Whats Health Got to Do With It Integrating

What’s Health Got to Do With It? Integrating Education & Health Care Transitions to Achieve Mutual Outcomes APSE National Conference Philadelphia, PA June 23, 2015

Let’s Chat Twitter: @WSPJ 1 Text: 785 -764 -2472 Online: PAHJ 44 U 9

What Happens to Youth When They Grow Up? Experience a variety of transitions: School Adult Services But did you know: Pediatric Medical Care Adult Medical Care Pediatric Specialty Care Adult Specialty Care

What is the Goal? • Quality Adult Life • Health Care • Well-Being • Employment • Independent Living • Community Participation • Relationships

What are Your Experiences with Health Care Transition? q I am currently receiving pediatric medical care q I am currently receiving adult medical care q I am currently in the process of transitioning from pediatric to adult care q I am not currently transitioning but would like to q I would like more information about health care transition

What is Health Care Transition? Family HEALTHCARE Pediatrics TRANSITIONS… PATIENT Adult Care …

What is Often the Reality? Family HEALTHCARE TRANSITIONS… Pediatrics Adult Care PATIENT The Specialist …

What is the Impact? • Range of disparities in health outcomes • Reduced access to health care • More difficulty getting needed care • Poorer health outcomes

What Contributes to “the Gaps” in Transition? • No reimbursement for transition activities • Limited number of adult providers • Youth not considered to be “transition ready” • Lack of knowledge of pediatric and congenital conditions

How Many Youth with Special Health Care Needs Turn 18 Each Year? q 100, 000 q 250, 000 q 500, 000 q 750, 000 q 1, 000

Why is Health Care Transition Important? • 4. 5 million youth with special health care needs • 65% of whom are moderately to severely affected • 750, 000 of these youth turn 18 every year • Most live well into adulthood

Why Should We Think About Health? • Impacts everything we do • Influences school, work, and quality of life • Importance of access to insurance and medical care

What Often Happens?

Different Worlds

Different Perspectives

Different Models

Concept of Supports

Awareness of Best Practices

Expectations

So How Can We Connect the Two?

What Did Stakeholders Tell Us? • Focus Groups • Interviews • Survey • Learning Collaborative

What Were the Common Themes? Information & Education Tools & Resources Interventions & Protocols

What are Critical Components in Transition? • Developing skills that are credible in adulthood • Providing youth with access to people in the adult world • Providing opportunities for youth to participate in the adult world

Transition Engagement Checklist ü A framework of “talking points” A “current status check” of key aspects of successful transition ü ü An “action plan” for addressing the skills and supports needed to enhance the adolescent’s self-determined actions over time.

TRANSITION ENGAGEMENT CHECKLIST

TRANSITION ENGAGEMENT CHECKLIST [Continued]

TRANSITION ENGAGEMENT CHECKLIST [Continued]

Patient Interaction Tool • Developed by youth with disabilities • Input regarding the type, number, and format of questions • Determined the most important and useful questions • Provides youth with a guide to start conversations

Adolescent Transitioning Clinic • Multi-disciplinary, day long • Comprehensive • Transition readiness • Self-determination • Education • Employment • Community organizations “I hope…that other families will have this wonderful experience and to provide another young person the opportunity to use this great resource to assist them as they transition to the adult world. I highly recommend it! A++”

How Can I Participate? • Field testing of the Transition Engagement Checklist • Field Testing of the Patient Interaction Tool • Provide input, comments, and feedback • Stay connected

What Else Can I Do? • Get to know the medical community • Share resources and what you can do • Provide “patient summaries” (skills, communication, supports) • Include health in your work • Promote skills and experiences important for health care transition

Let’s Hear From You? • http: //www. socrative. com • Enter Teacher’s Room Code: PAHJ 44 U 9 • Click on: Join Room • Enter Your Name: ___________ • Click on: Done

For more information, contact Wendy Parent-Johnson Wendy. parentjohnson@usd. ed (605)357 -1468 Richard Parent-Johnson Richard. parentjohnso@usd. edu USD Center for Disabilities (www. usd. edu/cd)