The Personal Research Data Workflow Alastair Dunning Head

The Personal Research Data Workflow Alastair Dunning Head, Research Data Services, TU Delft Library Head, 4 TU. Research. Data 28 th January 2020 International Privacy Day Event

2 Data Horror Week Getting the birthdate wrong for 100 s of survey recipients https: //www. lcrdm. nl/horror-family-stress

3 “The implementation of the General Data Protection Regulation (GDPR) raises a series of challenges for scientific research, in particular for research that is dependent on data” https: //www. europarl. europa. e u/Reg. Data/etudes/STUD/2019/ 634447/EPRS_STU(2019)6344 47_EN. pdf

4 1 in 5 TU Delft researchers hold personal research data https: //openworking. wordpress. com/2019/12/02/research-data-management-survey-2019 -the-results-are-here/

Connecting …. Data Management Privacy Ethics 5

6 Personal Research Data workflow “This workflow makes it as simple as possible for researchers to comply with all requirements regarding data management, privacy and human research ethics. ” https: //www. tudelft. nl/en/library/current-topics/research-data-management/r/manage/confidential-data/personal-research-data/

7 Worry less and sleep better Worries? Complexities? Ethical boundaries? Workflow helps you come to terms with issues before they become problems

8 All projects with personal data Human Resource Ethics Committee Data Management Plan How is data being created? How is data being stored? Who can access it during and after a project? Are subjects subjected to risk given the potential benefits? Have subjects or participants been adequately informed and given free consent? Data Privacy Impact Assessment Will personal data be processed? Will data sets be combined or matched? . Research Ready to Go.

9 More detailed version of the workflow https: //www. tudelft. nl/en/library/current-topics/research-data-management/r/manage/confidential-data/personal-research-data/

10 Personal Research Data Workflow ▪ Before research starts - though some parts can be modified during a project ▪ Provides assurance to funders ▪ Doing Part 1, will make Part 2 easier, and then Part 3 ▪ Data Stewards as first point of contact ▪ Separate documents for each step - Longterm - making the passing of info even easier

Data Management Plan Required by most funding bodies; also part of TU Delft Research Data Framework Policy DMP Online provides a template Faculty Data Steward provides help

Data Privacy Impact Assessment Under the General Data Protection Regulation (GDPR), a Data Protection Impact Assessment (DPIA) is carried out for high-risk data processing. Privacy team at ICT will help with pre-screening and completion of DPIA if required

Human Research Ethics Committee (HREC) Compliance with HREC embedded in forthcoming TU Delft Code of Conduct HREC first uses a checklist to determine whether the proposed research poses more than a minimal ethical risk Academic Integrity Officer to be appointed in 2020

The Personal Research Data Workflow Alastair Dunning Head, Research Data Services, TU Delft Library 28 th January 2020 International Privacy Day Event