Welcome Wokingham Learning Disability Partnership Board LDPB Roadshow
Welcome … Wokingham Learning Disability Partnership Board LDPB Roadshow - Health 22 nd – 25 th September 2020
LDPB Roadshow - Health Host – Debs Morrison CLASP Wednesday 23 rd September 2020
Meeting Rules • All on mute during the presentation • At the end of each presentation you can ask questions • Please physically raise your hand if you wish to ask a question • Stay on mute until you are asked to unmute • Remember - everyone’s opinions are valued • Thank you!
LDPB Roadshow - Health Gemma White Public Health Wokingham Borough Council
public. health@wokingham. gov. uk
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LDPB Roadshow - Health Shane Venn Sports & Leisure Wokingham Borough Council
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LDPB Roadshow - Health Carol Price LD Community Health Team Berkshire Healthcare (NHS)
Frimley Park and Wexham Park Frimley Park has two Learning Disability Liaison Nurses Wexham Park has one Learning Disability Liaison Nurse They have lots of Easy Read information on their website
HOSPITAL PASSPORTS Hospital Passports are forms that you take with you when you go and stay in hospital. It gives staff important information about you. This information will help staff to care for you in the right way. It is good to keep it somewhere you can ‘grab and go’ if you need to go to hospital in an emergency. Make sure your family and carers know where it is kept. It is important that you keep the information up to date, for example, if your medication changes.
HOSPITAL PASSPORTS Royal Berkshire Hospital has a Passport called Information about me. Unlike some other passports it does not use many pictures. Frimley and Wexham Park Hospitals have a passport called My Care Passport. This passport has pictures and uses the traffic light system. Staff on the wards will accept any type of hospital passport. You can choose what passport you would like to use. If you prefer to use a passport with pictures, MENCAP has one that you can download from their website. This passport also uses the traffic light system. The Hospital Passport will be kept at the end of your bed.
DNR (Do Not Resuscitate) A Do Not Attempt Cardio Pulmonary Resuscitation order is a medical document. They are sometimes called DNCACR, DNAR or DNR. It means that if someone’s heart stops working, the doctors will not try and start it again. Doctors should only put a DNR order on someone’s file if they think they are dying and there is NO chance that they will get better. If doctors think that restarting someone’s heart will NOT make them get better they will create a DNR order. No-one should have a DNR put on their file just because they have a learning disability. You and your family should be included in decisions about DNR orders.
Re. SPECT FORMS Re. SPECT stands for Recommended Summary Plan for Emergency Care and Treatment. It means it is a short plan about what should happen if a person needs emergency care and treatment. Re. SPECT It’s called Re. SPECT for short Re. SPECT plans are made by the patient and healthcare workers working together. They talk about what a patient wants and write this down on a special form. . The Royal Berkshire Hospital uses Re. SPECT forms. The form can be downloaded from their website.
IMPORTANT THINGS TO KNOW ABOUT Re. SPECT FORMS The Re. SPECT form is NOT a legal document. There is a legal form called an Advance Directive or Advance Decision. Both are used in an emergency where you are not able to make decisions or express them. The doctors will take your wishes into account but they MAY NOT be able to agree to them. Nobody can demand to have treatment that the doctors know will not help them to get better.
DAVID’S STORY David can get bad chest infections that can make him very ill Sometimes the chest infections mean that David has to go to hospital to have treatment. David sometimes get so ill that the doctors are concerned that he might not get better. The treatments that David has can cause a lot of pain sometimes. When David is feeling very ill he cannot tell the doctors what he wants to happen. This means that the doctors and nurses don’t always know what David’s wishes are
David decides to always receive treatment, even if this is painful. David had a meeting with his healthcare worker when his health was good. They talked about what treatment he wanted. They filled in a Re. SPECT form. Now when David goes into hospital the doctors know what treatment he wants.
TOM’S STORY Tom had been in bad health for a long time. Tom had problems with his heart. Tom decided did not want to go to hospital for treatment again. Tom decided that if his heart stopped he did not want to have it started again. Tom wrote his wishes down so if he was too unwell to tell anyone they would know what he wanted. Tom’s doctor talked to him about what treatments he wanted.
