POSTFRACTURE CARE Capture the Fracture Global Partnership An

POST-FRACTURE CARE Capture the Fracture Global Partnership An IOF initiative, supported by Amgen and UCB in collaboration with the University of Oxford

Expected Re-fractures Number of fracture patients Hips, spines, others Number of Patient assessments DXA & Laboratory Treatment recommendations Monitoring assessments Staffing Administration Database =COSTS Avoided fractures Outcomes FLS IMPACT Fractures Admissions Theatre time Bed days Hospital costs Rehabilitation Care home =BENEFITS

Updated National demographic data

Recent National FLS data

It’s a big Health Economic problem Why? Treatments are safe and effective Preventing avoidable fractures makes patient, clinical and economic sense

Would we accept 80% failure of secondary Prevention after heart attack? Health care systems want a solution for Secondary Fracture Prevention

75 National Societies and Organizations endorsed the IOF Global Patient Charter

National Professional societies

ABOUT US: IOF The largest NGO dedicated to osteoporosis and musculoskeletal diseases Member societies covering 83% of the total world population representing 6 billion people Global presence: Headquarter in Europe, 3 regional offices in Latin America, Asia Pacific and Middle East and Africa Founded in 1998 NGO, non-profit organization.

Our Community: CSA & CNS 159 IOF APAC [PERCENTAGE ] IOF MEA 4% of the world’s leading experts in the committee of scientific advisors (CSA) IOF North America 18% IOF Latin America 5% 250 IOF APAC [PERCENTAGE ] IOF North America 4% IOF MEA 10% IOF Europe 55% CNS, committee of national societies; CSA, committee of scientific advisors; IOF, International Osteoporosis Foundation. IOF Europe 54% IOF Latin America 16%

CAPTURE THE FRACTURE® • A global flagship programme by the International Osteoporosis Foundation (IOF) • Launched in 2012 • Mission: facilitating the implementation of FLS to prevent secondary fractures

Prof. Cyrus C. Cooper President, IOF University of Southampton Medical School, UK Prof. Nick Harvey Chair, CSA University of Southampton Medical School, UK Prof. Kassim Javaid Co-chair, CTF Oxford University, UK Prof. Serge Ferrari Co-Chair, Ctf Geneva University Hospital, Switzerland CTF STEERING COMMITTEE MEMBERS Prof. Thierry Thomas University Hospital of St-Etienne, France Prof. Willem Lems VU University medical centre, The Netherlands Prof. Stefan Goemaere Ghent University Hospital, Belgium Dr. Paul Mitchell Synthesis Medical Ltd, New Zealand Prof. Kristina Åkesson Malmo Skåne Hospital, Sweden

KEY AIMS Be the global voice Drive national/international policy Ensure quality Provide support for FLS implementation, getting started & improving & sustaining

Range of tools/ support 2016 – 2018: 6 FLS workshops Mentorship programme § Endorsed by 89 global societies § > 8880 signatures Global Patient Charter FLS Budget Best Practice Framework Impact Calculator Webinars (Educational programme) 2015 -2018 : 27 webinars § BPF in 11 languages § BPF questionnaire in 8 languages FLS Implementation Tools Slide kits Toolkit International FLS implementation toolkit

Opción 1 394 FLS, 46 countries, 6 continents FLS in Europe = 195 FLS in N. America = 38 FLS in MENA region = 9 FLS in S. America = 55 FLS in APAC + S. Africa = 97 November 25, 2019

Opción 2 394 FLS, 46 countries, 6 continents FLS in Europe = 195 FLS in APAC + S. Africa = 97 FLS in S. America = 55 FLS in N. America = 38 FLS in MENA region = 9 November 25, 2019

Growth of the FLS Network Total number of FLS 400 350 300 250 200 150 100 50 0 2013 2014 All regions 2015 APAC 2016 EU 2017 LATAM 2018 MENA July 2019 NA

What will we do differently?

5 Pillars

Opción 1 5 Pillars Policy Coalition Mentorship Calculator Database

Opción 2 5 Pillars

MENTORSHIP Vision How What Share and learn with other FLSs Every country has a community of expert FLS mentors Point of contact for Policy Rapidly expand the capacity for mentoring Support Quality Improvement Develop a legacy of FLS champions “Conocimiento de experiencias exitosas“ “Knowledge of successful experiences”

Training schedule • Fick off meeting • Webinar 1 - identification 2 - investigation 3 – treatment 4 - monitoring 5 - recap • Face to face • Post-training support

Mentorship MENTORSHIP

Resources: Professional resources • FLS training • Budget impact calculator • Business case • Quality improvement tools

Resources: Patient support • Patient information • Leaflets • Online support • Animation • National Patient group

Training the mentors DATABASE Getting started & sustainable IOF Budget Impact Calculator Prioritise FLS Re-assure payer that expected benefits will be achieved National Policy Advocacy Local Getting funded Efficiency of FLS Efficient delivery care pathway Quality improvement

Deliver a framework to support FLS development from policy development to FLS sustainability: Training the mentors International FLS mentors Ct. F Mentor Knowledge Skills Competence Performance in supporting initiation and sustainable effective, efficient FLSs with good patient experience.

Deliver a framework to support FLS development from policy development to FLS sustainability: Training the mentors International FLS mentors Ct. F Mentor Knowledge Ct. F Mentor FLS Epidemiology Rationale –policy, clinical, patient Effective FLS IOF Best Practice Framework Getting Mapped Budget Impact Calculator Models of FLS Patient Pathway Stakeholder maps FLS Database Barriers and opportunities

Deliver a framework to support FLS development from policy development to FLS sustainability: Training the mentors International FLS mentors Ct. F Mentor Knowledge Ct. F Mentor FLS Service Improve ment Quality improvement Role of patient Interprofessional collaboration Design Thinking Plan Do Study Act SMART outcomes Types of Measure Measuring change Coaching Mentoring

Deliver a framework to support FLS development from policy development to FLS sustainability: Training the mentors International FLS mentors Ct. F Mentor Knowledge Ct. F Mentor FLS Service Improve Mentoring ment Measuring outcomes Needs Assessment Learning objectives Instructional Design Scaffolding Cognitive dissonance Chair vs. facilitator

What are key learning objectives for the workshop for attendees What are your key learning objectives for the workshop

Achieving your aim Too much For you? For your team? For your patients? Now Zone of comfort Incremental & transformative goals Focus: Clearly identify what you do not need to do Watchful: spot potential critical areas early and tackle

Deliver a framework to support FLS development from policy development to FLS sustainability: Objectives 4 Activities Training the mentors National Policy Advocacy Getting Funded Locally Getting started & sustainable

Pre- meeting survey results