Positive Choices STOMP IT OUT University of Hull

Positive Choices STOMP IT OUT! University of Hull 7 th April 2017 www. england. nhs. uk/learningdisabilities

Thank you for inviting us • Hazel Griffiths, Expert by Experience • Carl Shaw, Learning Disability Adviser • Anne Webster, Clinical Lead • Gavin Harding MBE, Learning Disability Adviser NHS England Learning Disability Programme www. england. nhs. uk/learningdisabilities

What we’re going to talk about • STOMP and people with learning disabilities, autism or both • STOMP and Nursing • Care and Treatment Reviews • Welcome Mi. Xit to the stage! www. england. nhs. uk/learningdisabilities

First, let’s talk Makaton! We want to talk to you about medication www. makaton. org #Get. The. Nation. Signing www. england. nhs. uk/learningdisabilities

Stop Over Medicating People with a learning disability, autism, or both Public Health England (2015) estimates that every day 30, 000 to 35, 000 adults with a learning disability are prescribed an antipsychotic, antidepressant or both, when they don't have a mental health condition. Unnecessary use of these drugs, puts people at risk of significant weight gain, organ failure and even premature death. www. england. nhs. uk/learningdisabilities

Problems of over medication with psychotropic drugs • Managing people’s behaviour rather than treating a mental health condition • Too much • Too many • Too long • Health risks • Giving prescriptions without finding out what is wrong • Relying on drugs at the expense of non-drug treatments and support www. england. nhs. uk/learningdisabilities

It’s a human rights issue Human rights resources at BIHR www. bihr. org. uk/health www. england. nhs. uk/learningdisabilities

STOMP is about more than…. • Better record keeping • Better transfer of information about medicines between GPs and specialists (and everyone else involved) • Ensuring people get a diagnosis • Stopping prescription errors Although these are all important too www. england. nhs. uk/learningdisabilities It is about • Alternatives to medication • A fundamental rethink of the role of psychotropic drugs for the management of behaviour which is seen as challenging • A better quality of life

Hazel’s story • How my son ended up on antidepressants, benzodiazepines and antipsychotic drugs • How it felt to me as a nurse and mum • What we did about it • How my son is now • What did we learn? • What am I doing about it now? www. england. nhs. uk/learningdisabilities

www. england. nhs. uk/learningdisabilities

The nurses role in STOMP www. england. nhs. uk/learningdisabilities

The nurses role in STOMP • Empowering and involving the person and their family • Comprehensive assessment • Multi-disciplinary team working • Regular reviews, drug reduction plans and monitoring • Promoting alternatives to medication • NICE Guidance & best practice www. england. nhs. uk/learningdisabilities

Support the STOMP Pledge by: • • Finding out more about STOMP Raising awareness of others Becoming a STOMP champion Writing articles or features in your university journal/magazine about STOMP • Focussing on STOMP as a project about use of psychotropic medication and alternatives • Asking questions on placement about what people know about STOMP • Checking on placement if a pharmacist provides support about medication • www. england. nhs. uk/stomp www. england. nhs. uk/learningdisabilities

… stop press… Before we give a big welcome to Mi. Xit and their new STOMP play A quick update on CTRs! www. england. nhs. uk/learningdisabilities

Care and Treatment Review Policy • The CTR Policy came out in 2015 • Over 500 community CTRs carried out – in 3 out of 4 cases the outcome was the person was not admitted to hospital • CTRs bring people together with the person and family to work together • CTRS bring in independent experts to review care and treatment • CTRs help to raise standards of hospital care for each person • And help make sure people aren’t in hospital any longer than necessary • New policy and materials out this week! Strengthening the quality & follow up • Visit www. england. nhs. uk/ctr www. england. nhs. uk/learningdisabilities

Advice from an ex-uni tutor You need to understand what a powerful tool a CTR is. It will help you plan care with people and not for people. Explore the success of CTRs and listen to people's stories of how their lives have moved on and discharge has occurred as a result. It will change your hearts and minds. CTRs will help you put into practice things you learn, like: empowering people, ensuring equality, managing change, tackling barriers, engaging families, the importance of good clinical pathways and effective discharge planning. www. england. nhs. uk/learningdisabilities

And now, with no more ado… Put your hands together for www. england. nhs. uk/learningdisabilities