Palliative Care Matters Initiative 1 2 3 4

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Palliative Care Matters Initiative 1. 2. 3. 4. Ipsos Survey Consensus Development Conference Consensus

Palliative Care Matters Initiative 1. 2. 3. 4. Ipsos Survey Consensus Development Conference Consensus Statement Conference Board of Canada Report

Palliative Care Matters • Covenant Health is facilitating the project through the Palliative Institute

Palliative Care Matters • Covenant Health is facilitating the project through the Palliative Institute • Conference Co-Chairs: – Karen Macmillan, Executive lead for Palliative Care, Covenant Health – Fred Horne, Consultant & former Alberta Health Minister 2

Palliative Care Matters Phase 1: Talking with Canadians – Ipsos Poll - Focus Groups

Palliative Care Matters Phase 1: Talking with Canadians – Ipsos Poll - Focus Groups and Online Survey Phase 2: Consensus Development Conference – Lay Panel hears the evidence Phase 3: Report with Actionable Recommendations – Conference Board of Canada 3

Turning Point • Canadians have told the Palliative Care Matters that it is time

Turning Point • Canadians have told the Palliative Care Matters that it is time for meaningful change • The Steering Committee and Canadian Reference Working Group, representing 14 key organizations, heard their call to action 5

Public Engagement • If you want to fix the health care system – ask

Public Engagement • If you want to fix the health care system – ask the patient • Members of the public were meaningfully engaged throughout the planning and execution of the conference • As experts, the lay panel heard evidence and independently wrote the recommendations 6

What’s in a Name? • Palliative care is an approach that improves the quality

What’s in a Name? • Palliative care is an approach that improves the quality of life of patients and their families facing the problems associated with life-threatening illness • Prevention and relief of suffering by means of early identification and impeccable assessment and treatment of pain and other problems, physical, psychological and spiritual • It should be provided early in the patients trajectory and can be provided alongside care intended to increase the length of life 7

A Strong Foundation • The Canadian Reference Working Group evaluated recommendations arising from the

A Strong Foundation • The Canadian Reference Working Group evaluated recommendations arising from the last 20 years of national consultation • The CRWG priorized six questions they felt were actionable and would have the greatest impact on the care received by dying Canadians 8

Why Six Questions? • 19 national reports completed over the past two decades resulted

Why Six Questions? • 19 national reports completed over the past two decades resulted in 192 recommendations • A thorough review of the evidence would not be possible with more than six questions • Government and stakeholders more likely to focus on fewer recommendations 9

Evidence Based Practice • Both the academic and gray literature were systematically searched to

Evidence Based Practice • Both the academic and gray literature were systematically searched to answer the 6 questions • Ipsos survey complemented the literature search with the opinions of Canadians • Lay panel provided rich interpretation of evidence through lens of their expertise and experience 10

Experience and Discernment • Lay panel represented a broad range of participants with diverse

Experience and Discernment • Lay panel represented a broad range of participants with diverse skills and connections to palliative care • Unprecedented opportunity for intense reflection, dialogue, discernment, and exploration of academic research and lived experience • Expert facilitation and support provided 11

Expert Panel • A distinguished panel of 8 academics were chosen on the basis

Expert Panel • A distinguished panel of 8 academics were chosen on the basis of their expertise in each of the subjects • They supported the work of the lay panel through detailed reports, plain language summaries and answering questions 12

Together, Stronger • 14 stakeholder organizations worked together and their perspectives were integrated with

Together, Stronger • 14 stakeholder organizations worked together and their perspectives were integrated with the feedback of Canadians they serve • The stakeholders are optimistic about the future impact of the Consensus statement. • Working together acknowledges and addresses barriers, facilitates change 13

Together, Stronger • Implementation of recommendations requires everyone to work together - governments, stakeholders,

Together, Stronger • Implementation of recommendations requires everyone to work together - governments, stakeholders, communities and the public • Recommendations represent the views of all Canadians • Aging population living with more complex conditions means greater need for access to quality palliative care 14

Patient Centered • Recommendations reflect the views of patients, their families and others caring

Patient Centered • Recommendations reflect the views of patients, their families and others caring for dying Canadians • Recommendations are not limited to medicine and the health care system • Recommendations seek a robust approach addressing the psychological, medical, sociological, spiritual needs of all involved 15

Palliative Approach • Palliative care is everyone’s business, not just the palliative care doctor

Palliative Approach • Palliative care is everyone’s business, not just the palliative care doctor or nurse, but also the heart specialist, the family doctor and the community nurse • Palliative care is provided everywhere • Palliative care is needed throughout the patient’s trajectory, beginning with life-limiting diagnosis 16

Now What? • The Conference Board of Canada is writing a report, providing context

Now What? • The Conference Board of Canada is writing a report, providing context and language to make the recommendations actionable • Communities and individuals continue to advocate for better palliative care, through social media, politics and direct stakeholder engagement 17

www. Palliative. Care. Matters. ca

www. Palliative. Care. Matters. ca