SHARON BESSELL RESEARCH METHODS POGO 8196 sharon bessellanu

SHARON BESSELL RESEARCH METHODS POGO 8196 sharon. bessell@anu. edu. au ETHICS AND RESEARCH

Ethics ‘clearance’ versus ethical practice Getting Ethics Clearance Ethical practice, which includes developing an ethics protocol and seeking feedback and approval

The ANU Research Office Information and advice on the ethics approval process Human Research Ethics Committee Considers ethics protocols For more information: http: //www. anu. edu. au/ro/ORI/Human/human_index. php First time users of ARIES must attend a one hour training course – held every Tuesday

Principles of Ethical Research embodied in the National Statement • Research merit and integrity • Justice • Beneficence • Respect

Principles of Ethical Research embodied in the National Statement These ethical guidelines are not simply a set of rules. Their application should not be mechanical. It always requires, from each individual, deliberation on the values and principles, exercise of judgement, and an appreciation of context.

RESEARCH DESIGN DATA COLLECTION ANALYSIS WRITING UP

RESEARCH DESIGN WHAT DO WE WANT TO KNOW? RESEARCH QUESTION(S)! WHO WILL THE PARTICIPANTS BE? RECRUITMENT CONSENT HOW WILL WE ASK? METHODS

RESEARCH DESIGN WHAT ARE THE POTENTIAL BENEFITS AND RISKS OF THE RESEARCH? BIG PICTURE BENEFITS AND RISKS TO PARTICIPANTS BENEFITS AND RISKS TO US (THE RESERACHER)

WHAT RISKS MIGHT BE ASSOCIATED WITH YOUR RESEARCH? HOW MIGHT YOU MINIMISE THEM?

DATA COLLECTION TREATING PEOPLE WITH DIGNITY RESEARCH OBJECTS RESEARCH SUBJECTS PARTICIPANTS

“I WILL OBTAIN CONSENT” “I WILL SEEK INFORMED CONSENT”

INFORMED CONSENT Informed dissent Does the participant understand? Research aims Research topics Research methods and processes NO What the data will Source: Judith Ennew, be used for Knowing Children, http: //www. knowingchildren. org/ That it is possible to withdraw from the research at any time

CHILDREN AND INFORMED CONSENT Do not use other adults to get informed consent from children ‘Seek’ not ‘get’ Source: Judith Ennew, Knowing Children, http: //www. knowingchildren. org/ Ask me, not my father

WHEN MIGHT WRITTEN CONSENT BE UNETHICAL? WHAT WOULD YOU NEED TO DO TO GET CONSENT IF WRITTEN CONSENT IS UNETHICAL?

CATEGORIES OF PERSONAL INFORMATION IDENTIFIED Individuals can be identified (ie: through, name, organisation, address) POTENTIALLY IDENTIFIABLE Identifiers are removed and replaced by a code – but people can be re-identified DE-IDENTIFIED Individuals cannot be identified (ie: anonymous surveys; identifiers are permanently removed)

WHAT IS THE DIFFERENCE BETWEEN CONFIDENTIALITY AND ANONYMITY? WHEN CAN YOU OFFER ANONYMITY? WHEN CAN YOU OFFER CONFIDENTIALITY?

ARE MY METHODS APPROPRIATE? WILL MY METHODS MAKE PARTICIPANTS UNCOMFORTABLE? DO MY METHODS MINIMISE THE POSSIBLITY OF RISK OR HARM TO PARTICIPANTS?

ACCURACY OBJECTIVITY, AVOIDING BIAS RIGOUR

WRITING UP REMEMBER WHAT YOU TOLD ME? Source: Judith Ennew, Knowing Children, http: //www. knowingchildren. org/