Statistics for Health An overview Deborah Raven Knowledge

Statistics for Health An overview Deborah Raven, Knowledge Manager, DSAS June 2019

What we will cover today: a quick tour … • Why me? • Sources • Data • Statistics • Indicators • Diabetes • Keeping up-to-date 2

First of all Data Coordination Board • A sub-group of the Digital Delivery Board • Delegated authority from So. S for publication under section 250 • Main governance route through which data and standards requirements are to be agreed and priorities assigned, across the entire health and social care system and all ALBs • Driver of burden reduction (current estimate £ 426 m) • History – from Committee for Regulating Information Requirements (CRIR) in 1987, through ISB and SCCI, and ROCR and BAAS – all now under one umbrella • Data Standards Assurance Service (DSAS) supports DCB – we publish • Standards and collections • An alphabetical list of all current Data Coordination Board (DCB) and Information Standards Board (ISB) standards and collections. 3

Main organisations DHSC NHS Digital Public Health England NHS Improvement NICE ADASS but also: • HQIP • Office for National Statistics • Royal Colleges • Charities 4

Administrative Sources DCB Standards and collections • An alphabetical list of all current approved national standards and collections. • Examples • Commissioning Data Sets (Inpatient and Outpatient Activity) (HES) • Cancer Outcomes and Services Data Set • Emergency Care Data Set • Maternity Services Data Set • Mental Health Services Data Set • GP data collections • National Diabetes Audit … etc • Our known gaps • PHE • clinical audits (HQIP) • finance and performance monitoring of “overhead” resources • Out of scope • ad hoc surveys by, e. g. RCGP, RCN, charities • patient surveys

Statistics (processed data) • National and official statistics - starting point – gov. uk • https: //www. gov. uk/search/research-andstatistics? parent=&keywords=&level_one_taxon=8124 ead 8 -8 ebc-4 faf-88 addd 5 cbcc 92 ba 8&level_two_taxon=&content_store_document_type=published_statistics&public _timestamp%5 Bfrom%5 D=&public_timestamp%5 Bto%5 D=&order=updated-newest • List of all national statistics - https: //www. statisticsauthority. gov. uk/osr/list-of-nationalstatistics/ • NHS Digital - https: //digital. nhs. uk/data-and-information/find-data-and-publications/statementof-administrative-sources/a-z-of-nhs-digital-official-and-national-statistics-publications • NHS England - https: //www. england. nhs. uk/statistics/12 -months-statistics-calendar/ • GSS - https: //gss. civilservice. gov. uk/user-facing-pages/health-and-care-statistics/hc-statisticslandscape/ • ONS - https: //www. ons. gov. uk/peoplepopulationandcommunity/healthandsocialcare • HQIP - https: //www. hqip. org. uk/resources/#. XQp. Jbzbf. OUk

Data (source and processed data) • Government - https: //data. gov. uk/ - access to health data published at a government/ALB level • NHS England - https: //data. england. nhs. uk/ • Public Health England • https: //www. gov. uk/guidance/phe-data-and-analysis-tools • https: //fingertips. phe. org. uk/ • UK Data Service - https: //www. ukdataservice. ac. uk/get-data/themes/health. aspx • GP Data Hub - https: //digital. nhs. uk/data-and-information/data-tools-and-services/data-services/general-practice-data-hub • NHS BSA (prescription and dental data) - https: //www. nhsbsa. nhs. uk/information-services • Expert commentary on data, for example - https: //www. kingsfund. org. uk/blog/2019/06/new-trend-elective-hip-surgery • House of Commons – constituency data - https: //commonslibrary. parliament. uk/category/local-data-socialpolicy/local-data-health/ • Staff survey - https: //www. nhsstaffsurveys. com/Page/1032/FAQs/ • Health Foundation – monthly comment - https: //www. health. org. uk/news-and-comment/featured-content/chart-of-the-month

Indicators - 1 • NHS Outcomes Framework • https: //digital. nhs. uk/data-and-information/publications/clinical-indicators/nhs-outcomesframework/current • https: //app. powerbi. com/view? r=ey. Jr. Ijoi. Yz. U 0 Nzhh. M 2 Yt. NWQx. Ni 00 MDVj. LTll. Zjkt. Nz. Q 1 YWIx. Nz. U z. NTU 5 Iiwid. CI 6 Ij. Uw. Zj. Yw. Nz. Fm. LWJi. Zm. Ut. NDAx. YS 04 ODAz. LTY 3 Mzc 0 OGU 2 Mjll. Mi. Is. Im. Mi. Ojh 9 • Public Health Outcomes Framework • https: //fingertips. phe. org. uk/profile/public-health-outcomes-framework • PHE Fingertips • https: //publichealthmatters. blog. gov. uk/2019/06/04/whats-new-in-the-june-2019 -local-healthupdate/ • PHE Local Health • http: //www. localhealth. org. uk/#v=map 15; l=en • CCG Outcomes Indicator Set • https: //digital. nhs. uk/data-and-information/publications/clinical-indicators/ccg-outcomesindicator-set/current

