Palliative Care Matters Initiative 1 2 3 4
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Palliative Care Matters Initiative 1. 2. 3. 4. Ipsos Survey Consensus Development Conference Consensus Statement Conference Board of Canada Report
Palliative Care Matters • Covenant Health is facilitating the project through the Palliative Institute • Conference Co-Chairs: – Karen Macmillan, Executive lead for Palliative Care, Covenant Health – Fred Horne, Consultant & former Alberta Health Minister 2
Palliative Care Matters Phase 1: Talking with Canadians – Ipsos Poll - Focus Groups and Online Survey Phase 2: Consensus Development Conference – Lay Panel hears the evidence Phase 3: Report with Actionable Recommendations – Conference Board of Canada 3
Turning Point • Canadians have told the Palliative Care Matters that it is time for meaningful change • The Steering Committee and Canadian Reference Working Group, representing 14 key organizations, heard their call to action 5
Public Engagement • If you want to fix the health care system – ask the patient • Members of the public were meaningfully engaged throughout the planning and execution of the conference • As experts, the lay panel heard evidence and independently wrote the recommendations 6
What’s in a Name? • Palliative care is an approach that improves the quality of life of patients and their families facing the problems associated with life-threatening illness • Prevention and relief of suffering by means of early identification and impeccable assessment and treatment of pain and other problems, physical, psychological and spiritual • It should be provided early in the patients trajectory and can be provided alongside care intended to increase the length of life 7
A Strong Foundation • The Canadian Reference Working Group evaluated recommendations arising from the last 20 years of national consultation • The CRWG priorized six questions they felt were actionable and would have the greatest impact on the care received by dying Canadians 8
Why Six Questions? • 19 national reports completed over the past two decades resulted in 192 recommendations • A thorough review of the evidence would not be possible with more than six questions • Government and stakeholders more likely to focus on fewer recommendations 9
Evidence Based Practice • Both the academic and gray literature were systematically searched to answer the 6 questions • Ipsos survey complemented the literature search with the opinions of Canadians • Lay panel provided rich interpretation of evidence through lens of their expertise and experience 10
Experience and Discernment • Lay panel represented a broad range of participants with diverse skills and connections to palliative care • Unprecedented opportunity for intense reflection, dialogue, discernment, and exploration of academic research and lived experience • Expert facilitation and support provided 11
Expert Panel • A distinguished panel of 8 academics were chosen on the basis of their expertise in each of the subjects • They supported the work of the lay panel through detailed reports, plain language summaries and answering questions 12
Together, Stronger • 14 stakeholder organizations worked together and their perspectives were integrated with the feedback of Canadians they serve • The stakeholders are optimistic about the future impact of the Consensus statement. • Working together acknowledges and addresses barriers, facilitates change 13
Together, Stronger • Implementation of recommendations requires everyone to work together - governments, stakeholders, communities and the public • Recommendations represent the views of all Canadians • Aging population living with more complex conditions means greater need for access to quality palliative care 14
Patient Centered • Recommendations reflect the views of patients, their families and others caring for dying Canadians • Recommendations are not limited to medicine and the health care system • Recommendations seek a robust approach addressing the psychological, medical, sociological, spiritual needs of all involved 15
Palliative Approach • Palliative care is everyone’s business, not just the palliative care doctor or nurse, but also the heart specialist, the family doctor and the community nurse • Palliative care is provided everywhere • Palliative care is needed throughout the patient’s trajectory, beginning with life-limiting diagnosis 16
Now What? • The Conference Board of Canada is writing a report, providing context and language to make the recommendations actionable • Communities and individuals continue to advocate for better palliative care, through social media, politics and direct stakeholder engagement 17
www. Palliative. Care. Matters. ca
- Palliative care matters
- Palliative care versus hospice care
- Driver diagram palliative care
- Palliative care in nepal
- Barry laird
- Franciscan palliative care
- Ethical issues in palliative care
- Rug palliative care
- Dr hong-phuc tran
- Just in case bag palliative care
- Seamus hesney
- Anergia definition
- Palliative care assistant
- Bluegrass care navigators hazard ky
- Integrated palliative care outcome scale
- Goc palliative care
- Palliative care programme
- Amber bundle
- Textbook of palliative care communication