ANNIE DESCOTEAUX Patient as educator Project manager Patient

ANNIE DESCOTEAUX Patient as educator Project manager, Patient Partnership Unit, Faculty of medecine University of Montreal Vice president, Interfacultary Operational Comity on collaborative education and patient partnership

Congenital Nephrotic Syndrome Finnish Type • 0, 01% • • = 1/10 000 in Finland 0, 002 % = 1/ 50 000 oustside Finland +28 surgeries…. . 100 s of hospital stays Change of career…. Stats…

Pénélope Congenital Nephrotic Syndrome, Finnish Type

When the going gets rough Some days… An apple a day….

Hemo setting, not working so far… Much better with new kidney Determination

Snow White Surgery # 11 At 16, ready for another one Surgery # 26 Prior to surgeries…

Having a good laugh! With bigger sister… After kidney transplant

With big sister Mathilde Graduation Some nice moments…

PATIENT AS EDUCATORS Patients’ integration in medical education at University of Montreal

• Patients as educators since 2010 at U of M • Pilot poject with medical students • Quickly expanded to other programs • +200 patients as educators • Patients as educators are offered training and coaching • Involved in medical education, reasearch and Health care facilities Patients as educators at University of Montreal

Academic year 2017 - 2018 Pre-clinique 1 st et 2 nd year 32 patients as educators 76 patients as educators 2 patients as educators 6 patients as educators CSS 1900. Interprof. Collab. CSS 2900 Interprof. Collab. . Course Pluralis m of values APP Growth, Develop. and Aging 300 students / year 30 students / year 1 500 students / year 23 patients 2 patients as 23 patients as 2 patients as educatorss as educators IMC Workshop Profess. en madecine 300 students / year IMC Course Conflict of interests 300 students / year IDC Workshop Power & Lab Coat 300 students / year IDC Course Ethics: End of Life Care 300 students / year

Academic year 2017 - 2018 Externat 3 rd et 4 th year 76 patients as educators CSS 3900 Collab. Interprof. 1 500 students / year 12 patients as educators Workshop #1 Clinical Ethics 300 students / year 12 patients as educators Workshop #2 Clinical Ethics 300 students / year Residence 12 patients as educators Workshop # 1 Narrative Ethics 140 students / year 12 patients as educators Workshop #2 Narrative Ethics 140 students / year 4 patients as educators Workshop #4 Narrative Ethics 140 students / year

3 Courses CSS: Collaboration in health care sciences 32 patients 76 patients 80 patients as as educators CSS 1900. Interprof. Collab. CSS 2900 Interprof. Collab. . CSS 3900 Collab. Interprof. 1 500 students / year • On line modules • Collaborative logbook: Now with patient • Intra program actvity: with patient in CSS 2900 • Inter program activity: Co facilitated by HCP and patients Students from 13 different medical professions: 1. Audiology 2. Denstist 3. Doctor 4. Kinesiologist 5. Nursing 6. Nutritionist 7. Occupational Therapist 8. Optometrist 9. Pharmacy 10. Psychology 11. Physiotherapy 12. Social workers 13. Speech Therapist

Continuum: academic training clinical applications Professionnel development Interprofessional activities in internship 3 rd year: CSS 3900 Production of an interdisciplinary intervention plan Simulation of an interdisciplinary meeting on a patient's case study/conflict resolution © DCPP 2015 Patient as educators Healthcare professional 2 nd year: CSS 2900 Collaborative Leadership and therapeutic education Developing a case study by students /therapeutic education tool 1 st year: CSS 1900 Discovery of interprofessional collaboration in patient partnership Introductory collaborative activity Students 14 Discovery Comité interfacultaire opérationnel (CIO)

12 patients as educators Workshops Clinical Ethics 300 students / year • Develop clinical reasoning and reflexivity • Promote the practice of partnership in care between HCP and patients • Explore the complexity of certain ethical issues • Share and discuss difficulties during Internship Students share difficult situations in Internship and discuss with patient as educators who also share diffucult situations

12 patients as educators • Develop reflexivity • Writing exercice Workshop Narrative Ethics 140 students / year • Short movie clip is viewed • Students and patients as educators share their different perspectives • Compare contrasts emerging from the stories

o Discussion over POWER 23 patients as educators Workshop POWER & Lab Coat 300 students / year o What is power? o Who has power? § Dr? Students? Patients? o Develop students' reflexivity o Different types of power through 5 known movie clips Patients, students and doctors will share clinical situations where they felt they had, or did not have power

Patients as educators activities between 2011 et 2017 8000 60 7000 6961 50 48 6000 5621 40 5156 5000 36 36 4496 4314 4000 30 27 3580 4 500 3000 20 2000 1885 1560 1000 9 9 900 10 9 900 0 0 2011 - 2012 - 2013 - 2014 - 2015 - 2016 - 2017 - 2018 Nombre d’heures d’enseignement en médecine par un patient formateur / étudiant MD Nombre d’étudiants en médecine ayant reçu un enseignement en médecine par un patient formateur Nombre d’étudiants en sciences de la santé (toutes disciplines confondues) ayant reçu un enseignement en médecine par un patient formateur

Conclusion Questions?