Making communitybased services a reality Roadmap to deinstitutionalisation
Making community-based services a reality. Roadmap to deinstitutionalisation Belgrade, 24 April 2015 Sabrina Ferraina Senior Policy Officer www. easpd. eu
EASPD European Association of Service providers for Persons with Disabilities (EASPD) • Representing social and health support services in the disability sector • Ensuring implementation of the CRPD through high quality service systems • Accredited to the UN Conference of State Parties to the CRPD 2
What is EASPD? EU NGO in the disability sector It represents over 10, 000 social service provider organisations across Europe Based in Brussels, established in 1996 EASPD plays a key role on a European level as a representative of disability service providers Objective: Promote equal opportunities for people with disabilities through effective and high quality service systems in Europe
3 Pillars INFORMATION Service provision to members: networking, exchange possibilities to members at European, national, regional and local level INNOVATION Research and Development: as basis for innovation and improvement of service provision IMPACT Policyinfluencing: voicing service providers in Europe ( Political Representation towards EU Institutions and Council of Europe) 4
Methods of operation Education STANDING COMMITTEES Inclusive Living Employment Policy Impact Group ICT & Assistive Technology Arts INTEREST GROUPS Early intervention Human Resources and Staff Development 5
Areas of action • Education • Employment • Social Inclusion: 1/3 of EASPD’s members provide residential/daycare support Standing Committee on Inclusive Living 6
EASPD work on DI • • • Standing Committee on Inclusive Living Involvement in the European Expert Group on DI Cooperation with other European networks Cooperation with housing sector Development of personal assistance schemes (selfdirected support, etc. ) 7
Standing Committee on Inclusive Living To discuss strategic and practical ways to implement Art 19 UN CRPD in EASPD's member organisations • To collect and exchange models of good practice in the field of de-institutionalisation and (supported) housing • To support the development of instruments facilitating user involvement and independent living • To draft policy recommendation for authorities at all levels • To study the future challenges in social care, housing 8 and support
European Expert Group • Set up in 2009 • Includes: – UN bodies (OHCHR, Unifec) – Institutions (European Union) – NGOs (EASPD, EDF, Mental Health Europe, Eurochild, …) • Organisation of seminars, trainings and lobby activities 9
EASPD work on DI • Strong commitment since the beginning • Wide approach covering the whole of Europe • 2009: EASPD becomes part of the European Expert Group on DI • October 2011: Seminar on DI in Western EU countries • May 2013: Seminar on DI in Europe • Dec 2013: EASPD DI roadmap 10
EASPD’s position on DI & CBS EASPD Declaration on Article 19: “Making community-based services a reality. Roadmap to deinstitutionalisation” • Adopted by the EASPD Board in December 2013 • EASPD’s strategy in this field 11
Context DI Roadmap Social model of disability of the UN CRPD: • society needs to respond to existing barriers • inclusion and participation are the key concepts enabling PWDs rights • positive measure are strongly encouraged consequence Change in the provision of long term and intense care is required 12
Key articles Social Inclusion • UN CRPD • Art 12: Equal recognition before the law • Art 19: Living Independently and being included in the community 13
Art 19: Living Independently and being included in the community • Establishes the equal right of all persons with disabilities to live in the community, with choices equal to others. State Parties should ensure that: • Persons with disabilities have the opportunity to choose their place of residence and with whom they live with on an equal basis with others • Persons with disabilities have access to a range of in-home residential and community services, including personal assistance necessary to support living and inclusion in the community rather than isolation or segregation • Community services and facilities for the general population are available on an equal basis to persons with disabilities and are responsive to their needs 14
Key concepts • • Participation Inclusion Equality of opportunity Non-discrimination • • Equal recognition before the law Accessibility Reasonable accommodation Universal Design 15
Long term/intense care today • Mostly residential care settings have a protective (segregating) approach • Wide array of quality level • Lack of participative, inclusive and personcentred approach 16
Segregating institutions Choice • Any place in which persons are isolated, segregated and/or compelled to live together Control • Any place in which people do not have, or are not allowed to exercise control over their lives and their day-to-day decisions. 17
Segregating institutions Inclusion • An institution is not defined merely by its size: Segregating environments can be reproduced also in small-scale settings Participation – Equal opportunities • Typically the requirements of the organization tend to take precedence over the users' individualized needs. 18
Support services • Ensure person-centred inclusive approach • Long term complex process that poses many issues to service providers • The transition from DI to CBS is complex • Objective: Promoting community-based services, adapted to individual needs, that promote participation and inclusion 19
Challenges • Careful planning • People with complex needs • Innovative solutions to provide choice and control • Funding is needed 20
Expected result Community-based services: • “spectrum of services that enable individuals to live in the community and, in the case of children, to grow up in a family environment as opposed to an institution” They include: • mainstream services: i. e. housing, healthcare, education, employment, culture and leisure • specialised services: i. e. such as personal assistance for persons with disabilities, respite care and others 21
Social and health support services Support services should: • Facilitate full participation, inclusion and equal citizenship • Be tailored to the individual needs and preferences • Designed and delivered in coproduction with users • Be community-based and rooted in society • Be set-up in and in close cooperation with the mainstream sector 22
Social and health support services Support services should: • Be provided by well trained staff • Respect the social network around the person • Be based on stakeholder cooperation • Ensure security to all people with support needs • Allow real and informed choices 23
EASPD’s actions • Promote correct implementation of the UN CRPD at national and EU level • Monitoring policies & Support Members • Promote networking between mainstream and specialised settings • Ensure representation of services and PWD in the debate • Research and data collection 24
Recommendations to all stakeholders • • Involvement of all actors and services Planning and monitoring Staff training and staff development Establish cooperation between mainstream and specialised services • Make use of EU funds 25
Conclusions • Involvement of all actors is essential (families, users, stakeholders, service providers) in all stages of the process • Mainstreaming of services with all actors • Quality of life is above quality of services • Institutional culture can thrive also in community-based services • Planning and monitoring is needed 26
Follow-up & Monitoring • What’s the state of play? • Did we miss something? • What should we focus on as a matter of priority? • Have there been any step-backs? 27
References • EASPD DI Roadmap: http: //easpd. all 2 all. org/sites/default/files/sites/default/fil es/Policy/easpd_di_roadmap_final. pdf • European Expert Group: www. deinstitutionaliseguide. eu • EN (English) - Common European Guidelines on the Transition from Institutional to Community-Based Care, available in Serbian here: http: //deinstitutionalisationguide. eu/wpcontent/uploads/2013/09/smernice_korigovane_priprema. pdf • European Expert Group blog “From institutions to living in the Community”: http: //deinstitutionalisation. com/ 28
Any questions ? Thank you for your attention! Sabrina Ferraina Sabrina. ferraina@easpd. eu www. easpd. eu With support from the European Union Programme for Employment and Social Innovation “Ea. SI” (2014 -2020) 29
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