National Childrens Digital Health Collaborative Health Interactions Interoperability

National Children’s Digital Health Collaborative Health Interactions & Interoperability Overview (HL 7 WG) 17 -July-2018 1

National Children’s Digital Health Collaborative Draft health interactions; yet to be agreed with the CDHR clinical and consumer groups. CDHR Phase 1 Health Interactions (Clinical, Consumer & Calculated) Interaction Type Health Interaction Description Interaction Trigger Birth A child is born, including the details of the birth The creation of a newborn Birth Details record. Clinical Newborn Discharge A newborn child is discharged from care The creation of an infant discharge summary Clinical Newborn Examination A newborn examination has been completed with an outcome recorded Clinical Newborn Examination Missed A newborn examination has not been conducted The creation of a newborn examination record (observations and measurements with a newborn observation) with an outcome (e. g. normal , review or refer) The absence of a newborn examination record Newborn Screening A newborn screening has been completed with an outcome recorded Clinical Newborn Screening Missed A newborn screen assessment not been conducted The creation of a newborn screening record with an outcome (e. g. normal , review or refer) The absence of a newborn screening assessment record Family History Clinician Entered Consumer Entered Milestone A family history has been entered by a registered clinician The creation or update of a family history record in a clinical system Clinical Health Check Assessment Consumer Entered Encounter Parental Observation Clinician Observation Upcoming Scheduled Calculated An achievement or milestone is observed and recorded by a carer or parent A child health assessment has taken place The creation of a record with a consumer relevant milestone or Consumer observation The creation of a health assessment record in a CIS, practice Clinical management or community health system A clinical encounter has occurred and is recorded by a consumer, e. g. a GP The creation of a clinical encounter or episode via the consumer app Consumer appointment, hospital admission, etc. An observation (e. g. height, weight or head circumference) or The creation of an observation event by a parent/carer Consumer measurement has been recorded An observation (e. g. height, weight or head circumference) has been The creation of an observation event by a healthcare provider Consumer recorded An appointment reminder based on a harmonised schedule (e. g. Based on the age of child, today's date and harmonised health check Calculated immunisations & health checks) schedule, trigger a reminder notification for consumer app 2

National Children’s Digital Health Collaborative Draft health interactions; yet to be agreed with the CDHR clinical and consumer groups. CDHR Phase 1 Health Interactions (Administrative) Interaction Type Health Interaction Description Interaction Trigger Subscribe to Health Interaction Consent to Participate A clinician subscribes to a health interaction A subscription record is created for a health interaction Administrative A consumer consents to be part of the longitudinal child health record program A clinician unsubscribes to a health interaction A consumer consent record is created for the Child Health Record initiative A subscription record is removed from the list of subscribed health interactions A consumer withdrawal record is created for the Child Health Record initiative Administrative Unsubscribe to Health Interaction Withdrawal of Consent to Participate View of Subscriptions View Longitudinal Record A consumer withdraws their consents to be part of the longitudinal child health record program A clinician can view a list the health interactions they have subscribed to A clinician views the health interactions they have previously made view subscription to A clinician can view a child's longitudinal health record in context of the A clinician evokes and view the child's longitudinal health record child's clinical record Administrative 3

National Children’s Digital Health Collaborative CDHR Phase 1 Health Interactions Timeline 4

A Nationally Harmonised & Interoperable Child Digital Health Record The structure and harmonisation of the clinical and consumer content of the jurisdiction based Child Health Records underpins the layers of standards needed in the development of the National Child Digital Health Record. CDHR Health Interactions Content Information Terminology Exchange Harmonised Clinical & Consumer Content Business Information Specifications Clinical Terminology FHIR Resources Nationally agreed core components of a child personal health record How the information will be structured in a digital record How the information will be mapped to commonly understood values The standard technical integration resources for information exchange • Australian Health Ministers Advisory Council (AHMAC) – Health Services Principal Committee (HSPC) • Harmonised National Child My Health Record Expert Committee • AHMAC HSPC • Australasian College of Health Informatics (ACHI) • Clinical and Community Advisory Group • Harmonised National Child My Health Record Expert Committee • Clinical & Community Advisory Group • Research Advisory Group • Australian Digital Health Agency Clinical Terminology Team • HL 7 Australia • FHIR Child Health Working Group 5

Content Harmonised Child Personal Health Records National Child Personal Health Record 8 State & Territory Child Personal Health Records 1 National Child Personal Health Record 6

Information Child Digital Health Record – Business Information Specification Based on the UK Professional Record Standards Body – Healthy Child Programme Record Standards – the Collaborative is seeking to https: //theprsb. org/ develop, socialise and agree a similar Business Information Model for the Child Digital Health Record. 7

Terminology Child Digital Health Record SNOMED Codes 8

Exchange Health Interactions and FHIR Child Digital Health Record Foundation Base • • • Conformance Terminology Security Documents Other Financial • • Individuals Entities Workflow Management Support Billing Payment General Health Interactions • • • Clinical • • • Summary Diagnostics Medications Care Provision Request & Response Birth Discharge Health Check Health Assessment Emergency Presentation Encounter (GP, Hospital, Specialist) • Nonclinical (Consumer Entered Milestone) Specialised • • • Public Health & Research Definitional Artefacts Clinical Dec Support Quality Reporting Testing 9

Technology CDHR Conceptual Architecture 10