Selfcare Retention June 2012 Selfcare and Retention Popup

Self-care & Retention June, 2012

Self-care and Retention Pop-up Question What do we mean by Self Care? Visit www. incarecampaign. org

Self-care and Retention HIV as a Chronic Condition Ø Potent ARTs have transformed HIV into a chronic manageable disease Ø Many similarities to other chronic diseases but also important differences (stigma, drug resistance) Ø HIV therapy is life long Ø Treatment strategies must be sustainable Ø HIV patients have day-to day responsibilities for their care Ø Providers must support motivation, tools, and skills Aberg J. The Changing Face of HIV Care: Common Things Really Are Common. Ann Intern Med. 2006; 145(6): 463 -65

YOU

Self-care and Retention What is self-care? “The ability of patients with chronic illnesses, in a complementary partnership with their health care providers, to manage the symptoms, treatment, lifestyle behavior changes, and the many physical and psychosocial challenges that they face each day. ” A composite of definitions in the literature

Self-care and Retention What is self-care for people with HIV/AIDS? Ø Ø Ø Ø Ø Learn about their HIV disease Develop effective communication skills Actively partner with providers in decision-making Practice action-planning and problem solving Self-monitor symptoms and follow treatment directions Seek expert medical care and advice Use family, peer, and community support resources Maintain emotional and psychological balance Practice health-enhancing behaviors

Self-care and Retention Pop-up Question Do you practice self care? How? Visit www. incarecampaign. org

Self-care and Retention in HIV Care ØPersonal. [e. g. disease knowledge, perceived illness, acceptance] ØStructural [help remembering appointments, transportation] ØFinancial [insurance, public support – housing, food, etc. ] For more information about self-care, visit the NQC web site: http: //nationalqualitycenter. org/index. cfm/5943

Self-care and Retention Things You Can Do to Improve Self-Care – Personal Changes ØImprove knowledge about HIV; dispel negative beliefs ØImprove your health literacy – your understanding of HIV care ØConnect with others who can share information, answer questions and provide support Visit www. incarecampaign. org – “Resources Tab” to learn about effective retention initiatives.

Self-care and Retention Things Others Can Do to Support Your Self-care ØReminder calls or texts ØTransportation or other supports ØInsurance that enables routine access to health care; know how to use care Visit www. incarecampaign. org – “Resources Tab” to learn about effective retention initiatives.

Self-care and Retention Pop-up Question What do you do to improve your ability to take care of yourself? How do you engage others to support your self-care efforts? Visit www. incarecampaign. org

Self-care and Retention Check Out the “Making Sure” Curriculum ØIt’s free ØAvilable through the National Quality Center ØUse if for your group of HIV+ peers Download “Making Sure” at http: //nationalqualitycenter. org/index. cfm/6176/13886 Order Copies: info@incarecampaign. org

Self-care and Retention A Tool to Help Improve Self-Care Ø Learn how to define “quality. ” Ø Learn about “clinical indicators” to measure quality care. Ø Learn problem-solving and communication skills. Ø Learn to be your own self-care advocate. Download “Making Sure” at http: //nationalqualitycenter. org/index. cfm/6176/13886 Order Copies: info@incarecampaign. org

Self-care and Retention Connect with Partners in+care Click the Partner Tab Ø Learn about retention in HIV care Ø Learn about self-care Ø Link to and learn from others living with HIV/AIDS www. incarecampaign. org

Self-care and Retention Join the Partners in+care Network Ø Email notices and updates about Pi+c and in+care Campaign Ø Provide advice [Pi+c surveys] +Sign up to Be a Partner in Care Visit www. incarecampaign. org – “Partners” Tab – Partners in+care Toolkit

Self-care and Retention Directly Connect through Partners in+care on Facebook Ø Share tips, stories, experiences & resources Ø Community of people living with HIV/AIDS and allies Ø Secure and confidential Ø Join. Send email to incare@National. Quality. Center. org – Facebook in subject line

Visit Web www. incarecampaign. org “Partners” tab Sign up for Pi+c Network www. incarecampaign. org – “Partners” tab Join Facebook Send email to incare@National. Quality. Center. org – “Facebook” in subject line 17 Campaign Headquarters: National Quality Center (NQC) 90 Church Street, 13 th floor New York, NY 10007 Phone 212 -417 -4730