CHAPTER 11 PAEDIATRIC ANZDATA Registry Annual Report 2013

CHAPTER 11 PAEDIATRIC ANZDATA Registry Annual Report 2013

Figure 11. 1 a ANZDATA Registry Annual Report 2013

Figure 11. 1 b ANZDATA Registry Annual Report 2013

Figure 11. 2 a ANZDATA Registry Annual Report 2013

Figure 11. 2 b ANZDATA Registry Annual Report 2013

Figure 11. 3 Causes of End Stage Kidney Disease In Children and Adolescents 2007 - 2012 Australia and New Zealand Age Groups (Years) GN Total 0 -4 5 -9 10 -14 15 -17 10 (12%) 20 (31%) 27 (33%) 40 (40%) 97 (29%) 2 (2%) 3 (3%) 5 (2%) Familial GN Reflux Nephropathy 4 (5%) 2 (3%) 5 (6%) 10 (10%) 21 (6%) Polycystic Kidney Disease 8 (10%) 5 (8%) 1 (1%) 2 (2%) 16 (5%) 1 (2%) 4 (5%) 2 (2%) 7 (2%) 11 (13%) 2 (2%) 20 (6%) Medullary Cystic Disease Posterior Urethral Valve 7 (9%) Haemolytic Uraemic Syndrome 7 (9%) 1 (2%) 2 (2%) 12 (4%) 24 (29%) 14 (22%) 10 (12%) 14 (14%) 62 (19%) Hypoplasia/Dysplasia Diabetes 1 (1%) Cortical Necrosis 2 (2%) 1 (0%) 2 (3%) 2 (2%) 3 (3%) 9 (3%) Interstitial Nephritis 1 (2%) 1 (1%) 3 (1%) Cystinosis 1 (2%) 1 (1%) Uncertain 1 (1%) 2 (3%) Misc/Other 19 (23%) 16 (25%) 82 65 Total ANZDATA Registry Annual Report 2013 2 (1%) 5 (5%) 8 (2%) 16 (19%) 16 (16%) 67 (20%) 83 100 330

Figure 11. 4 Modality of Initial Renal Replacement Therapy By Year of First Treatment - Australia and New Zealand < 18 Years of Age at First Treatment Current Treatment Year 2007 2008 2009 2010 2011 2012 Total 20 23 27 22 29 26 147 HD 4 (20%) 6 (26%) 4 (15%) 5 (23%) 10 (34%) 8 (31%) 37 (25%) PD 14 (70%) 15 (65%) 17 (63%) 14 (64%) 14 (48%) 12 (46%) 86 (59%) Transplant 2 (10%) 2 (9%) 6 (22%) 3 (14%) 5 (17%) 6 (23%) 24 (16%) 31 38 27 25 24 38 183 0 -9 Years 10 -17 Years HD 12 (39%) 22 (58%) 12 (44%) 13 (52%) 8 (33%) 16 (42%) 83 (45%) PD 12 (39%) 8 (21%) 12 (44%) 5 (20%) 10 (42%) 15 (39%) 62 (34%) Transplant 7 (23%) 8 (21%) 3 (11%) 7 (28%) 6 (25%) 7 (18%) 38 (21%) 51 61 54 47 53 64 330 Total ANZDATA Registry Annual Report 2013

Figure 11. 5 Modality of Treatment for all Patients in Australia and New Zealand < 18 Years of Age at 31 st December Year Current Treatment 2007 2008 2009 2010 2011 2012 Total Haemodialysis 24 (8%) 35 (11%) 29 (9%) 30 (9%) 29 (9%) 30 (8%) 177 (9%) Peritoneal Dialysis 55 (18%) 54 (17%) 57 (18%) 50 (15%) 52 (16%) 49 (14%) 317 (16%) Transplant 229 (74%) 225 (72%) 229 (73%) 245 (75%) 251 (76%) 275 (78%) 1454 (75%) 308 314 315 325 332 354 1948 Total ANZDATA Registry Annual Report 2013

Figure 11. 6 ANZDATA Registry Annual Report 2013

Figure 11. 7 ANZDATA Registry Annual Report 2013

Figure 11. 8 a ANZDATA Registry Annual Report 2013

Figure 11. 8 b ANZDATA Registry Annual Report 2013

Figure 11. 9 ANZDATA Registry Annual Report 2013

Figure 11. 10 a ANZDATA Registry Annual Report 2013

Figure 11. 10 b ANZDATA Registry Annual Report 2013

Figure 11. 11 a ANZDATA Registry Annual Report 2013

Figure 11. 11 b ANZDATA Registry Annual Report 2013

Figure 11. 12 ANZDATA Registry Annual Report 2013

Figure 11. 13 ANZDATA Registry Annual Report 2013

Figure 11. 14 Proportion of Prevalent Patients for whom URR or Kt/V was reported < 18 Years of Age at 31 st December in Australia and New Zealand 2008 - 2012 Current Treatment Year Modality 2008 2009 2010 2011 2012 Australia Haemodialysis 56% 96% 63% 61% Australia Peritoneal Dialysis 13% 7% 10% 5% 10% New Zealand Haemodialysis 80% 100% 86% New Zealand Peritoneal Dialysis 94% 93% 90% 100% 80% ANZDATA Registry Annual Report 2013

Figure 11. 15 a ANZDATA Registry Annual Report 2013

Figure 11. 15 b ANZDATA Registry Annual Report 2013

Figure 11. 16 a ANZDATA Registry Annual Report 2013

Figure 11. 16 b ANZDATA Registry Annual Report 2013

Figure 11. 17 a ANZDATA Registry Annual Report 2013

Figure 11. 17 b ANZDATA Registry Annual Report 2013

Figure 11. 18 a ANZDATA Registry Annual Report 2013

Figure 11. 18 b ANZDATA Registry Annual Report 2013

Figure 11. 19 ANZDATA Registry Annual Report 2013

Figure 11. 20 ANZDATA Registry Annual Report 2013

Figure 11. 19 ANZDATA Registry Annual Report 2013

Figure 11. 21 ANZDATA Registry Annual Report 2013

Figure 11. 22 Use of PD Solutions 2009 - 2012 Australia New Zealand 2009 2010 2011 2012 (n = 43) (n = 40) (n = 39) Glucose 42 (98%) 30 (75%) 28 (70%) 35 (90%) 14 (100%) 10 (100%) 12 (100%) 10 (100%) 42 (98%) Icodextrin 2 (5%) 6 (15%) 9 (23%) 1 (7%) 0 (0%) 2 (17%) 3 (30%) 2 (5%) 11 (26%) 17 (43%) 11 (28%) 5 (13%) 12 (86%) 8 (80%) 10 (83%) 5 (50%) 11 (26%) 1 (2%) 8 (20%) 6 (15%) 4 (10%) 0 (0%) 1 (2%) Solutions Low GDP Lactate Low GDP Bicarbonate ANZDATA Registry Annual Report 2013 (n = 14) 2009 2010 2011 2012 (n = 10) (n = 12) (n = 10) (n = 43)

Figure 11. 24 ANZDATA Registry Annual Report 2013

Figure 11. 25 ANZDATA Registry Annual Report 2013