Welcome Social media Learning Disability Voices Black Lives

Welcome Social media #Learning. Disability. Voices #Black. Lives. Matter #Covid. Inequalities Zoom housekeeping Please stay on mute so we can all hear the speakers Use the chat to share ideas or comments Remember we are recording this roundtable

Parenting an autistic child through lockdown: a BAME perspective Reena Anand Parent, Autism Advocate, Parent Governor (Inclusion), Writer, Ombudsman Blog: reenaanand. com Instagram: reenathewriter Facebook: Rewriting the Script by Reena Anand

Parenting an autistic BAME child • Shame • No word that translates to autism • Negative cultural beliefs • Engaging with resources

Impact of Covid-19 • Anger – change – anxiety • Lost • Isolation from family support networks • No sensory support • Reluctance to return to school • Delay in EHCPs and annual reviews

Key message • We need to understand the intersectionality of people – and cater services appropriately with that individual person’s needs and background factored into any care they’re given

Break Do get a drink or just have a break from your screen We are back at 11. 30 am Social media #Learning. Disability. Voices #Black. Lives. Matter #Covid. Inequalities

B ME

Introduction • People with learning difficulties from Black Minority ethnic communities experience simultaneous disadvantage in relation to race, impairment , gender, disabilities etc • Negative stereotypes and attitudes held by service professionals contribute to the disadvantage they face • Learning Difficulties and Ethnicity report –G Mir , W Ahmad, Andrew Nocon

Definitions Race • The protected characteristic of race: a group of people defined by their race, colour, nationality (including citizenship) ethnic or national origins. Racism • The historical and institutional process which leads to minority ethnic people being treated less fairly because of their racial identity. This is attributed to those who have the power to turn prejudicial beliefs into acts of discrimination or unfair treatment at an individual or institutional level. Ethnicity • A group of people who share certain background characteristics e. g. language, geographical origin, customs and history, which provide the group with a distinct identity as seen by themselves and others.

Historical Journey Learning Difficulties and Ethnicity A Framework for Action 2004 Target Audience-Partnership Boards In March 2001 we published Valuing People, a White Paper that set our ideas for improving the lives of people with learning disabilities. At the same time we also published Learning Difficulties and Ethnicity. This was a report that showed that people with learning disabilities and their families from minority ethnic communities are amongst the most disadvantaged groups in our society. Despite often having very high support needs, services are less likely to be offered or taken up. And service providers often don't take into account people's ethnicity, culture or religion so the services that are offered are not appropriate. This is wrong, and the Government wants to help local agencies to change things. Dr. Stephen Ladyman Parliamentary Under Secretary of State for Community

Learning Disabilities Ethnicity Framework 2004 -short summary In putting forward these ideas we start with some key assumptions which we see as important starting points for promoting race equality: • Every person has a culture that is unique to him or her • People from minority ethnic communities are likely to have experienced racism, both direct and indirect • Many people from minority ethnic communities, for understandable reasons, may not know about, be suspicious of, or be unhappy with services. Active steps are needed to build trust with people with learning disabilities, family carers and communities • People from minority ethnic communities should be able to expect access to a choice of services and supports, securely funded that meet their needs • Person centred approaches and planning should be increasingly happening and should take into account a person's ethnicity and cultural heritage

Covid 19 Disproportionate Impact on BAME; Asian and Black people with learning disabilities were more likely die than White people women with learning disabilities. These are challenging times for people with learning disabilities and their families. The report, Deaths of people identified as having learning disabilities with COVID-19 in England in the Spring of 2020 examined data from The English Learning Disabilities Mortality Review (Le. De. R) and NHS England’s COVID-19 Patient Notification System (CPNS) which records deaths in hospital settings. It found 451 per 100, 000 people registered as having a learning disability died with COVID-19 between 21 March and 5 June, a death rate 4. 1 times higher than the general population after adjusting for other factors such as age and sex. •

Key Messages • Developing cultural competency , anti racist practice, organisational awareness and knowledge is crucial in working towards genuine Race Equality and Equity in the planning development and delivery of services including “narrowing the gap” on Inequalities and Inequities. • To promote full and equal access to public services, it is essential to meet the Equality Act 2010 and Accessible Information Standards(AIS) requirements and make reasonable and relevant adjustments for black and minority ethnic individuals who need to access to services • Pro-active shift from a sole focus on “what is the matter? ” to also include an inquiry into “what matters to you? ” Institute for Healthcare Improvement for NHS England Always Events Toolkit page 6

Quality of Access and Inclusion • In order to improve health and wellbeing of people with Learning Disabilities from BME Communities we need to know the local population and the best ways of engaging and supporting people, their access needs and their inclusion pathways ( Person Centred) • We also need to understand the needs and anxieties of people with Learning Disabilities from BME communities as well as the gaps in current access and service provision.

