GETTING COCHRANE INTO SCHOOLS Caroline Struthers Cochrane Training

GETTING COCHRANE INTO SCHOOLS Caroline Struthers Cochrane Training Coordinator (e. Learning Development) Anna Noel-Storr, TSC Cochrane Dementia Group Study Manager, ALOIS register of dementia studies

Declaration of interest No commercial conflicts of interest Helping my daughter get into medical school. . . does that count? ! 2

Introduction • Non-experts could do more for Cochrane • Developing engaging tasks • Developing Cochrane skills • Never too early to start training up Cochranites! 3

Background Arthritis Asthma Diabetes Heart ENT Skin Dementia Childbirth ME MS Schizophrenia Depression 4

Task 1: ALOIS coding task Recruitment 5

Task 1: ALOIS coding task 6

Task 1: ALOIS volunteer task Non-experts convert this. . . 7

Task 1: ALOIS coding task Into this. . . 8

The Duke of Edinburgh 9

Jenny’s first record 10

Jenny’s first record 11

ALOIS coding in action I think it will certainly feel like eight hours 12

ALOIS coding in action Why do they it so Itmake will certainly difficult to find feel like eight the information in these papers? hours 13

ALOIS coding in action I see why Cochrane it. If I was a doctor Itdo will certainly I wouldn’t want to feel eight read like this stuff. hours 14

ALOIS coding in action 15

So although she complained. . . 16

Task 2: Trial Blazers 17

Task 2: Trial Blazers 18

What’s the motivation? Wanting to help the researchers “My wife made me do it” Wanting to help Cochrane “Dementia is such a cruel disease, I want to help find new treatments” Wanting to help their career 19

Task 3: Missing data 20

Task 3: Missing data 24 June 2011 20 May 2011. . . I was interested in seeing the results of the bilberry/grape study BBM, and I could not access the data. . . Have the results been published anywhere. . ? . . I did not hear back after writing to Professor Blomhoff last month about the results of the BBM: Bilberry-Memory study. . . it would be great to hear back from one of you about where the results of this trial have been published, . . 21

Task 3: Missing data 27 June 2011 24 June 2011 . . . I look forward to receiving the files. . . Are they being published in a journal, or on a results register anywhere? Our university web pages have been redesigned and all links are not up and running yet. . My Ph. D student is at present in Australia. . . Siv, maybe you could send Caroline the appropriate files. . 22

Task 3: Missing data 28 June 2011 This paper has not been accepted for publication yet, and the data will not be available before publication. I am sorry that I forgot to mention this in my previous email. After publication the data will be freely available. Dear Ms. Struthers: This paper was submitted to the AJCN but was not accepted for publication. Peer Review & Production Support Specialist American Society for Nutrition 23

Task 3: Missing data 28 June 2011 2 November 2011 When do you expect the article to be in press? It looked like the results had been available on the University of Oslo website and that's what really led me to contact you directly. I never received a reply to my question about when the data from this study will be available. If the paper is not accepted for publication, the results should be made available, otherwise any future systematic review will be subject to publication bias. 24

Task 3: Missing data 8 November 2011 21 September 2013 The data will absolutely be published and available, don't worry : ) We have not been able to finish this yet. The first author is at present in Australia. We will work on this. Still no publication 25

Task 4: Trial detectives alois. cochrane. org 26

Task 4: Trial detectives alois. cochrane. org 27

Cochrane Strategy 2020 – does it fit in? Objective Getting Cochrane into the mainstream Has been moved from Goal 3: Advocating for evidence to Goal 2: Making Evidence accessible 28

And finally. . “But Mummy, is that evidence based? ” 29

Acknowledgements and thanks Anna Noel-Storr Jenny and Lisa Milne The Cochrane Dementia Group Sally Bailey, NIHR Lynne Ramsay, Alzheimer’s Society Kit Huckvale, Imperial College and all the ALOIS Community supporters and volunteers past, present, and (of course) future 30