The National Retinoblastoma Strategy Optimizing Canadian Retinoblastoma Care
The National Retinoblastoma Strategy: Optimizing Canadian Retinoblastoma Care • We seek to achieve the best possible care for Canadian retinoblastoma children and families. • NRBS members include families affected with retinoblastoma, ophthalmologists, oncologists, social works, geneticists, nurses and laboratory scientists. • NRBS members come from all across Canada.
NRBS Membership Geography • • • British Columbia Alberta Saskatchewan Ontario Quebec Nova Scotia Expertise • • Parents Grandparents Patients Ophthalmologists Nurses Oncology Social Work Genetics
NATIONAL RETINOBLASTOMA STRATEGY CO-CHAIRS Brenda Gallie & Peggy Gronsdahl GUIDELINE DEVELOPMENT September 2007 PROJECT COORDINATORS Lucy Fuccillo & Nataly Weizblit INTRODUCTION REFERAL AND RETINOBLAOMA CENTRES SCREENING & DIAGNOSIS GENETICS TREATMENT FOLLOW-UP PSYCHOSOCIAL & ACCESS TO CARE ORGANIZATION OF CARE FUTURE CARE & RESEARCH ADVOCACY CONCLUSIONS SECTION COMMITTEES LEAD WRITER (LW) LW LW LW Writers (W) W W W W W Reviewers (R) R R R R R ADVISORS Cynthia Lank, Hugh Taylor, Patricia Baird, Emily Chew, Linn Murphree EDITORIAL COMMITTEE Rob Downie (Lead), Brenda Gallie, Cynthia Lank, Peggy Gronsdahl, Nataly Weizblit, Helen Chan Sarah Johnson FUNDERS/SUPPORTERS Canadian Ophthalmological Society Childhood Cancer Foundation, Candlelighters Canada Canadian Retinoblastoma Society
NATIONAL RETINOBLASTOMA STRATEGY Guideline Development PROJECT CO-CHAIRS Brenda Gallie & Peggy Gronsdahl PROJECT COORDINATORS Lucy Fuccillo & Nataly Weizblit GENETICS LEAD WRITER Brenda Gallie FUNDERS/SUPPORTERS Canadian Ophthalmological Society Childhood Cancer Foundation, Candlelighters Canada Canadian Retinoblastoma Society WRITERS Jane Green, Johane Robitaille, Kirk Vandezande, Francois Bernier REVIEWERS Lorne Clarke, Mary Connolly-Wilson, Jeanne Mc. Kay, Katherine Paton, Joanne Sutherland EDITORIAL COMMITTEE Rob Downie (Lead), Brenda Gallie, Cynthia Lank, Peggy Gronsdahl, Nataly Weizblit, Helen Chan, Sarah Johnson ADVISORS Cynthia Lank, Hugh Taylor, Patricia Baird, Emily Chew, Linn Murphree
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Referral Algorithm
Grade Level
AGREE Instrument • A generic tool designed to help guideline developers and users assess the methodological quality of clinical practice guidelines (CPGs) • Divided into 6 domains
AGREE Domains 1. 2. 3. 4. 5. 6. Scope & purpose Stakeholder involvement Rigour of development Clarity & presentation Applicability Editorial independence
Standard Operating Procedure (SOP) • Objective • Scope • Applicability • Clinical Significance • Specifications • Procedure • Documentation • Analysis • Quality Control • Consequences • Linked SOPs • References
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