Physician Education in Developmental Disabilities Webinar Series April

Physician Education in Developmental Disabilities Webinar Series April 19 th, 2013 Matthew Holder, MD, MBA President-Elect American Academy of Developmental Medicine and Dentistry

AADMD �A national not-for-profit formed in 2002. �Mission: To improve the quality of healthcare for people with neurodevelopmental disorders and intellectual disabilities. �Membership: mainly physicians and dentists from around the united states who devote a significant portion of their practice to people with IDD.

CAN Project �A national survey of medical and dental schools and residency programs in 2005. (Funded by CDC and Special Olympics) � 81% of medical students had no formal training or experience in caring for adults with IDD � 50% of dental students had no formal training or experience in caring for adults with IDD � 90% of medical residency programs offered no training in caring for adults with IDD � 90 -100% of deans and residency program directors were interested in training, if somebody else developed the curriculum.

NCIDM Project �Joint venture between the AADMD (funded by Walmart Foundation), North Carolina MAHEC office (funded by the NCDDC) and the Family Medicine Education Consortium (residency programs in the Northeast US). �Purpose was to develop a nationally vetted, standard curriculum that could be adapted by medical schools and residency programs to teach learners how to care for people with IDD.

NCIDM Project �Project took 2 years and over $300, 000 to complete. Involved over 30 expert advisors from around the country and 4 international advisor who had completed similar projects. Vetted through AADMD, MAHEC, FMEC, AUCD, AAIDD, Special Olympics, IASSID and others. �Developed 114 curriculum goals and objects, divided into three learning tiers. Compatible with the ACGME (Accreditation Council for Graduate Medical Education) core competencies. http: //aadmd. org/page/interactivereport

NCIDM Project �Multiple residency programs around the country will be piloting this curriculum. Known programs are in CA, IL, OH, MA, DC, NC, KY, NJ. �Beginning in 2013.

PEDD Project �Became acquainted with FDDC PEDD project last year. �Purpose of the first year of the project is to develop 12 webinars aimed at family physicians based on the NCIDM curriculum goals and objectives. �Webinar series began on July 24 th, 2012 and ended October 9 th, 2012.

PEDD Project Process � Sought support from IDD-focused agencies around Florida. Received widespread support from: � � � Florida Academy of Family Physicians, Florida Pediatric society University of Florida Institute for Child Health Policy Florida State University College of Medicine Department of Family Medicine Florida Health and Transition Services University of Miami Miller College of Medicine Depts. of Med-Peds and Family Medicine University of Miami Miller College of Medicine Department of Child Adolescent Psychiatry Mailman Center for Autism and Related Disabilities, Miami Center for Autism and Related Disabilities, USF Special Olympics Florida Center for Inclusive Communities at University of South Florida Self-Advocate Alliance

PEDD Project Process �Developed core team of coordinators: �Matthew Holder, PI �Nila Benito, project coordinator �Tanyika Wan, bookkeeper �John Hood, webmaster

PEDD Project Process �Developed core team of advisors and held a face-toface planning meeting: �Jean Sherman, Ed. D, RN, John Reiss, Ph. D, Janet Hess, MPH, Tad Fisher, Matthew Holder, MD, MBA, Elizabeth Perkins, Ph. D, RNMH, Laurie Woodard, MD, John Satterwhite, Sandra Sroka, Dan Van Durme, MD, Stephanie Brown, MD, Sue Kabot, Ed. D, CCC-SLP, Irene Jurcyzk, David Wood, MD, Wil Blechman, MD, Nila Benito, and Holly Hohmeister.

PEDD Project Process �Held quarterly advisory and planning committee meetings. �Established webinar series curriculum, including learning goals and objectives. �Published article about the project in the Florida Journal of Family Medicine

PEDD Project Process �Developed a speakers bureau: �Elizabeth Perkins, Laurie Woodard, Seth Keller, Curt Stine, Jean Sherman, Carole Zangari, Alice Pomidor, John Satterwhite, Linda Edwards, Deb Dreyfus, Nila Benito, Steve Ruedrich, David Wood, Janet Hess, Carl Tyler, Charm Thometz, Jeff Okamoto, Matt Holder, Tom Curry

PEDD Project Process � Established the following presentation schedule: � � � July 24 th: July 31 st: Aug. 7 th: Aug. 14 th: Aug. 21 st: Aug. 28 th: Sep. 4 th: Sep. 11 th: Sep. 18 th: Sep. 25 th: Oct. 2 nd: Oct. 9 th: History and Terminology The Common Characteristics of Neurodevelopmental Disorders Communication (Patient, Parent/Caregiver and Inter-professional) Responsiveness, Respect, Self-Determination and Consent The Patient Support System Assembling Accurate Clinical Information (Part 1) Assembling Accurate Clinical Information (Part 2) Optimizing Well-being Transitions from Pediatric to Adult Care Identifying Quality Resources and Improving Practice Quality Behavior and Medication Management Healthcare Financing

PEDD Project Process �Developed focus group of physicians who are not experts in the DD field: � Dick Schrot, Charles Vega, Suzanne Harrison, Jose Rodriguez, Jon Applebaum, Paul Dassow, Leslie Griffin, Niharika Suchak, Michael Shephard

PEDD Project Process �Each webinar presentation was reviewed by focus group members prior to the live webinar. �Learners asked to fill out a satisfaction survey and must complete a short quiz in order to receive CME credit for participation. �Learners are able to participate and receive CME credit free of charge. This includes viewing the recorded sessions for the next two years.