They wrote down his wishes on a Re. SPECT form. When Tom became ill again his support staff called an ambulance. Tom was too ill to tell them his wishes so they read his Re. SPECT form. The ambulance staff read that Tom did not want to go to hospital and have his heart restarted. They respected his wishes and did not take him to hospital. Tom was at home with people he cared about when he died.
SUMMARY HOSPITAL PASSPORT • Gives important information to the staff at the hospital. • Tells them about your likes and dislikes. • Tells staff how you communicate. • Tells staff about your medical conditions. • Tells staff about your medication. • Take it with you every time you need to go into hospital. • Keep it somewhere it is easy to find. • Make sure your staff and family know where to find it. • Make sure you keep it updated.
SUMMARY DNR (Do Not Resuscitate) • A medical form completed by doctors. • It means that if your heart stops working, the doctors will not try and restart it. • It is to prevent unnecessary suffering for the patient. • You and your family should be involved in the decision making. • The final decision will be made by the doctor(s) treating you. • A DNR order will be used when: a) it will not restart the heart or breathing b) when there is no benefit to the patient c) when the benefits are outweighed by the damage that will be caused
SUMMARY Re. SPECT FORMS • Gives important information to the staff in an emergency if you cannot tell them your wishes. • Helps doctors know what treatment you would like and not like. • It is not a legal document. • You cannot demand treatment if it is not going to help you get better. • Take it with you every time you need to go into hospital. • Keep it somewhere it is easy to find. • Make sure your staff and family know where to find it. • Make sure you keep it updated if your wishes change. Re. SPECT
Some of the pictures used in this presentation are courtesy of http: //www. easyonthei-leeds. nhs. uk/
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LDPB Roadshow - Health Josh Hancock Transition Team Optalis
Optalis Supported Employment Service
What we do? • SES support individuals covered by the disability provision of the Equality Act 2010 with employment education and training. • This includes be people with Learning Disabilities, Autism, Mental Health, and Carer’s. • It also includes Physical Disabilities, Acquired Brain Injury, Long Term Health Conditions, and Substance Issues. • We work very closely with lots of services including Adult Social Care, Mental Health Services, Transition Teams, Colleges and Schools & CLASP. • We are jointly owned by Wokingham Borough Council and RBWM Council.
What have we been doing in lockdown? • Ongoing contact with clients to support understanding with furlough process. • Supporting clients with training, workbooks, interview practice and motivation during lockdown. • Ongoing contact with employers to obtain information about return to work.
Returning to volunteering • A clients volunteering put on hold due to lockdown. • Ongoing contact with employer and client throughout lockdown. • Relevant training courses identified and undertaken by the client to continue his progression. • SES continued to liaise with the employer about return to work dates.
Returning to volunteering • SES supported the client to understand company policy so they could reenter volunteering safely. • SES worked with the employer and client to identify changes that needed to be made to minimize risk of Covid-19. • SES provided job coaching to make sure the client was able to return and feel confident in their role.
Returning to work • Client was furloughed in March • SES had regular updates with the client and employer. • SES supported both employers and clients preparing for a return to work – dates, risks, PPE, changes/company policy, job coaching. • SES agreed job coaching to settle the client into work and ensure they understand
Clients working in lockdown • Some people stayed working during lockdown. • Our clients who worked as key workers still went to work. SES coached these clients in the workplace. • This includes people who work in schools, the NHS, social care and food shops. • We worked closely with employers to make sure our clients understood their own requirements, and could work safely.
What are we doing now? • SES continues to provide face to face appointments for clients wanting to get into work, training and education. • SES is actively working to get people into employment, education, training and volunteering. • SES continues to provide job coaching for clients who need a bit of extra support at work.
What can you do? • Be flexible – the job market is different now to what it was before the pandemic. • This will mean you have to be open to trying new things and taking on new opportunities. • Think about your skills and experience – what transferable skills do you have? • If you are not sure, ask questions.
How to contact us https: //www. optalis. org/ses 0118 977 8600 employmentservice@optalis. org
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Goodbye Thank you for being with us today. Please join us again tomorrow. Presentations and further information will be on the CLASP website. www. wokinghamclasp. org. uk
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