REGISTRIES AND HIE BSN HTM 520 Jennifer Cavallaro

REGISTRIES AND HIE BSN HTM 520 Jennifer Cavallaro RN,

What is a Registry and how does it fit with H Ø Ø Ø Database of Patient Information Track specific Diseases Determine clinical effectiveness Monitors Safety/Harm Measures Quality of Care

Immunization Registry Benefits Ø Vaccine management & accountability Ø Monitor outbreaks & respond Ø Generate client reminders Ø Reduce vaccine preventable disease Ø Lower healthcare costs

Meaningful Use and Standards Stage I – Capability to Submit to Registry Ø Stage II – Ongoing submission of Data Ø 7 L H SN SOA OM P U X V WH O CD C ED LOINC

Future Trends Barriers Need for Common Language Ø Lack of National Stands Ø Poor quality of data submitted Ø Preventing missed opportunities Ø Improving emergency response capabilities Ø Improving patient outcomes Ø

Takeaways Registries collect and manage patient information about specific diseases Ø Part of Meaningful Use stages I & II Ø Standard oriented Ø Technical & human challenges Ø Important role in the future of healthcare Ø Improve outcomes & lower costs Ø

� � � � � References Centers for disease control and prevention. (2012). http: //www. cdc. gov/vaccines/programs/iis/about. html#exchange Computerized disease registries. (2013). Retrieved from http: //healthit. ahrq. gov/knowledge- library/keytopics/computerized-disease-registries Gliklich, R. , & Dreyer, N. (Eds. ). (2010). Data collection and quality assurance. Registries for evaluating patient outcomes: A user’s guide (2 nd ed. ). Rockville (MD): Agency for Healthcare Research and Quality (US). HL 7 Version 2. 5. 1, Implementation guide for immunization messaging. (2012). Retrieved 9/7/2013, from http: //www. cdc. gov/vaccines/programs/iis/technical- guidance/downloads/hl 7 guide-1 -4 -2012 -08. pdf International standards for clinical trial registries. (2012). Retrieved Sept. 9, 2013, from http: //apps. who. int/iris/bitstream/10665/76705/1/9789241504294_eng. pdf Larsson, S. , Lawyer, P. , Garellick, G. , Lindahl, B. , & Lundström, M. (2012). Use of 13 disease registries in 5 countries demonstrates the potential to use outcome data to improve healthcare's value. Health Affairs, 31(1), 220 -7. Retrieved from http: //ezproxy. nu. edu/login? url=http: //search. proquest. com/docview/916577711? accountid=25320 Medicare & Medicaid EHR incentive program, Meaningful use stage 1 requirements overview. (2010). Retrieved from http: //www. cms. gov/Regulations-and. Guidance/Legislation/EHRIncentive. Programs/downloads/MU_Stage 1_Req. Overview. pdf Request for Comment (RFC). (2013). Retrieved from http: //www. healthit. gov/sites/default/files/hitpc_stage 3_rfc_final. pdf Summary: ASTHO immunization registries summit. (2010). Retrieved from http: //www. astho. org/Programs/Immunization-Registries-Summit-Summary/ The medicare and medicaid electronic health record (EHR) incentive programs: Stage 2 toolkit. (2013). Retrieved from http: //www. cms. gov/Regulations-and. Guidance/Legislation/EHRIncentive. Programs/Downloads/Stage 2_Toolkit_EHR_0313. pdf