Selena Blake Senior Commissioning Manager TYA Programme Manager

Selena Blake – Senior Commissioning Manager / TYA Programme Manager South West Specialised Commissioning Group Improving Outcomes Guidance (IOG) South West Implementation Update South West Specialised Commissioning Group

Improving Outcomes Guidance l l l NICE CYPIOG August 2005 > an IOG defined by age Improve clinical outcomes and experience of young people AND their families Safe and effective services as locally as possible, NOT local services as safely as possible PTCs providing sustainable services with clearly defined staffing Shared care with defined agreed responsibility Care delivered by tumour specific Multidisciplinary Teams (MDTs) Skilled, professional key workers identified to coordinate care; provide information; assess needs < 19 yrs at PTC and > 19 yrs to have unhindered access Offered clinical trials, treatment and care via agreed protocols and pathways Registration of cancer in 15 – 24 yr olds Implementation by December 2010 South West Specialised Commissioning Group

South West Specialised Commissioning Group

What has been achieved so far? (1) l l l l Stakeholder event > Implementation Summary 30 th September 2008 to NCAT with proposed model of PTC in Bristol and up to 8 Shared Care Centres > HOSC briefing and agreement Project Implementation Plan > reviewed quarterly Cancer Networks > Children and Young People’s Site Specific Group which includes TYA A UH Bristol TYA Advisory Group and more recently a TYA Project Steering Group which report to the Trust Executive > PTC plans and business case development Appointment of a TYA MDT Co-ordinator at UH Bristol (Trust funded) Appointment of a TYA Lead Nurse in UH Bristol (TCT funded) Appointment of a p/t TYA Clinical Lead at UH Bristol (Trust funded) South West Specialised Commissioning Group

What has been achieved so far? (2) l l l l Investment for 09/10 onwards to appoint up to four f/t Shared Care Clinical Liaison posts across the South West (PCT funded) Commissioner investment towards sessions for Psychological Support for TYA (PCT funded) A TYA MDa. T to support the treatment of patients across the South West, including a pilot collaboration with external partners to enable a secure virtual platform via which to hold the MDa. T Identified site specific ‘tumour champions’ UH Bristol > TYA MDa. T £ 15 k non-clinical research grant to research and audit the benefit of the virtual online platform in facilitating teams; building relationships and improving patient outcomes > future PCT investment Funding for developing systems at PTC to report all TYA with cancer, 15 to 24 years > 1 st January 2009 (TYAC funded) Teenage Cancer Trust South West fundraising campaign launched South West Specialised Commissioning Group

What has been achieved so far? (3) l l l l UH Bristol Oncology Unit ‘Refresh Project’ - enhancements of identified facilities for TYAs (TCT funded) Computer internet access and printer in the Cancer Support Centre at UH Bristol for patients and their families > internet access for all TYA with cancer when receiving treatment in hospital (TCT funded) A South West wide User Involvement Group (UIG) of cancer network reps > development of a web site to support patients and families in developing a virtual network which can engage and involve TYA (Cancer Network funded) Data Group to look at patient flows and pathways > UH Bristol Development and circulation of Shared Care proforma > up to 6 possible Shared Care Centres across South West agreed SW SCG taking lead on CTYA Supranetwork Group > PTC and shared care mechanism for sharing practice and expertise National project in progress around supporting patient choice South West Specialised Commissioning Group

South West Specialised Commissioning Group

Next Steps (1) l l l PTC and Shared Care partnership planning event > sharing plans and identifying common issues > agreeing way forward Scoping and planning for future designation of Shared Care Centres with PTC Workforce gap analysis and planning > future investment Discussions and appointment of Clinical Liaison posts Roll out of virtual online platform across South West > evaluation and audit > Staff training Further development of TYA MDa. T SOPS in liaison with Shared Care Centres > TYA MDa. T to include ALL South West patients South West Specialised Commissioning Group

Next Steps (2) l l Development of clearly defined patient pathways via PTC and Shared Care Centres > Choice project Identify ‘TYA Champions’ for each tumour site across South West > network of clinical expertise Further development of South West wide web site Development / Appointment of Family Support Network and Activity Co-ordinator posts South West Specialised Commissioning Group

South West Specialised Commissioning Group