5. Maintain your wall 4. Make your own wall Pictures of our wall