PEDD Project Process �Webinars were marketed via: the AADMD, the organizations that wrote letters of support, including the FAFP and Florida Pediatric Society. Also the Florida chapter of the ACP and the Florida Medical Society and through local county medical societies. �Each webinar is accredited by the American Academy of Family Physicians. �Each webinar was presented live and will be archived for 2 years on the AADMD website where learners will be able to get CME credit for participation.

Live Event Registration Data �Total Registrants – 495 for live events, 265 for recoded event �Total US Registrants – 483 (39 states including Florida) �International Includes – Australia, Canada, Great Britain, Mexico, Myanmar, Philippines �Total Florida Registrants – 74 �Total Physicians -142 �Total Residents – 8 �Total Students – 12 �Total NP – 39 �Total Other – 294 (Professors, Case Managers, Psychologists, CEOs, Directors, Nurses, DSPs, Dieticians, etc. )

Live Event Registrations by Geography Non-US Non-FL, US Florida

Live Event Registrations by Occupation Physicians Residents Students NPs Other

Satisfaction Surveys The program met my expectations and learning needs. Very Positive Neutral Negative Very Negative

Satisfaction Surveys The information was presented at an appropriate learning level for this stage in my career. Very Positive Neutral Negative Very Negative

Satisfaction Surveys The program format was effective. Very Positive Neutral Negative Very Negative

Satisfaction Surveys The program will allow me to provide better care to adult patients with intellectual and developmental disabilities. Very Positive Neutral Negative Very Negative

Satisfaction Surveys I learned skills and concepts that will help me be more effective and strategic in my work. Very Positive Neutral Negative Very Negative

Satisfaction Surveys The program provided me with new ideas or resources. Very Positive Neutral Negative Very Negative

Satisfaction Surveys I would recommend this program to a colleague. Very Positive Neutral Negative Very Negative

Additional Data � Total composite survey score 4. 2 / 5. 0 � Total number of archive views 615 � Total number of certificates awarded 634 � Total number of certificate system users 265 � Total Project Personnel 49 � 17 Advisors � 19 Speakers � 9 Reviewers � 4 Staff � Additional National Impact – AAIDD, NADD, AUCD, NASDDDS, Special Olympics North America, CDC, State DD Councils, ANCOR, Res. Care, Mentor Network, and more!

The National NCIDM Agenda � 12 -hour primary care webinar series (October, 2012) � 9 -hour emergency/hospital care webinar series (December, 2012) � 9 -hour webinar series on dementia and DD (May, 2013) � Developmental Medicine Textbook (to be published in 2013) � Piloting of curriculum in residency programs (2013 and 2014) � 8 -10 programs outside of Florida � 2 programs (tentatively) in Florida (FDDC, phase 2) � Coordinating another $300, 000 in grant dollars to pilot the curriculum

Thank You �Matthew Holder, MD MBA � mattholder@aadmd. org � 602 -625 -3805

Expanding Curriculum for Healthcare Professionals Allen Wong, DDS, Ed. D, DABSCD Professor, Dental Practice Director AEGD Program and Hospital Dentistry Pacific Dugoni School of Dentistry 2155 Webster Street SF, CA 94115 awong@pacific. edu

Advancing the Curriculum Agenda Pre- and Postdoctoral Dental Education Compared to Practice Patterns in Special Care Dentistry –Journal of Dental Education Dec 2012 Paul Subar, D. D. S. , Ed. D. ; Elisa M. Cha vez, D. D. S. ; Jeffrey Miles, Ph. D. ; Allen Wong, D. D. S. , Ed. D. ; Paul Glassman, D. D. S. , M. A. , M. B. A. ; Eugene La. Barre, D. M. D. , M. S.

�Review Findings of Article

Education beyond Dental School �Continuing Education at meetings Dental and Medical �Study groups �Hospital and Community Inservices, Allied Health… �Student groups … AADMD Student Clubs �Webinars �Others…… �Collaboration EX: UCSF Update on Developmental Disabilities

Creating a Curriculum �Tell them what they need to know �Tell them why they need to know it �Help them become your agents of education

Collaboration with Pharmacy School �Review of a Project AADMD and Pacific School of Pharmacy �Medication Chart to Pass out…(for Attendees of Session)

Medical School Perceptions � Results of interesting data of recent informal survey �Michael Suh ‘ 14 ICS Project, mentee

Questions? �Thank you… �Matthew Holder, MD, MBA ( mattholder@aol. com) �Allen Wong, DDS, Ed. D, DABSCD ( awong@pacific. edu)