SeventhDay Adventist Project RAISING AWARENESS OF ORGAN DONATION

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Seventh-Day Adventist Project RAISING AWARENESS OF ORGAN DONATION AND ACHIEVING ENGAGEMENT By Sharon Platt-Mc.

Seventh-Day Adventist Project RAISING AWARENESS OF ORGAN DONATION AND ACHIEVING ENGAGEMENT By Sharon Platt-Mc. Donald MSC, RHV, RM, RGN © Sharon Platt-Mc. Donald

THE GIFT OF LIFE • Organ transplantation has brought about a revolution in the

THE GIFT OF LIFE • Organ transplantation has brought about a revolution in the treatment of diseases such as end-stage kidney, heart, and liver failure. • Organs will have a better life expectancy coming from its own ethnic group. • Disseminating more widely information on the cultural risk factors for kidney disease raises awareness and equips then to make better health choices which will positively impact their life. © Sharon Platt-Mc. Donald

SDA CHURCH ENGAGEMENT • 2007 - Member of Organ Taskforce working group as a

SDA CHURCH ENGAGEMENT • 2007 - Member of Organ Taskforce working group as a representative for the Adventist church in the British Isles • Communiqué to 300+ health ministry leaders and health professionals in our churches across the British Isles • Involved our organisational presidents, executive officers, leaders and pastors to participate in evaluation of faith related Organ Donation leaflets • Liaison with our church departments e. g. Health, Communications, Youth, Education, Women Ministries, Men Ministries, Community Services, Pastoral and outreach ministries to involve them in the project © Sharon Platt-Mc. Donald

SDA CHURCH ENGAGEMENT • Speaker at community events on raising awareness re Organ Donation

SDA CHURCH ENGAGEMENT • Speaker at community events on raising awareness re Organ Donation • Reported all Organ Taskforce meetings I attended in National journals and church magazines / publications to raise awareness that this was an important issue – readership 32, 000 members • Write up community events in national newspaper e. g. The Voice, re: our church input in this key area • Involved pastors and church members in focus groups meeting on National Gifting project © Sharon Platt-Mc. Donald

PROJECT HIGHLIGHTS SINCE 2010 • 2010 - Focus groups : Luton, West London, Leeds

PROJECT HIGHLIGHTS SINCE 2010 • 2010 - Focus groups : Luton, West London, Leeds and Leicester • 2010 – Video production raising awareness re Organ donation. Featured in the US on the Adventist News Network • 2011 - Hope Channel Adventist TV – View. Point Programme on Organ Donation panel discussion. Also featured on Revelation TV (Sept 2011) • National Posters • National Leaflet - NHSBT Organ Donation project • Health Promotion leaflet on the prevention of Kidney disease Black & Asian communities © Sharon Platt-Mc. Donald

Adventist Led Presentations • • • Sonia Clarke Swaby - Recipient Kidney / Pancreas

Adventist Led Presentations • • • Sonia Clarke Swaby - Recipient Kidney / Pancreas Transplant Coordinator – Guys & St Thomas’ Hospital NHS Foundation Trust Mary Seacole Award – Exploring the understanding and cultural beliefs surrounding Black African Caribbean and Asian population affected with Kidney Disease in Lambeth, Southwark and Lewisham An Awareness Event - 30 th May 2010 for black African Caribbean and Asians Kings College Hospital Organ Donation Committee - 6 th September 2011 Guyanese Nursing Association - 12 th September 2011 NHSBT Organ Donation Campaign Kings College Hospital – Black History event 11 th October 11 Live interview KISAMT radio - 26 th October 2011 BBC radio London - 6 th November 2011 Ongoing events raising awareness of organ donation in the BME community © Sharon Platt-Mc. Donald

INFORMATION • • • Much stereotypical ideas and prejudices are due to lack of

INFORMATION • • • Much stereotypical ideas and prejudices are due to lack of information Find out what people know Find out what people don’t know - then inform them Use the published resources e. g. NHS UK Transplant which identifies specific faith groups and their beliefs and practice around organ donation We need to share information on what faith groups believe in order to foster better understanding of cultural norms We need to disseminate more widely information on the cultural risk factors for kidney disease © Sharon Platt-Mc. Donald

BUILDING TRUST “The people whose lives you touch may forget what you said, but

BUILDING TRUST “The people whose lives you touch may forget what you said, but they will never forget how you made them feel. ” — David B. Haight, • Inform the faith community of the importance of their involvement in shaping the awareness of organ donation in their community and faith group • Use specific faith / culturally targeted resources e. g. NHS UK Transplant leaflets • Include reports / testimonials of organ recipients or donors from BME background • Involve faith leaders in decision making so they feel included in the process • Invite people of faith to join the debate so their views are represented © Sharon Platt-Mc. Donald

BEFRIENDING • Become acquainted with the beliefs / views of diverse faith groups •

BEFRIENDING • Become acquainted with the beliefs / views of diverse faith groups • Attend their community events and show interest in their way of life • Find out what is important to them • Ask them what they feel would be helpful in reaching people from their faith or ethnic background • Involve individuals who they respect or leaders in their community to help champion the message © Sharon Platt-Mc. Donald

ACHIEVING ENGAGEMENT “Everyone is trying to accomplish something big, not realizing that life is

ACHIEVING ENGAGEMENT “Everyone is trying to accomplish something big, not realizing that life is made up of little things” Frank A Clarke • Find out what people want to know • It’s easy to assume that people know where to find relevant information or have knowledge about what is available. • Make people feel that their contribution is important • Identify barriers and address them • Work with faith and community leaders so that this becomes their project which they engage in, not something they observe from the sidelines • Offer people choices – this opens up perspective and very often they make the better choice. • Keep the goal of achieving more donors as an end point but bring people along with you on the journey to the destination. © Sharon Platt-Mc. Donald