Yorkshire and Humber Congenital Heart Disease Network New
Yorkshire and Humber Congenital Heart Disease Network New beginnings – the first 7 months Debra Wheeler General Manager
Yorkshire and Humber Congenital Heart Disease Network So what have we been up to ?
q Lead Clinician Dr Elspeth Brown q General Manager Debra Wheeler q Lead Nurse Jo Quirk q ACHD Specialty Lead Dr Kate English q Admin Assistant Mireia Moriel
D Floor Brotherton Wing Leeds General Infirmary 0113 3926288 debra. wheeler 1@nhs. net
q Visited Local Cardiology Centres q Meetings with PECs and Service Managers q Meeting with NHSE Specialist Commissioning managers q Attended PIC and NIC/ Obstetric Network events
q Baseline questionnaire - Purpose of the Network - What works well ? - What are the challenges ? - Priorities in Year 1 q Self assessment against the standards q Patient and family engagement events to come
q Yorkshire and Humber Congenital Heart Disease Network website q https: //www. networks. nhs. uk/nhsnetworks/yorkshire-and-humbercongenital-cardiac-network q Network Business - Notifications - Agendas and Minutes - Network policies and guidelines - Education q Different from http: //leedscongenitalhearts. com q Work in progress
q What do we really want to achieve in 5 years time ? q How to properly listen and respond to patients and families? q What should the Network Board look like ? q How will we know if we’re successful? q Who are we accountable to ?
Yorkshire and Humber Congenital Heart Disease Network Baseline Questionnaire Themes from the responses
q Strategy development q Providing care locally q Shared guidelines/protocols q Education and Training q Achieving the standards q Improving communication q Doing improvement work q Representing Y+H nationally
q Good working relationships q Regular outreach clinics q 24/7 advice from Leeds q Regular network meetings q Uniform policies and procedures q Effective leadership
q Training and availability of nursing staff in L 3 units q Lack of access to echo q Long clinic waits q Poor communication about what happens to patients in Leeds q Difficulty sharing images q No PEC in some units q LGI PICU capacity q Insufficient trained sonographers q Equipment replacement
q Developing guidelines / SOPs q Education for PECs and nurses q Assessing all units against the national standards q Sharing lessons learned q Train more people to do echo q Review service requirements against population size q Website q Improved communications q Telemedicine
Th • • The end of the beginning Induction Information gathering Making connections Putting down foundations Scoping what needs to be done Re-launching the Network Now for the real work…….
Yorkshire and Humber Congenital Heart Disease Network Thankyou
Yorkshire and Humber Congenital Heart Disease Network Groupwork
Yorkshire and Humber Congenital Heart Disease Network What does an outstanding network look and feel like ?
Yorkshire and Humber Congenital Heart Disease Network What are things we should obsess about as the Yorkshire and Humber CHD Network ?
Yorkshire and Humber Congenital Heart Disease Network How should we engage with our children and families and our adult patients ?
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