United States Health Information Knowledgebase USHIK Metadata Registry

United States Health Information Knowledgebase (USHIK) Metadata Registry Project Glenn M. Sperle Health Care Financing Administration 410 786 -4610 25 May 2000 Health Level Seven 25 May 2000

Purpose of Briefing l Provide Status of Metadata Registry Project – United States Health Information Knowledge l Review – – – 25 May 2000 Goal Today’s Situation Approach Metadata Registry Overview Some Examples Point of Contact 2

Metadata Registry Project Goal l Build, populate, demonstrate, and make available for general use a metadata registry to assist in cataloging and harmonizing data elements across multi-organizations. l Utilize selected Health Insurance Portability and Accountability Act (HIPAA) data elements for demonstration. 25 May 2000 3

Today’s Situation (i) l HCFA and Do. D have developed the USHIK to demonstrate the use of a metadata registry that: – Focuses on Health Insurance Portability and Accountability Act (HIPAA) data. – Contains data definitions from X 12, HL 7, and NCPDP. – Functions based on ISO/IEC 11179 metadata standard – Utilizes the Australian National Health Information Model (NHIM) high level information model to facilitate grouping of data definitions. l USHIK is available for review at: http: //hmrha. hirs. osd. mil/registry/ 25 May 2000 4

Today’s Situation (ii) l HCFA has offered to support operation of the USHIK by Health Informatics Standards Board (HISB) for one year in order for HISB and Standards Development Organizations to utilize and evaluate metadata registry benefits. 25 May 2000 5

Today’s Situation (iii) l HISB and seven SDOs have accepted HCFA’s offer to utilize the USHIK metadata registry to evaluate metadata registry capabilities – Accredited Standards Committee - Healthcare (X 12 N) – American Dental Association (ADA) – American Society for Testing and Materials Committee E 31 on Healthcare Informatics (ASTM E 31) – Health Industry Business Communications Council (HIBCC) – Health Level (HL 7) – Medical Device Communications Industry Group (IEEE 1073) – National Council for Prescription Drug Programs (NCPDP) 25 May 2000 6

Today’s Situation (iv) l Five additional organizations are interested in providing input or observing – – Center for Disease Control (CDC) Department of Defense, Health Affairs (Do. D HA) National Committee on Vital and Health Statistics (NCVHS) Government Computer-Based Patient Record (G-CPR Joint Department of Defense, Health Affairs (Do. D HA), Department of Veteran Affairs (VA), and Indian Health Service (IHS) Project) – Health Care Financing Administration, End Stage Renal Disease Program (HCFA ESRD) 25 May 2000 7

Approach l Two phase approach – Initial startup to provide access to current SDO data dictionary content and basic metadata registry operations • Load “As-Is” information • Minimize impact on SDO • Map data elements to Australian National Health Information Model (NHIM) – Establish procedures for achieving metadata registry content consistency • • 25 May 2000 Incorporating into SDO operations Versioning of data elements Required metadata and quality metrics Enhance capabilities of metadata registry 8

Metadata Registry Overview Methods of Finding Data Elements • A metadata registry is a place to keep facts about characteristics of data that are necessary to clearly describe, inventory, analyze, and classify data. • A metadata registry supports data sharing with cross-system and cross-organization descriptions of common units of data. Data Elements ABCDEFGH. . • A metadata registry assists users of shared data to have a common understanding of a unit of data’s meaning, representation, and identification. Initiatives Identifying and Definitional Attributes: Data Element ID : 07 -329 -4837. 00000692. v 1 Health Insurance Portability and Accountability Act. . . Data Collections HCFA Long Term Care BRFSS Data Agreements X 12 NCVHS Core Data NCPDP … Birth Date Hair Color Eye Color Sex. . . What data elements are used? Organizations CDC AHCPR NCVHS Models Name : Gender Code Context : X 12 Data Dictionary Definition : Code indicating the sex of the individual Status : Received as of 01/19/1999 Example : Synonyms/Keywords : Comment : Data Collection Methods : Relational and Representational Attributes: Data Type : ID Representational Form : Representational Layout : Minimum Size : 1 Maximum Size : 1 Unit Of Measure : Precision : Minimum Range : Maximum Range : Data Domain: Permissible value Domain Meaning Name Domain Meaning Definition Text A Not Provided B Not Applicable F Female M Male N Non-sexed U Unknown X Unsexable Related Data References: Object Relationship Related Item Type Gender Code is composite part of X 12 Data Dictionary Standards Alternate Names and Contexts: Name Context Gender Code X 12 Data Dictionary 1068 X 12 Data Element Number References to Authoritative Sources NCPDP (National Council for Prescription Drug Program) Data Element X 12 (American Standards Committee) Transaction Set -Data Element -Composite Data Element … Person_Sex Gender Sex_Category Code. . . HL 7 (Health Level Seven) Reference Information Model -Subject Area -Class Where are data elements defined? -Attributes NHIM (Australian National Health Information Model ) Model -Model Subtype -Information Model Subtype -Data Element -Data Concept -Composite Data HL 7 -RIM Do. D HA FAM-D AIHW Data elements are described in common format. 25 May 2000 Codes can be downloaded for use in applications. Element -Derived Data Element 9

Data elements are described in common format. (i) 25 May 2000 10

Data elements are described in common format. (ii) 25 May 2000 11

Data elements are described in common format. (iii) 25 May 2000 12

High Level Information Model Assists in Grouping Data Elements 25 May 2000 13

Data Elements are Linked to Model Views Data Elements 25 May 2000 14

Data Elements Linked by Different Organizations Appear Together X 12 Data Element (0060 -07 -329 -4837 Registration Authority) NCPDP Data Element (0060 -02 -166 -0014 Registration Authority) 25 May 2000 15

Comparison Matrix Aids in Harmonizing Data Elements 25 May 2000 16

Data Element Usage Shows Linkages Between Data Elements 25 May 2000 17

Future l HISB will manage the release of the new USHIK l HCFA will utilize an internalized version of USHIK for managing End Stage Renal Disease and Peer Review Program metadata 25 May 2000 18

Point of Contacts and Example Metadata Registry Sites l Health Care Financing Administration – Bob Mayes Director, Information Systems Group Office of Clinical Standards and Quality Health Care Financing Administration 7500 Security Blvd. , Bldg S 3 -02 -01 Baltimore, MD 21244 -1850 410. 786. 6872 / 410. 786. 8532 Fax rmayes@hcfa. gov l Department of Defense - Health Affairs – Marco Johnson Chief, Operational Architecture Information Management, Technology & Reengineering TRICARE Management Activity Office of Assistant Secretary of Defense ‑ Health Affairs 5111 Leesburg Pike, Suite 810 Falls Church, VA 22041 -3206 703. 681. 5611 / 703. 681. 8845 Fax marco. johnson@tma. osd. mil http: //www. hirs. osd. mil/hdp/index. html l National Health Information Knowledgebase (NHIK) from Australian Institute of Health and Welfare (AIHW) – l l http: //www. aihw. gov. au Environmental Data Registry (EDR) from the U. S. Environmental Protection Agency (EPA) – http: //www. epa. gov/edr United States Health Information Knowledgebase (USHIK) on Do. D Health Information Service (HIRS) – http: //hmrha. hirs. osd. mil/registry/ 25 May 2000 19

USHIK - HL 7 Information Model 25 May 2000 20