Trinity Amputation and Prosthesis Experience Scale Revised Early

Trinity Amputation and Prosthesis Experience Scale – Revised Early data at P&O Clinic Prepared by Marnie Jones Physiotherapy Unit Head Port Kembla Hospital September 2012

TAPES - R l P Gallagher presented this survey at the ISPO conference in Sydney. Gallagher P & Mac. Lachlan M 2000, Gallagher P, Franchignoni F, Giordano A, Mac. Lachlan M 2010 l The questionnaire is to be completed by the person with a prosthesis. www. psychoprosthetics. ie pamela. gallagher@dcu. ie l Moderate correlation between the Amputation Body Image Scale (ABIS – R) and TAPES psychosocial adjustment subscale. Gallagher P et al 2007 l 2 MWT was a significant predictor of performance of ambulation in the community as measured by the TAPES Activity Restriction subscale. Parker et al 2010 l To be used for improvement of our understanding of aspects of prosthesis use to develop better services.

Survey method l Volunteer Amputee Peer Support Visitors (VAPS) conduct the survey to amputees attending Prosthetic Clinic at PKH. l Data entry by Physiotherapist in Amputee Rehab. l Intended project is to compare surveys completed at a prescription Clinic, then a second after they have received the prescribed change. l To date, only the first phase results have been collected. Discussion for additions or corrections are welcome.

Results Number surveys n= 26 Male (%) 58 Completed the survey independently (%) 44 average min max Age 61. 39 33 81 Time since amputation (years) 14. 19 0. 2 47 Time with any prosthesis 13. 14 0. 1 46 Time with this prosthesis 2. 15 0. 1 6. 3 Hours wear prosthesis 11. 79 4 18

Results Type Prosthesis (%) Amputation Result of from (%) TTA TFA KDA Other 66 24 5 5 PVD Diabetes Accident Other 23 19 46 12 Very poor 1 General Health Physical Capabilities 1 poor 2 fair 3 good 4 Very good 5 3 4 10 8 3 7 14 2

General Adjustment subscale Strongly disagree 1 Disagree 2 Agree 3 Strongly agree 4 average I have adjusted to having a prosthesis 1 4 11 11 3. 23 As time goes by I accept my prosthesis more 2 3 11 9 2. 96 I feel that I have dealt successfully with this trauma in my life 2 1 10 13 3. 31 Although I have a prosthesis, my life is full 6 10 10 3. 15 I have gotten used to wearing a prosthesis 5 10 11 3. 23

Social Adjustment subscale

Adjustment to limitation subscale

Average Adjustment Disagree

Activity Restriction scale Having a prosthesis limits me: Yes limited a lot 2 Limited a little 1 No not limited at all average Vigorous activities, running, lifting heavy objects, strenuous sports 18 5 2 1. 64 Climbing several flights of stairs 12 7 7 1. 19 Running for a bus 20 4 1 1. 76 Sport and recreation 16 7 3 1. 5 Climbing one flight of stairs 4 10 12 0. 69 Walking more than a mile 11 11 4 1. 27 Walking half a mile 12 6 8 1. 15 Walking 100 metres 5 6 15 0. 62 Working on hobbies 4 9 12 0. 68 Going to work 6 6 11 0. 78

Average Activity Restriction Yes, a lot

Aesthetic Satisfaction with Prosthesis subscale Not satisfied 1 satisfied 2 Very satisfied 3 Colour of my prosthesis 2 16 6 Shape 3 17 5 Appearance 4 16 4

Functional Satisfaction with Prosthesis subscale Not satisfied 1 Satisfied 2 Very satisfied 3 Weight 4 17 5 Usefulness 4 13 9 Reliability 1 16 9 Fit 8 11 7 Comfort 8 13 5 …Of my prosthesis

Pain and Medical Problems % yes Episodes/ week Duration each episode Range Residual limb 58 pain 7 6. 87 minutes 1 – 30 min Phantom limb pain 62 5. 57 12. 37 minutes 15 sec – 60 min Medical problems 46 6 Continuous, varied, constant, 1 -2 wks, 2 hrs, 15 min

Pain and Medical Problems horrible 4 Residual pain level 1 1 2 9 2 Residual pain – interfere with life 1 1 5 4 4 Phantom pain – level 2 1 2 6 1 Phantom pain – interfere with life 1 2 2 5 6 Medical problems – level 1 4 3 2 Medical problems – interfere with life 1 3 5 2 3 distressing 3 discomforting 2 mild 1 Excruciating 5

Pain Levels and Interferes with life excruciating mild

Discussion l Need Power to complete ethics application l Items with potential to change by effecting prescription l Acquittal vs later follow-up l Ideas to change program for greater adjustment