Oxfordshire Autism Diagnostic Pathway February 2017 Dr Harjinder

Oxfordshire Autism Diagnostic Pathway February 2017 Dr. Harjinder Gill Dr. Obeagaeli Annie Brooks Maria Bourbon Caring, safe and excellent

Oxfordshire Autism Diagnostic Pathway Purpose A multi-professional team who specialise in the assessment and diagnosis of autism and possible related conditions in children and young people, signposting them to local autism support services. Caring, safe and excellent Oxford Health NHS Foundation Trust Oxford University Hospitals NHS Foundation Trust

Diagnostic Team • Consultant Community Paediatrician • Consultant Child and Adolescent Psychiatrist • Autism Clinical Co-ordinator • Speech and Language Therapist • Access to Occupational Therapy • Access to Clinical Psychology Caring, safe and excellent Oxford Health NHS Foundation Trust Oxford University Hospitals NHS Foundation Trust

Our clinic • Pre-assessment information – parent and school pack • Assessment day – Lead clinician – 4 children and their families rotate around clinician and therapist(s) • Team discussions and feedback day – team discussions followed by feedback to families in afternoon • Post diagnosis support – Info pack – Follow up phone call – Parental workshops Caring, safe and excellent Oxford Health NHS Foundation Trust Oxford University Hospitals NHS Foundation Trust

Onward referrals CAMHS – 25 - 30% - anxiety and ADHD management – Specialist Tier 4 CAMHS Oxford University Hospitals – Community Paediatrics approx. 20% – Clinical Genetics – Paediatric Cardiology – Opthalmology/orthoptics & audiology Caring, safe and excellent Oxford Health NHS Foundation Trust Oxford University Hospitals NHS Foundation Trust

Onward referrals/recommendations Oxford University Hospitals – Healthy Living Advice Centre – weight issues due to sedentary lifestyle – Orthotics & Podiatry Community Integrated Therapies – OT and SLT MASH SENSS – Educational Psychology – Community and Interaction Service Caring, safe and excellent Oxford Health NHS Foundation Trust Oxford University Hospitals NHS Foundation Trust

Parent / CYP Feedback Positive comments: • Concerns finally listened to and taken seriously • Every area was covered in assessing my child • Staff understood child's situation • Staff were helpful and understanding…. friendly and caring…. informative, knowledgeable, very understanding and professional. • Well explained, roles in assessing were flexible- was able to speak with/without child. • Spoke clearly and made everything understandable. Felt listened too. • Staff were well-experienced and very competent • Everything was fantastic • Speed of service • Comprehensive – 4 fields together Caring, safe and excellent Oxford Health NHS Foundation Trust Oxford University Hospitals NHS Foundation Trust

Parent / CYP Feedback Suggestions for improving the service: • Better resourced service to reduce the wait for assessment • Very long day, may be better over consecutive days • No hot drinks • More information in reception • More locations across the county • Improved car parking Caring, safe and excellent Oxford Health NHS Foundation Trust Oxford University Hospitals NHS Foundation Trust

Primary Diagnosis 11% 16% 64% 8% Autism ADHD Other (dyspraxia, dyslexia, ODD, CD, mood disorders No diagnosis 9 Caring, safe and excellent

Additional features with autism 4% 2%2% None ADHD 7% ADHD + LD 42% 17% LD LD + genetic change 4% 22% Genetic changes Medical diagnoses Other (dyspraxia, ODD, CD) 10 Caring, safe and excellent

Components of recent assessments 100 78 90 80 57 70 52 60 41 50 22 40 30 9 0 20 10 Cognitive Assessment School Obs SLT Assessment OT Assessment ADOS Mental Health Assessment Medical & 3 Di 0 % of each component included in cases up to Nov 2016 Currently seeing children referred May – June 2016. Ø Averaging 2 – 3 assessment components per case Ø 7. 5% cases needed 1 assessment component due to other available reports Caring, safe and excellent Oxford Health NHS Foundation Trust Oxford University Hospitals NHS Foundation Trust