NILS An Introduction Rnn Adams NILS User Forum

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NILS: An Introduction Rónán Adams NILS User Forum 11 th December 2009

NILS: An Introduction Rónán Adams NILS User Forum 11 th December 2009

What is The NILS? • • • Northern Ireland Longitudinal Study (NILS) Managed in

What is The NILS? • • • Northern Ireland Longitudinal Study (NILS) Managed in “safe setting” at NISRA HQ 28% Sample of N. I. population Database of administrative records linked over time Drawn from Health Card Registration Data Linked to other datasets (2001 Census, Vital events) • Northern Ireland Mortality Study (NIMS) • 100% of deaths in N. I. 2001 -2007 linked to 2001 Census

Establishing The NILS • Funded by HSC R&D function of the Public Health Agency

Establishing The NILS • Funded by HSC R&D function of the Public Health Agency • Managed Under Census legislation • Research Proposal initiated in 2003 • Launched December 2006 • Data Custodian is Registrar General for N. I.

NILS Security‘Secure Data, Safe Setting’ • • Supervised “safe setting” for researchers -NILS RSU

NILS Security‘Secure Data, Safe Setting’ • • Supervised “safe setting” for researchers -NILS RSU All datasets completely anonymised Closed network Strict Disclosure Control Policy I. T. Security, Data managed by Core NILS (NISRA) staff Security Agreements & NILS Licence Legal Approval-Data Transfer Agreements Ethical Approval

Management of The NILS • NILS Steering Group (SG) – Responsible for Strategic Direction

Management of The NILS • NILS Steering Group (SG) – Responsible for Strategic Direction • NILS Research Approvals Group (RAG) – Manage Research Applications Process • NILS User Forum – Input from researchers – Represented on SG • NILS Research Support Unit (RSU) – ESRC funded. Established April 2009 – Expert support for NILS researchers. Assist with applications, analysis, NILS promotion, upholding NILS security

NILS Research-Some Examples • ‘Predicting Short Run Changes in Fertility in Northern Ireland’ •

NILS Research-Some Examples • ‘Predicting Short Run Changes in Fertility in Northern Ireland’ • ‘Mortality amongst residents of nursing and residential homes in Northern Ireland’ • ‘Describing and Modelling Internal Migration in N. I. 20012006 using the NILS: Individuals, Households and Places’. • Breast Screening Exemplar Project

NILS-RSU Contact Details • Do you have an idea for a NILS Project? –

NILS-RSU Contact Details • Do you have an idea for a NILS Project? – Michael Rosato 028 9082 8210 – Gemma Catney 028 9034 8199 – Email: nils-rsu@qub. ac. uk – Website: www. qub. ac. uk/nils