Indicators - 2 • Quality and Outcomes Framework • https: //qof. digital. nhs. uk/ • Adult Social Care Outcomes Framework • https: //digital. nhs. uk/data-and-information/publications/clinical-indicators/adultsocial-care-outcomes-framework-ascof/current • NHS Digital Clinical Indicators, for example • https: //digital. nhs. uk/data-and-information/publications/clinical-indicators/sevenday-services/current • CQUIN • https: //www. england. nhs. uk/nhs-standard-contract/cquin-19 -20/ • For example: Three High Impact Actions to Prevent Hospital Falls; Community Placed PICC Lines Secured Using a Secur. Acath Device

Diabetes - 1 • National Diabetes Audit and Diabetes Prevention Programme (NDADPP) pilot study • National Diabetes Foot Care Audit • National Diabetes Inpatient Audit • National Diabetes In-patient Audit - Harms • National Diabetes Transition Audit • National Paediatric Diabetes Audit • National Pregnancy in Diabetes Audit • Diabetic Eye Screening Data Set • NHS Health Checks 10

Diabetes - 2 Statistics • NHS Digital - https: //digital. nhs. uk/data-and-information/publications/statistical/national-diabetesaudit/report-1 -care-processes-and-treatment-targets-2017 -18 -full-report • HQIP - https: //www. hqip. org. uk/resource/national-diabetes-audit-core-report-1 -care-processes-andtreatment-targets/#. XQp. KZTbf. OUk • Diabetes UK - https: //www. diabetes. org. uk/Professionals/Resources/National-Diabetes-Audit • Prescribing - https: //digital. nhs. uk/data-and-information/publications/statistical/prescribing-fordiabetes/2007 -08 ---2017 -18 Other data / indicators • NHSOF - Unplanned hospitalisation for asthma, diabetes and epilepsy in under 19 s • https: //digital. nhs. uk/data-and-information/publications/clinical-indicators/nhs-outcomesframework/current/domain-2 -enhancing-quality-of-life-for-people-with-long-term-conditions-nof/2 -3 -iiunplanned-hospitalisation-for-asthma-diabetes-and-epilepsy-in-under-19 s • PHE – expenditure - https: //www. gov. uk/government/publications/diabetes-outcomes-versusexpenditure-dove-in-local-populations 11

Diabetes - 3 • ONS https: //www. ons. gov. uk/peoplepopulationandcommunity/birthsdeathsandmarriages/deaths/adhocs/009869 numberofs uicideswheretype 1 diabetesmellituswasalsomentionedonthedeathcertificatedeathsregisteredinenglandandwales 2001 t o 2017 • PHE - https: //fingertips. phe. org. uk/profile/diabetes-ft/data#page/0 • WHO - www. euro. who. int/en/health-topics/noncommunicable-diseases/diabetes/data-and-statistics • Health Survey (self reported data) - https: //digital. nhs. uk/data-and-information/publications/statistical/health-surveyfor-england/2017 • Diabetes UK – headline data - https: //www. diabetes. org. uk/resources-s 3/201902/1362 B_Facts%20 and%20 stats%20 Update%20 Jan%202019_LOW%20 RES_EXTERNAL. pdf • NHS - Behind the Headlines - https: //www. nhs. uk/news/diabetes/no-proof-walnuts-prevent-diabetes/ 12

Other examples Mental Health https: //www. gov. uk/guidance/mental-health-data-and-analysis-a-guide-for-healthprofessionals https: //www. mentalhealth. org. uk/statistics Sepsis - https: //www. sos-insights. co. uk/ International – World Health Organization, Regional Office for Europe, http: //www. euro. who. int/en/data-and-evidence WHO, https: //www. who. int/news-room/fact-sheets/detail/obesity-and-overweight Canada, https: //www. cihi. ca/en/access-data-and-reports 13

Keeping up to date • gov. uk - https: //www. gov. uk/health-and-social-care • ONS - https: //www. ons. gov. uk/peoplepopulationandcommunity/healthandsocialcare sign up for email alerts • NHS Digital – guide for journalists https: //digital. nhs. uk/binaries/content/assets/legacy/pdf/5/2/80477_nhsdigitial_guide_f or_journos-2017_electronic_final. pdf • Make friends – informatics staff who oversee submission of data and receive it back; clinical coders who know everything there is to know about terminologies and classifications (if you need an ICD code for searching for example) • Press, for example - https: //www. theguardian. com/data • BBC, for example - https: //www. bbc. co. uk/news/health-48600926 - was based on press release for: https: //www. england. nhs. uk/statistics/statistical-work-areas/cancer-waitingtimes/monthly-prov-cwt/2019 -20 -monthly-provider-cancer-waiting-timesstatistics/provider-based-cancer-waiting-times-for-april-2019 -provisional/

Questions Happy to help at any time! deborah. raven@nhs. net 15