Psychosocial Resources Tanica R Jeffries MS LPC LSW

Psychosocial Resources Tanica R. Jeffries, MS, LPC, LSW Comprehensive Sickle Cell Disease and Thalassemia Program ………………. . …………………………………………………………………. .

Disclosures • There are no financial interests, affiliations or conflicts of interest with organizations and/or material discussed in this presentation. • The Comprehensive Sickle Cell Disease and Thalassemia Program receives grant funding through the Ohio Department of Health for Hemoglobinopathy Education and Newborn Screening follow-up services. …………………………………………………………………. .

Objectives • Describe ideas for partnerships • Identify psychosocial resources • Discuss educational opportunities and events • Identify opportunities for community based support ………………. . …………………………………………………………………. .

Our Staff • • • • Anthony Villella, MD………………………. Medical Director Susan Creary, MD…………………………. Hematologist Tanica Jeffries, MS, LPC, LSW…………………Project Director Laura Adkins, RN……………………. . . . Nurse Clinician Tina Andrews, RN……………………. . . Nurse Clinician Carla Hughes, APRN………………. . . . Nurse Practitioner La’Keisha Simmons, APRN………………. . . Nurse Practitioner Jennifer Young, APRN……………………. . Nurse Practitioner Kathleen Lemanek, Ph. D……………. . . Pediatric Psychologist Sandra Steiner, MSW, LISW-S……………. Clinical Social Worker Ismahan Adan, BS…………………. . . Newborn Screening Coordinator Kristin Zajo, MS………………………. Genetic Counselor Ancillary Staff ………………. . …………………………………………………………………. .

Partnerships • External: Business/Professional • Internal: Cross and Multi Disciplinary • Community Based ………………. . …………………………………………………………………. .

External Partnerships 1. Six grant funded programs in the State of Ohio 2. Community/Provider education 3. Newborn Screening Follow-up 4. County Health Departments ………………. . …………………………………………………………………. .

External Partnerships 1. Diversity Leadership Council 2. Community Partners Recruit and retain minority and rare blood donors while educating the community about sickle cell disease. …………………………………………………………………. .

External Partnerships 1. Family Support Initiative 2. Community Events 3. SCDAA 4. Advocacy Days/Legislators ………………. . …………………………………………………………………. .

External Partnerships 1. Transition Program 2. NCH/OSU Hemoglobin Disease Management Consortium ………………. . …………………………………………………………………. .

Internal Partnerships Cross and Multidisciplinary • Hematology/Oncology/BMT Division • Clinical Social Work Department *************************** • • • Cardiology Dental Emergency Room Eye Clinic Pulmonary/Pulmonolgy ………………. . …………………………………………………………………. .

Psychosocial Resources • Ohio Department of Job and Family Services • Family Medical Leave Act (FMLA) • Food and Furniture Banks • Students with Disabilities, Scholarships and Peer Support ………………. . …………………………………………………………………. .

Special Programs Educational Opportunities • National Sickle Cell Disease Awareness Month • Minority Health Month • Holiday Events • Transition Workshop ………………. . …………………………………………………………………. .

Community Based Support for those Impacted by SCD • Churches/Places of Worship • Schools – Daycare setting through College • Employers • Foundations – i. e. Faith Thomas Foundation • Support Groups ………………. . …………………………………………………………………. .