TRUST RESPECT SESSION 1 RESEARCH PROJECT SUPPORT COSTS

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TRUST RESPECT SESSION 1: RESEARCH PROJECT SUPPORT COSTS & INTEGRATION ACROSS RESOURCES Vision for

TRUST RESPECT SESSION 1: RESEARCH PROJECT SUPPORT COSTS & INTEGRATION ACROSS RESOURCES Vision for the NFRI partnership & comprehensive “NFRI TOOLKIT” Educational materials RPSCs & tools to incorporate RPSCs into policy and practice Maryrose Franko, Cindy Hope Dave Kennedy, Maryrose Franko Patrick Clark, Heather Moore Diane Bovenkamp, Nancy Lewis, Charles Greer

RESPECT TRUST GUIDELINES Use chat box for suggestions, comments, and questions Use Yes/No (participants

RESPECT TRUST GUIDELINES Use chat box for suggestions, comments, and questions Use Yes/No (participants screen) Save discussion to the end If time, raise hands to be unmuted Attend as many sessions as possible (you must register) If you can’t attend the Wrap Up at 4: 00 PM ET enter ideas in any chat or email [email protected] RA. org • Sessions will be recorded and posted • All materials available on NFRI website on www. Health. RA. org • • •

I WANT TO NFRI TOOLKIT I AM A… KNOW ABOUT… RPSCs RFAs Budgeting When

I WANT TO NFRI TOOLKIT I AM A… KNOW ABOUT… RPSCs RFAs Budgeting When and who to call Research Institution Funder Researcher Guida Menus VIDEOS ” nce s r e g docum pa 1 “ T What else? EMPLA ents TES Reference Links Patient Access to an invention Financial Reporting s ar n i b e W Royalty Sharing

EDUCATIONAL RESOURCES Webinar for Funders:

EDUCATIONAL RESOURCES Webinar for Funders:

FAQ’s About Funders General: • What is the difference between a Private Foundation, a

FAQ’s About Funders General: • What is the difference between a Private Foundation, a Public Charity, and other types of philanthropic organizations? • Does the IRS categorization impact how decisions are made among the various types of philanthropic organizations? • How and by whom is the decision made with respect to details of support for research? This includes level of funding, type of funding, and support of indirect costs. IDC: • How does this decision-making process affect the policies with respect to Indirect Costs? • Can you give other examples of why support for Indirect Costs or F&A would not be included?

Reporting: FAQ’s About Funders • What are some examples of challenges funders face in

Reporting: FAQ’s About Funders • What are some examples of challenges funders face in communicating with faculty and other representatives from universities and research institutions on programmatic and administrative matters? • How and with whom do you follow-up when there are late financial and progress reports or other administrative issues? IT/Tech Transfer: • Do funders require royalty sharing in situations where licensing revenue results from an invention arising from your funding? • How is a fair share calculated, what is the timing and limit of sharing? • How do funders view strategies for ensuring patient access to medical or health-related innovation resulting from their funding?

Research Institutions: Are these fields useful? # Fields Nonprofit Funders: % Compliance Would you

Research Institutions: Are these fields useful? # Fields Nonprofit Funders: % Compliance Would you complete? (Link to profile and HRA send update reminder)

TRUST RESPECT SESSION 4: WRAP UP &NEXT STEPS • What should the Comprehensive NFRI

TRUST RESPECT SESSION 4: WRAP UP &NEXT STEPS • What should the Comprehensive NFRI Toolkit “look like”? • Do we need to create new task areas? (Toolkit group, Marketing group, Policy group, etc) • What is needed to capture and disseminate successes and identify areas where further work is needed? • How can we bring attention to new topic areas that need to be addressed? • How can we work together to mitigate the effects of COVID -19 on research?