Minority Affairs Committee Update 2012 Fall Regional Meetings

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Minority Affairs Committee Update 2012 Fall Regional Meetings

Minority Affairs Committee Update 2012 Fall Regional Meetings

Committee Project Highlights § Educational Guidelines on Patient Referral to Kidney Transplantation Default pathway

Committee Project Highlights § Educational Guidelines on Patient Referral to Kidney Transplantation Default pathway for CKD, ESRD is referral § Preemptive transplant is the goal § Education must begin early §

Educational Guidelines, cont. § Draft guidelines reviewed by transplant organizations OPTN Committees: Kidney, Patient

Educational Guidelines, cont. § Draft guidelines reviewed by transplant organizations OPTN Committees: Kidney, Patient Affairs, Living Donor, Transplant Administrators Professional transplant partner organizations: AST, NKF/KDOQUI, STSW Joint MAC/Organizational Representatives: MOTTEP, ASTS, ASN, AMAT

Educational Guidelines, cont. § NATCO to help with dissemination § Draft document approved by

Educational Guidelines, cont. § NATCO to help with dissemination § Draft document approved by full committee for final review phase § Path Forward: review by CMS, ANNA, APPA, UNOS leadership, and then HRSA

Other Committee Projects § A 2/A 2 B National Variance § Dialysis Facility Survey

Other Committee Projects § A 2/A 2 B National Variance § Dialysis Facility Survey § Kidney and Liver Referral Survey § MAC Comprehensive Review Article

New Committee Projects § Minority Donor Conversion Education Project § Collection and review of

New Committee Projects § Minority Donor Conversion Education Project § Collection and review of conversion data § Demographic differences § Examination of all variables impacting conversion § Partnering with other groups

New Committee Projects, cont. § Survey on Referral to Thoracic Transplantation § Asking questions

New Committee Projects, cont. § Survey on Referral to Thoracic Transplantation § Asking questions on: § Delays for heart transplant candidates? § Are all eligible heart candidates being referred? § What is the population of candidates with heart failure (N)?

Ongoing Data Reviews § KPSAM simulation modeling presentation § Kidney allocation system § Evaluation

Ongoing Data Reviews § KPSAM simulation modeling presentation § Kidney allocation system § Evaluation for impact on selected populations § Continued evaluation of CPRA § Review of data prepared for Histocompatibility Committee § Impact of CPRA on kidney allocation

. Questions? § Silas P. Norman, MD Chairman spnorman@umich. edu § Meelie A. Debroy,

. Questions? § Silas P. Norman, MD Chairman spnorman@umich. edu § Meelie A. Debroy, MD, Vice Chair Meelie. Debroy@UTsouthwestern. edu § Deanna Liaison L. Parker, MPA, Committee deanna. parker@unos. org

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