Ewelina Szmytke Lung Cancer Europe (Lu. CE), Association For The Fight Against Lung Cancer, Poland ELF Council
LUNG CANCER PATIENT PRIORITIES WHY? • To include the LC patients needs, • To help the healthcare professionals understand these needs and create the best possible relation with the LC patient.
LUNG CANCER PATIENT PRIORITIES HOW? By developing: • a patient-led guidance for patients and healthcare professionals to be implemented in healthcare centers. • a patient priorities lung cancer website as a source of quality information in Europe Priorities identified through: • online survey (in 15 languages), • workshops in Brussels and Amsterdam, Worked closely with ERS lung cancer working group.
PATIENT ADVISORY GROUP (PAG) • Formed to guide and inform the project • 16 individuals from: Czech Republic, Denmark, Germany, Ireland, Italy, Poland, Spain and UK
PATIENT PRIORITIES LUNG CANCER WEBSITE LAUNCHED World Lung Cancer Day - 1 August 2016 www. europeanlung. org/lungcancer • • • Basic and detailed information Latest research Videos from PAG members Support organisations Information in other languages Priorities for treatment
OCCUPATIONAL HEALTH PROJECT WHY? • To provide information for people who may be worried about the impact of their workplace on their lung health • To help people think about possible causes of their lung problems when they go to see their doctor HOW? • Using a quiz or interactive tool to get them interested • Information to be provided on a website