What data are collected How and who by
What data are collected? How, and who by? Karen Graham and Barry Plewa
Datasets and Data Collections NCIN - Cancer Data Roadshow Public Health England | 2015
Primary Data Sources PAS Pathology Radiology Cancer Mgt systems E prescribing Radiotherapy Palliative care RCPath Exports / Uploads . CSV HES / Pbr CWT 3 Screening xml . CSV COSD DIDS COSD SACT RTDS Palliative Care 5 CSV Audits
Primary Data Sources PAS Pathology Radiology Cancer Mgt systems E prescribing Radiotherapy Palliative care RCPath Exports / Uploads . CSV HES / Pbr CWT 3 Screening xml . CSV COSD DIDS COSD SACT RTDS Palliative Care 5 CSV Audits
Cancer Waiting Times (CWT) - 2001 Upcoming Changes § Version 9 of the Cancer Waiting Times: A Guide is being updated. § A draft can be viewed on the CWT table <needs to be confirmed> § There will be two new data from March 2016 onwards: § NHS NUMBER STATUS INDICATOR CODE § REFERRAL REQUEST RECEIVED DATE (INTER-PROVIDER TRANSFER). § Data submissions are also set to change from CSV to XML submissions in March 2016. NCIN - Cancer Data Roadshow Public Health England | 2015
Cancer Waiting Times (CWT) - 2001 The quarterly reports can be found: http: //www. england. nhs. uk/statistics/statistical-work-areas/cancer-waiting-times/ Guidance documents can be found: http: //nww. hscic. gov. uk/nhais/cancerwaiting/documentation. Cancer Waiting Times: A Guide — Version 8. 0 National Cancer Waiting Times User Manual - v 6. 1 National Cancer Waiting Times Reports User Manual - Version 1. 0 Further questions and queries E- mail cancer-waits@dh. gsi. gov. uk Phone 01392 251289. NCIN - Cancer Data Roadshow Public Health England | 2015
National Audits Key points § Lung Cancer – Royal College of Physicians in partnership with the National Cancer Registration Service (NCRS) - New contract for 2015 § Colorectal Cancer – Royal College of Surgeons with the Health and Social Care Information Centre (HSCIC) § Head & Neck Cancer - Contract not awarded § Upper GI Cancer - on going contract until 2016 § Prostate Cancer - began 2014 in partnership with NCRS § Breast Cancer - likely to be commissioned in 2015 NCIN - Cancer Data Roadshow Public Health England | 2015
National Lung Cancer Audit (NLCA) - 2015 § New contracts awarded December 2014: From 2015 is now run by the Royal College of Physicians in partnership with NCRS § Will utilise COSD as its primary data source. § Feedback on completeness to trusts May 2015. § Annual Report December 2015. § PROMS/PREMS element in development. www. rcplondon. ac. uk/resources/national-lung-cancer-audit nlca@rcplondon. ac. uk NCIN - Cancer Data Roadshow Public Health England | 2015
National Prostate Cancer Audit (NPCA) - 2014 § New model for cancer audits § Partnership between NCRS and professional bodies § Near real time data collection from MDT’s § Data set largely collected as part of routine flows § NCRS produces linked audit datasets for analysis NCIN - Cancer Data Roadshow Public Health England | 2015
National Prostate Cancer Audit (NPCA) - 2014 NCIN - Cancer Data Roadshow Public Health England | 2015
Diagnostic Imaging Dataset (DIDs) - 2012 § Record-level data from NHS Radiology Information Systems (RIS) relating to diagnostic imaging activity in hospitals in England. § Health and Social Care Information Centre (HSCIC) collect data on a monthly basis. It is linked to Hospital Episodes Statistics for fuller analysis. § NHS users may apply for access to the DID via HSCIC’s i. View reporting tool. Details of this and the collection are at: http: //www. hscic. gov. uk/DID § Results are analysed and published by NHS England in provisional monthly summary reports and a final annual release, at: http: //www. england. nhs. uk/statistics/statistical-work-areas/diagnostic-imagingdataset/ NCIN - Cancer Data Roadshow Public Health England | 2015