Cultural Competence Cultural competence • Cultural competence occurs when people understand culture, are aware of its impact and act to ensure that the values of all people are respected.

Self Assessment – Which stage are you /organisation at ?

Person Centred • Putting the person at the centre • I statements and Passport • Improvements to my care, health, well being and meeting my cultural, religious and Individual needs

BME Carers recognition-My Story

Improve the health of people with learning difficulties from BME communities: • Improve cultural competence and awareness in hospitals and other health and Well Being settings • Local agencies should make sure they know about the specific health needs of the BME communities in their area • GPs should record ethnicity and access requirements information as a matter of “duty of care”

Best and Good Practice • • • BME LD scoping and mapping of needs Health Needs Assessment and Health Plan Access to and ability to navigate services Involvement (patient/person and carer) in decision-making Knowledge of care plan and pathways Quality of communication and information Support to manage long-term conditions Advocacy that meets the needs of the Individual Language and Translation/Interpretation Measure-Would they recommend the service to family and friends Monitoring, Evaluation and Feedback

Action Planning

Action Planning (continued)

Equity Fairness and Justice

Discussion and Thinking points • What activities are you currently involved in that directly relate to BME LD and Race Equality? • What areas of your role do you think that BME LD has most impact on? • What areas of BME LD within your role do you feel most confident about? • What areas of BME LD within your role do you hope to improve?

Talking about racism in therapy - Why is it so hard? Leanna Ong – Trainee Clinical Psychologist

Who am I?

What is race? “people who come from different places, have different skin colours or have passports from different countries” • Sometimes called ‘ethnicity’ • ‘BAME’ – ‘black, Asian minority ethnic’ • White is a race too!

What is racism? • The belief that one race is better than another • This leads to treating someone differently based on their race • This is illegal • Understanding racism can be difficult and complex • Can be direct – from one person to another • Can be indirect – being treated differently

What is white privilege? - Being treated better because you are white - Not seeing race or racism as a problem - An important part of talking about racism

Racism in UK - History – British empire and slavery - In UK, we may be the ‘ethnic minority’ but we are the global majority Ethnicity in UK - 14% of people in UK is BAME - Direct racism has increased by 41% since Brexit - Worse health outcomes (especially covid-19) White BAME'

Racism and mental health • Experiencing racism is stressful – has bad impact on physical and mental health • Low mood • Anxiety • Trauma

Why this year has made it harder? - Covid-19 - A lot of face-to-face therapy has stopped - BAME people have been treated worse during the pandemic - Black Lives Matter movement - There have been several racist killings by police - (some) white people are becoming more aware of white privilege and racism

Why talk about racism in therapy? • Therapy is a safe space to talk about feelings • Racism negatively impacts people – it hurts their feelings • Current focus – talk about culture not racism in therapy – this needs to change

What is a clinical psychologist? • 88. 2% of Clinical Psychologists are white Clinical Psychologist Ethnicity White BAME'

What did they say? • “People don’t talk about racism in therapy” • “We have very few non-white people coming for therapy” • “People with a learning disability come to therapy for other reasons”

What makes it harder? • “I feel shame as a white person, so might avoid talking about it” • ”We did not talk about it in my training – so I don’t know how” • “I don’t want to bring it up because that might be rude”

What makes it easier? • “My friends and manager help me to talk about this more” • It is never easy but it gets easier • “Having a good relationship in therapy” • ”Learning more about my white privilege and black history”

Summary • It is hard to talk about racism • Many white Clinical Psychologists find it hard to talk about racism • Many white people want to talk about racism, but don’t know how • It is ok to talk about your racism with your therapist • Any questions?

More resources • https: //www. nice. org. uk/guidance/ng 54/resources/mental-health-problemsin-people-with-learning-disabilities-what-care-you-should-expect-easy-readversion-2612226638 • https: //www. unitedresponse. org. uk/resource/easy-news-black-livesmatter/#struggle-for-equality-in-history • https: //assets. publishing. service. gov. uk/government/uploads/system/upload s/attachment_data/file/85012/easy-read. pdf • https: //toolsfortalking. wordpress. com/resources/ • https: //www. merseycare. nhs. uk/media/3695/what-is-a-clinicalpsychologist. pdf

Thank you for listening! • Email me : u 1826622@uel. ac. uk • Twitter: @leannaong 22 • #Learning. Disability. Voices • #Black. Lives. Matter • #Covid. Inequalities