Meeting Centre Support Programme The Meeting Dem Project

Meeting Centre Support Programme The Meeting. Dem Project

Meeting Centres – a history 1. Needs study Informal carers & GPs 1990 -1991 4. Implementation study and repeated effect study 11 MCs 2000 -2003 2. Development MC program & pilot study in 2 MCs in 1993 -1994 3. Effect study in 4 MCs 1994 -1996 5. Helpdesk Meeting Centers 2004 -now à 118 meeting centres in NL, 20 in preparation à Much interest from many countries in/outside Europe à Dissemination to Italy, Aruba, Surinam Institute for Research in Extramural Medicine Meeting. Dem European Implementation study to support dissemination VU medisch centrum Amsterdam

Meeting Centers Support Program Person with dementia Carer • Social club psychomotor group therapy creative and recreational activities • Informative meetings • Support group • Care coordination For both • Consulting hour • Monthly centre meeting • Social activities

Key Features of the MCSP Very local focus on people living at home in a community Small permanent staff trained in MCSP ethos and techniques Community club set in a non-stigmatising ordinary life setting A person-centred programme of intervention and activity for both the person living with dementia and family carer using the adjusting to change model • Inclusive engagement from health, social care, voluntary organisations community groups and any local movers and shakers in supporting people living with dementia. • Programme of information sessions for the community/outreach into the community • In the UK fits well with post-diagnostic support, dementia friends and Dementia Friendly Communities • •

Results from Dutch multicentre study Compared to regular day care the MCSP participants showed: For people with dementia: • Less behavioural problems (inactivity and unsocial behaviour) • Less depressive symptoms • A higher self-esteem • Delay of nursing home admission For carers: • Less psychosomatic complaints in isolated carers • Reduced feelings of burden

Meeting centres in Italy & Poland UK Wroclaw Milan, Bologna, Rimini Droitwich SPA Leominster

Our Research will report on: 1. The efficacy and cost-effectiveness of the MCSP for each country and overall analysis 2. The facilitators and barriers for the implementation process of the MCSP for each country and overall analysis 3. User satisfaction for the MCSP for each country and overall analysis

Theoretical background (Adjusting to Change [Adaption Coping] Model) p 36 -9 Adaptive tasks • Dealing with own disablities • Preserving an emotional balance • Maintaining a positive self-image • Preparing for an uncertain future • Developing and maintaining social relations • Dealing with treatment and institutional environment • Developing an adequate relationship with professional staff

Helping with adjustment • Initial discussion (Assessment) using the Adjusting to Change model to identify areas of support for both parties through support plans & reviews: • Practical Adjustment: Cognitive stimulation, Physical fitness, Optimising choice and control, Information and signposting. • Emotional Adjustment : Relaxation and fun, Building confidence, Opportunities to talk to others who understand, admiral nurse and dementia adviser support • Social Adjustment: Opportunities to engage with others in a relaxed atmosphere, Supporting others going through similar experiences, Social occasions and celebrations.

Increasing social network, confidence and self image • Meet up to 3 days a week, every week • Welcoming, warm, accepting, environment • Interact via the range of activities • Members and Family together and apart • Part of the wider community, visitors welcome • New and old friendships in a local sustainable setting

Specifically for carers • Monthly Carer Discussion Group • Monthly Information Sessions • Carer Information and Support Programme (Cr. ISP 1 and 2) • Weekly Consultations with Manager • Immediate information and advice from team and other professionals • Peer Support & confidence to have time apart

The Initiative Group in Droitwich Spa • Association for Dementia Studies: Staff and Link Group • Alzheimer’s Society • Age UK • Droitwich Spa Rural Council for Voluntary Service • Forum for Older People • Community Transport • Thursfields Solicitors • Spa Medical Practice • Corbett Medical practice • South Worcs Clinical Commissioning Group • Worcs NHS • Worcs Health & Care NHS Trust • Worcs County Council • Wychavon District Council • Sanctuary Housing • Grantham day care

Droitwich Spa • Pop 5000 over age 65. • Information Meeting 23/5/14 • Initiative Group 25/9/1416/7/15 • Staff employment and preparation 01/06/15 • Opened 23/9/15 • Advisory Group 6/10/15

Droitwich Spa Meeting Centre • Social Club Weds-Friday 10 am -4 pm • Staffed by Centre Manager, Group Coordinator, Day Support Worker & Volunteers • Supports 16 people per day plus family (28 registered).

Droitwich Spa Meeting Centre Video 1

Leominster Meeting Centre • Opened February 2016 – funded by Herefordshire Council for one year. • Over 50 regular members. • Activities include games, swimming, musical events, members leading on teaching instruments, art, tea dances and outings. • Strong links with other communities such as Brecon and Hay. • Connection with Dementia Friendly Leominster - one of the Mayor’s Charities for this year. Rural Media Video

What next? • Complete evaluation of effectiveness and costeffectiveness reporting early 2017. • Sustainability of current Meeting Centres. • Preparing business plan (obtain bridging funding). • Setting up a Charitable Incorporated Organisation? • Obtain longer term funding.

Acknowledgements • MEETINGDEM (2014 -17) is led by the VU Medical Center University Amsterdam & focuses on establishing Meeting Centres in the UK, Italy and Poland evaluating the impact of these Centres after 12 -18 months of operation: Many people and organisations have contributed. • FUNDERS MEETING DEM is an EU Joint Programme - Neurodegenerative Disease Research JPND http: //www. jpnd. eu project number JPND_HC-559018. The project is supported through the following funding organisations under the aegis of JPND; Italy, Ministry of Education and Ministry of Health; The Netherlands, Zon. Mw; Poland, NCBR; UK, ESRC Grant reference: ES/L 00920 X/1 • PRINCIPAL & CO-INVESTIGATORS Rose-Marie Dröes, Franka Meiland Dawn Brooker, Simon Evans, Shirley Evans, Martin Orrell, Rabih Chattat, Elisabetta Farina , Joanna Rymaszewska & Dorota Szcześniak

Thank you for listening! Simon Evans University of Worcester Association for Dementia Studies simon. evans@worc. ac. uk https: //meetingcentres. wordpress. com/ @Meeting. Centres