Diagnostic Imaging Dataset (DIDs) - 2012 Average period from date of test to date test report issued for Chest Xray, by provider, 2013 -14 Ultrasound activity by number of days from date of test request to date of test, by source of referral, 2013/14 NCIN - Cancer Data Roadshow Public Health England | 2015
Cancer Outcomes & Services Dataset (COSD) - 2013 -15 § Phased Rollout: January 2013 – January 2015 § New Dataset: Incorporating Registration Data § Aligned and Rationalised with Other Cancer Datasets § Core Data Set and Site Specific Items § Intended to Record Key Data from the Entire Patient Pathway § Requires Monthly Submission from Trusts § Recent Implementation of Feedback and Quality Reporting Back to Trusts § RCPath aligning with COSD NCRS - Cancer Data Roadshow Public Health England | 2015
Cancer Outcomes & Services Dataset (COSD) - 2013 -15 NCRS - Cancer Data Roadshow Public Health England | 2015
Cancer Outcomes & Services Dataset (COSD) - 2013 -15 NCRS - Cancer Data Roadshow Public Health England | 2015
Radiotherapy Dataset (RTDS) - 2009 § Previously collected and compiled by National Clinical Analysis and Specialised Applications Team (Nat. Can. Sat) § Data will be collected and compiled by NCRS from April 2016 § For 2015/16 data will be submitted to both Nat. Can. Sat and NCRS § XML schema in development NCRS - Cancer Data Roadshow Public Health England | 2015
Systemic Anti-Cancer Therapy (SACT) - 2012 -14 • Currently collected by the Chemotherapy Intelligence Unit in Oxford (CIU) • http: //www. chemodataset. nhs. uk/ • Kellie Peters will be leaving Public Health England on 25 th March 2015. Martine Bomb (martine. bomb@phe. gov. uk) has been seconded from CR-UK for 6 months for 3 days per week, taking on the SACT programme lead role. NCRS - Cancer Data Roadshow Public Health England | 2015
Systemic Anti-Cancer Therapy (SACT) - 2012 -14 Data completeness by diagnostic group Data completeness Trust Profile Data Quality Trust Profile NCRS - Cancer Data Roadshow Public Health England | 2015
January: Level 1 Report NCRS Reporting Portal NCRS JAN FEB MAR APR MAY JUN JUL AUG SEP OCT NOV DEC NHS Trust COSD / Path JANUARY Data NCRS - Cancer Data Roadshow Public Health England | 2015
January: Level 2 Level 1 Report Level 2 Report NCRS Reporting Portal JAN FEB NCRS Reporting Portal NCRS MAR APR MAY JUN JUL AUG SEP OCT NOV DEC PAS NHS Trust COSD / Path JANUARY Data NCRS - Cancer Data Roadshow Public Health England | 2015
January: Level 3 Level 1 Report NCRS Reporting Portal NCRS Level 2 Report Level 3 Report NCRS Reporting Portal NCRS Process Data JAN FEB MAR APR MAY JUN JUL AUG SEP OCT NOV DEC PAS NHS Trust COSD / Path JANUARY Data NCRS - Cancer Data Roadshow Public Health England | 2015
February Level 1 Report NCRS Reporting Portal NCRS Level 2 Report Level 3 Report NCRS Reporting Portal NCRS Process Data JAN FEB MAR APR MAY JUN JUL AUG SEP OCT NOV DEC PAS NHS Trust COSD / Path FEBRUARY Data NCRS - Cancer Data Roadshow Public Health England | 2015
March Level 1 Report NCRS Reporting Portal NCRS Level 2 Report Level 3 Report NCRS Reporting Portal NCRS Process Data JAN FEB MAR APR MAY JUN JUL AUG SEP OCT NOV DEC PAS NHS Trust COSD / Path MARCH Data NCRS - Cancer Data Roadshow Public Health England | 2015
NCRS Portal NCIN - Cancer Data Roadshow Public Health England | 2015
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