Review from Stockholm meeting by Martin Fransson September
Review from Stockholm meeting by Martin Fransson September 28 -29, 2008 BBMRI WP 5 team meeting, de. CODE, Reykjavik, Iceland
Decisions: WP 5 WBS underlined items first draft in Reykjavik D 5. 1: Inventory of standard related issues, including stakeholder coordination. (mo 12) Leader: Martin Fransson D 5. 1. 1: Document on WP 5 -team presentations (Martin Fransson) D 5. 1. 2: Questionnaire to expert groups (using P 3 G) (Martin Fransson) i) Create questionnaires D 5. 1. 9: Final document (Martin Fransson) September 28 -29, 2008 Stockholm Review BBMRI WP 5 team meeting, de. CODE, Reykjavik, Iceland
Decisions: WP 5 WBS cont’d underlined items first draft in Reykjavik D 5. 2: Strategy for unique and secure identities for specimens, subjects and biobanks. (mo 18) Leader: Andy Harris D 5. 2. 1: Suggested Standards paper (Hans Hillege & Luciano Milanesi) - identities of organizations using ISO-standards i) First draft already done ii) Comments from WP 5 -team D 5. 2. 9: Final document (Andy Harris) September 28 -29, 2008 Stockholm Review BBMRI WP 5 team meeting, de. CODE, Reykjavik, Iceland
Decisions: WP 5 WBS cont’d underlined items first draft in Reykjavik D 5. 3: Strategy for communication between biobanks including a common nomenclature (data models/schema and coding systems/ontologies), compatible software techniques and appropriate information transmission policies. (mo 20) Leader: Louis Rechaussat (Luciano Milanesi) D 5. 3. 1: HL 7 -model – use of existing data structures for our needs (Fernando López & Pedro Roiz & Andy Harris) D 5. 3. 2: HL 7 -model and other models for genomics and proteomics and patient data (Luciano Milanesi & Juha Muilu & Maria Krestyaninova) D 5. 3. 3: HL 7 -model for genotype data (Paul Flicek & Luciano Milanesi) D 5. 3. 9: Final document September 28 -29, 2008 Stockholm Review BBMRI WP 5 team meeting, de. CODE, Reykjavik, Iceland
Decisions: WP 5 WBS cont’d underlined items first draft in Reykjavik D 5. 4: Requirements for a general information management system for European biobanks. (mo 22) Leader: Johann Eder D 5. 4. 1: Defining meta-data for disease-oriented biobanks, breastcancer case (Johann Eder) D 5. 4. 2: Other use-case scenarios on meta-data, involve WP 2 -3 (Hans Hillege) D 5. 4. 3: Kinds of meta-data, what is interesting to know? HQL (Hákon Gudbjartsson) D 5. 4. 4: Link to WP 4 -methodologies (Álvaro Martínez) D 5. 4. 5: Population-based use-case scenarios (Hákon Gudbjartsson) D 5. 4. 9: Final document September 28 -29, 2008 Stockholm Review BBMRI WP 5 team meeting, de. CODE, Reykjavik, Iceland
Decisions: WP 5 WBS cont’d underlined items first draft in Reykjavik D 5. 5: Strategy for a federated hub and spoke structure for European Biobanking using deliverables from above. (mo 24) Leader: Juha Muilu D 5. 5. 1: Use-case in the context of ENGAGE (population-based biobanks) (Juha Muilu) D 5. 5. 2: Leading use-case scenario in the context of hub and spoke (Johann Eder) D 5. 5. 9: Final document September 28 -29, 2008 Stockholm Review BBMRI WP 5 team meeting, de. CODE, Reykjavik, Iceland
Decisions: WP 5 WBS cont’d D 5. 6: Final report (mo 24) Leader: Martin Fransson September 28 -29, 2008 Stockholm Review BBMRI WP 5 team meeting, de. CODE, Reykjavik, Iceland
Decisions: Other Subject: Scope of preparatory phase Actions: Team should focus on meta-data issues Main responsible: All Subject: Organization of work within deliverables Actions: Team members working on the same sub-deliverable should collaborate Main responsible: Leaders of deliverables Subject: Final decision for next meeting Actions: Check availability on September 28 -29 (half Sunday and Monday), 2008, de. CODE genetics, Iceland Main responsible: All September 28 -29, 2008 Stockholm Review BBMRI WP 5 team meeting, de. CODE, Reykjavik, Iceland
Unresolved issues: Subject: Construction of pilot within time frame for preparatory phase. If and when to begin. Paper-based pilot or real implementation. September 28 -29, 2008 Stockholm Review BBMRI WP 5 team meeting, de. CODE, Reykjavik, Iceland
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