Calvary Palliative and End of Life Care Research

Calvary Palliative and End of Life Care Research Institute Naomi Mc. Gowan National Project Manager, Palliative and End of Life Care

Background • September 2017: Chair appointed • Prof Liz Lobb, Calvary Health Care Kogarah Professor Palliative Care (Allied Health) Adjunct Professor, Faculty of Health, UTS Adjunct Professor, School of Medicine, UND • Reports to National Director Hospitals • 30 th November 2017: Official launch • Website, media release • Assistance from Sam Kelly, Bethlehem (Marketing) • Naomi Mc. Gowan (3 days/week from May 2018)

About the Institute • Connects researchers in the specialist palliative care services at Calvary’s public hospitals - Calvary Health Care Kogarah - Calvary Public Hospital Bruce - Calvary Health Care Bethlehem - Calvary Mater Newcastle • Profiling academic and clinical research leaderships in palliative and end of life care • Collaborating to strengthen the translation of research into practice

Key Strategic Objectives • • • Facilitating broad industry and stakeholder dissemination of palliative and end of life care research led by Calvary researchers or conducted in Calvary facilities Amplifying the influence and use of research being undertaken to key stakeholders and the wider health community Enhancing Calvary's profile specifically in the area of palliative and end of life care research

Research Focus Areas • Symptom management • pain, nausea, breathlessness, delirium • Residential Aged Care • needs rounds, triaging • Progressive Neurological Disorders • Motor Neurone Disease, Huntington’s Disease • Communication • family meetings, ambulance care plans, advance care planning, family conflict

Research Focus Areas cont. • Planning • service delivery, assessment tools • Caregiving • unmet needs, distress, grief, trauma, resilience and growth • Culturally and Linguistically Diverse (CALD) • barriers to access, pain management, information and resources in Chinese languages

Current KPIs • Site engagement • Teleconferences with leads • Site visits • Mentoring • Institute website • www. pallcareresearch. org. au • Annual report • PEo. LC Research Day • 26 th November, Calvary Kogarah

Challenges and Opportunities • Sustainability • funding, engagement of sites and clinicians, coordination/secretariat • Research as a priority in addition to busy clinical load • Translation of research (across Calvary) • Profiling of researchers and facilities • Building collaborations • Sharing ideas & research agendas

Looking Ahead • The development and implementation of an overarching operating model for the Institute • Formalising membership, committee and governance structures • Ongoing administration and marketing functions • Developing a marketing plan and communications strategy