NATIONAL INFORMATION BOARD Personalised Health and Care 2020

NATIONAL INFORMATION BOARD Personalised Health and Care 2020 Using Data and Technology to Transform Outcomes for Patients and Citizens Providing citizens with access to an assessed set of NHS and social care ‘apps’

NATIONAL INFORMATION BOARD National Information Board – Nov 2014 2

National Information Board context NATIONAL INFORMATION BOARD • Mandate from the DH, accountable to National Info. Director • Leadership and direction for technology developments clarifies priorities, influences commissioning • Achieved via a strategic consensus across ALBs and local government • Other NIB workstreams – nhs. uk (single destination for transactions, access to records…) – Apps endorsement, digital standards, transparency, supporting innovation, commissioning/regulation 3

What is the rationale for app assessment? NATIONAL INFORMATION BOARD • The apps market is not working • Wisdom of the crowd is not an effective filter • Professionals not ready to recommend • Organisations making high quality apps need reason for doing so Study of 47 smoking cessation apps (Abroms et al, 2013)

Considerable challenges NATIONAL INFORMATION BOARD Controlling Costs Building Trust Encouraging innovation Thorough, considered, adaptable and streamlined Deliver proven digital applications • Innovation focused • Looking for indicators of quality • Lower risk Will the Health care system choose apps over existing measures Scale of demand Throttle quantity of assessment Will citizens have confidence in them Tension • System Lead / prioritised segments • Robust Evaluation • Higher risk

Phased Assessment and Endorsement Self-assessed quality • Security & Privacy • Technical standards • User centred • Application risk type (e. g. medical device) • Proxy of Impact Crowd sourcing • Establish demand • Build trust Impact assessment • Efficacy/Effectiveness • Robust Studies (RCT) • New Models (AB/Iterative) Independent evaluation • Subject matter expert • Cost effective • Recommended NATIONAL INFORMATION BOARD

Dimensions of assessment NATIONAL INFORMATION BOARD Stage 1 Self assessment + external validation Crowdsourcing APP APPAPP Stage 2 Study development Independent assessment Stage 3 Technical: • Privacy, Accessibility, Technical stability, Interoperability Safety: • Reliability of content used • Algorithm/ calculations Usability: • Usability best practice • Actual usage data Value – to system and users • Effectiveness • Cost saving • Behaviour change • Other user outcome factors

Pilots – diabetes, mental health, smoking cessation… NATIONAL INFORMATION BOARD

Ongoing work • Continue Stakeholder engagement • Ongoing review of regulatory measures • Literature review, methods review by academic centres • User research – citizens, professionals, developers, funders • Finalise self assessment process • Commission crowdsourcing proposition • Specify work package on study assessment and independent assessment NATIONAL INFORMATION BOARD

NATIONAL INFORMATION BOARD Value Proposition • Not a regulatory process • Identify and promote the best apps in health & social care. • Provide a benchmark for the quality of app development in healthcare • Prioritise high impact/cost saving/high risk apps for full assessment • Proportionate use of resources • Accessible • Support for use…. 10

NATIONAL INFORMATION BOARD Questions ? 11