Patients for Patient Safety Margaret Murphy Patient Advocate

Patients for Patient Safety Margaret Murphy, Patient Advocate External Lead Patients for Patient Safety Programme WHO Patient Safety Conference RCSI, Dublin 9 th February 2012 THE PATIENT PERSPECTIVE : The Power in Empowerment

ASK, LISTEN, TALK - A Personal Experience - § § § In the context of the aftermath of an adverse event Listen and HEAR Acknowledge the error Don’t offer excuses Identify the missed opportunities – the contributing factors Enable and empower by offering partnership and collaboration

FRAMEWORK AND PROCESS § § § COMMITMENT Proactive engagement of patients in own care Capture lessons learned from the patient experience Embed patient and family in every aspect of healthcare DELIVERABLE Knowledgeable Patients receiving safe & effective care from skilled professionals in appropriate environments with assessed outcomes

Patients For Patient Safety (PFPS) § The gap between the levels of safety possible and those being experienced § The emergence of the ‘Patient Advocate’ § The nature of advocacy – volunteers committed to collaborative partnership in the co-production of safe care § The advocate's motivation – experiences as catalysts for change – using the past to inform the present and influence the future – in partnership and collaboration

Patients for Patient Safety Workshops 214 Champions in 51 Countries – 13 Collaborating organisations

Patients for Patient Safety - The Tools and the Process - § § § A National Network of Patient Safety Champions/Advocates Work in partnership to improve patient safety Articulate the patient voice and patient perspective of care Expectation of empowerment, enablement and support Provide a grassroots resource to inform decision making, regulatory affairs, education, research, etc. § Tangible evidence of providers prepared to go the extra mile § A pledge of partnership from patients § The role of leadership “No one is ever hesitant to speak up regarding the wellbeing of a patient and everyone has a high degree of confidence that their concern will be heard respectfully and acted upon. ” M Leonard, Kaiser Permanente

MEANINGFUL PARTNERSHIPS § A Danish reference § The Canadian Example § Responding to a current crisis – finding a solution § Testimony from PFPSC § Testimony from CPSI

WHAT PATIENTS WANT § § § Openness Transparency Professionalism Inclusion Trustworthiness Survey Results “To err is human, To cover is unforgiveable, To refuse to learn is inexcusable. ” Donaldson Sir Liam