JHS Community Outreach Center Jackson Heart Study Community

JHS Community Outreach Center

Jackson Heart Study Community Outreach Center Daniel Hale Williams Scholars Presentation Donna Antoine-La. Vigne, Ph. D, MPH, MSEd Principal Investigator Jackson State University April 15, 2014

Community Engagement Key Points Community Outreach Community Health Advisors Network Health Fairs Education & Training Translational Research Dissemination Consistent Communication Mentorship, Internships Community Partners Hiring Male Community Outreach Specialist Local and National Partners Community Ethics Board Retention Collaborations Media Coverage

History • No secret that AA have historically been challenged with trusting researchers. • Distrust in medicine and research may be rooted in experiences extending back to slavery (Gamble, 1993; Dula 1994; Corbie-Smith et al, 2002). • During slavery attitudes about Blacks being less than human justified the use of slaves and free Blacks as “subjects for medical experimentation (Savitt, 1982; Humphrey, 1973)

History • Dr. Thomas Hamilton conducted a series of brutal experiments on Fed (slave) to test for remedies heatstroke (Boney, 1967); • Dr. J. Marion Sims (father of modern gynecology) between a 4 year period used 3 slave women to develop a procedure (30 surgeries each) • Post civil war many black people believed they would be experimented upon if they entered hospitals (Boney et al. , 1967).

Guiding Principles • Trust • Respect • Participation • Knowledge • Experience

Trust • involves the expectation that the person (or institution) will act in your best interests, e. g. , competently, fairly, openly, and with concern; • (b) is generally risky because of the uncertainty as to whether this will indeed occur (Gilson 2003); and • (c) may be particularly risky in the case of people who are ill or otherwise especially vulnerable (Mc. Cary, 1999).

Why Do researchers need to approach communities differently? • Communities need to have a voice in any research done in community • Research must be relevant and grounded with the priorities of community • Communities should be engaged in both the design and implementation of the research • Issues need to be framed by the community so that they speak to community at large

Jackson Heart Study Recruited • 5, 302 participants • Largest all African American CVD single site cohort

JHS Community Health Screenings with Partner Hinds Community College

National Partner - University of Michigan Partners In CBPR

JHS and Community Get Physical!

Jackson Heart Study Community Health Advisors (CHAs) and Projects Jackson Heart Study Community Health Advisor (CHA) Groups Jackson Clinton Members Trained (N=92) 18 24 Canton 13 Rankin 25 Projects (Examples) Community Walks, Health Fairs; BP Readings, Mother’s Brunch, Holiday Retention Activity Youth Presentations/Activities; Senior Health Fairs; Faith Presentations; Seminars; Health Fairs; Presentations; Community Health Walks and Health Fairs Health Walks and Health

Introducing Marty Fortenberry Community Outreach Specialist

Seniors Participating in Community Walks Mother Jenkins and Friend

Bolton Community Legends

Retention Collaboration Activity

Retention Collaboration

Media Coverage o Inner City Broadcasting Company- the second largest radio broadcasting company targeting African-Americans. JHS placed ads with WKXI (reaches 70, 000) and WOAD (5, 200) o WJSU - Jackson State University Jazz Station which covers a large segment of the professional (medical, education, and business communities) has 20, 000 loyal listeners o The Jackson Advocate, the oldest weekly African American owned and operated newspaper and a readership of 32, 000 o The Mississippi Link reaches 17, 000 readers across the state

Dissemination of CORC Activities • A manuscript entitled "Building Community Partnerships in Cardiovascular Research: Jackson Heart Study" is being revised for consideration for publication • Evaluation of CPO and CHA activities are chronicled in a manuscript “The impact of organized community capacity building on health risk practices in an African American community” has been published by the Journal of Behavioral Health, February 2013 available at www. scopemed. org • JHS Newsletter published twice per year • Translated research articles disseminated at events, churches and community and scientific activities, locally and nationally

Future Evaluation Plans Community Outreach Center • Future activities conducted under the auspices of this office will be evaluated using the REAIM. • In the JHS Community renewal CORC is collaborating with the University of North Carolina (Dr. Eugenia Eng) to increase scientific input of community research.

JHS Community Advocate Mrs. Margie Cunningham

JHS Community Advocate Mr. Willie Richardson

JHS Community Advocate Mrs. Dorothy Stewart

Summary • The CPO enjoyed 13 years as a unit within the Jackson State University JHS Coordinating Center. We have provided many relevant activities to address cardiovascular health disparities in the African American community. We are now the JHS Community Outreach Center (CORC) and we have added a scientific component.