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MAIN HEADER GOES HERE • Bullets and body text here. Palliative and End of Life Care Raising Awareness Session

Palliative and end of life care in Scotland MAIN HEADER GOES HERE From today, we hope you will: • • feel more confident and knowledgeable about palliative and end of life care Bullets and body text here. • feel more connected with colleagues and people in my networks to explore how the palliative and end of life care framework can shape our work • feel listened to and more involved in the palliative and end of life care framework journey • understand how the palliative and end of life care educational framework can help support your practice.

What is palliative care? MAIN HEADER GOES HERE ‘One way of thinking about “palliative care” is to talk in terms of providing “good care” to people whose health is in irreversible decline or whose lives are coming to an inevitable • Bullets and body text here. close. ‘However, palliative care is not synonymous with death – it is about life, about the care of someone who is alive, someone who still has hours, days, months, or years remaining in their life, and about optimising wellbeing in those circumstances. ’ Scottish Partnership for Palliative Care https: //www. palliativecarescotland. org. uk/content/what_is_palliative_care/

What is end of life care? MAIN HEADER GOES HERE ‘End of life care is that part of palliative care which should follow from the diagnosis of a patient entering the process of • Bullets and body text here. dying, whether or not he or she is already in receipt of palliative care. ’ Scottish Partnership for Palliative Care https: //www. palliativecarescotland. org. uk/content/what_is_palliative_care / The World Health Organization’s definition of palliative and end of life care can be found here http: //www. who. int/cancer/palliative/definition/en/

MAIN HEADER GOES HERE Activity • What do you feel are the skills, qualities and knowledge needed to • Bullets and body text here. do your job on a daily basis? (Green PEN) • Now, what do you feel are the skills and knowledge needed to deliver palliative and end of life care? (in different colour) • Reflect on the similarities/differences.

Why palliative and end of life care in Scotland MAIN HEADER GOES HERE 46000 will need some form of 57000 people • Bullets and body text here. palliative care die every year 11000 don’t get the palliative care they need

What’s the aim? Vision: By 2021, everyone in Scotland who needs palliative care will have access to it. Commitment 3: We will provide support the workforce by developing a new palliative and end of life care Educational Framework, creating a sense among both health and social care of staff of feeling adequately trained and supported to provide the palliative and end of life care that is needed whilst fostering an integrated and collaborative approach to educational provision.

Framework Enriching and Improving Experience Palliative and End of Life Care A framework to support the learning and development needs of the health and social services workforce in Scotland

NHS Education for Scotland - SSSC Enriching and Improving Experience Getting the best from this framework It’s all about experience: everyone’s experience. • The experience of people requiring palliative and end of life care and support. • The experience of people providing palliative and end of life care and support.

NHS Education for Scotland - SSSC Enriching and Improving Experience Domains Five domains reflect core knowledge and skills • • • Domain Domain 1 2 3 4 5 Fundamentals of palliative care Communication and Conversations Loss, grief and bereavement Care planning and delivery Care in the last days of life

NHS Education for Scotland - SSSC Enriching and Improving Experience Levels – knowledge and skills Each domain presents four levels: • • Informed Skilled Enhanced Expert.

NHS Education for Scotland - SSSC Enriching and Improving Experience Framework structure

NHS Education for Scotland - SSSC Enriching and Improving Experience Structure - key messages • Depth and breadth knowledge and skills increases at each level. • Knowledge and skills at each level are incremental. • Generic – not role or profession specific. • Flexible approach -the levels of knowledge and skills across the five domains may differ.

NHS Education for Scotland - SSSC Who can use the framework • • • Individuals Managers/ organisations Education providers Enriching and Improving Experience

Palliative and end of life care in Scotland MAIN HEADER GOES HERE You could use the framework at service or organisational level to: • Bullets and body text here. • consider the organisational support and resources available • map existing learning and development provision • use the framework to identify gaps and prioritise learning needs across groups and sectors • use the framework to review and support practice to be consistent with the underpinning principles and the knowledge and skills • integrate PEOLC learning and development into workforce development plans.

Palliative and end of life care in Scotland MAIN HEADER GOES HERE As a line manager or supervisor you could use the framework with individuals and teams to: • Bullets and body text here. • raise awareness of palliative and end of life care and discuss the knowledge and skills required with workers for their role responsibilities and identify gaps • use the framework to support staff with their personal and professional development planning and, where appropriate, revalidation • contribute to wider organisational workforce planning.

Palliative and end of life care in Scotland MAIN HEADER GOES HERE Education and training providers could use the framework to: • • Bullets and body text here. ensure that the framework principles, knowledge and skills are integrated • review existing content and provision • map and benchmark existing learning and development opportunities to the framework domains and levels • shape the design and delivery of learning units • collaborative and integrated learning.

Activity – create a spider graph If by, having a personal outcomes approach which underpins your day to day role around enabling people to achieve what matters to them, please discuss: • what you feel is working well in your role around palliative and end of life care (red pen) • what are the challenges and barriers (green pen) • how would you like palliative and end of life care delivered to everyone (blue pen) • what support do you need from us? (black)

Palliative and End of Life Care Framework and the Health and Social Care Standards Principles • • • Dignity and respect Compassion Be included Responsive care and support Wellbeing Standards 1. I experience high quality care and support that is right for me. 2. I am fully involved in all decisions about my care and support. 3. I have confidence in the people who support and care for me. 4. I have confidence in the organisation providing my care and support. 5. I experience a high quality environment if the organisations provides the premises.

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I have confidence in the people who support and care for me Dignity and respect I experience people speaking and listening to me in a way that is courteous and respectful, with my care and support being the main focus of people’s attention. Palliative and End of Life Care Framework – Informed Level Domain 1 – Fundamentals of palliative care Knowledge – know the meaning of person-centred and family-focused care and support in the context of palliative and end of life care. Skills – treat people with dignity and respect and recognise issues related to diversity, culture and inequality in palliative and end of life care. Domain 2 – Communication and conversation Knowledge – know about effective person-centred communication skills and barriers to communication. Skills – engage with people in a way that respects their wishes confidentiality, choices, unique strengths and abilities.

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I have confidence in the people who support and care for me Responsive care and support I am supported and cared for sensitively by people who anticipate issues and are aware of and plan for any known vulnerability or frailty. Domain 4 – Care planning and delivery Knowledge – know about the concept of anticipatory care planning. Skills – recognise when it may be appropriate to engage with anticipatory care-planning. Domain 5 – Care in the last days of life Knowledge – know that dying is part of life, and that uncertainty surrounds how and when someone may die. Skills – respond in a sensitive and empathic manner to people who are dying, their families and carers.

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Self-directed support Outcomes Informed Choice: What’s important to me, not what’s important to the service Fundamentals of palliative care: Recognise that palliative and end of life care and support should be centred on what matters to people their families and carers, including babies, children and young people. Relationships Communities Involvement: I’m in control of my life and my supports, not just asked for my opinion Participation: I’m actively contributing to my community and society Communication and conversations: Engage with people in a way that respects their wishes, confidentiality, choices, unique strengths and abilities. Loss, grief and bereavement: Know that people may experience a range of losses in a palliative and end of life care context.

Promoting Excellence Framework Dementia Informed Practice Level – Across all stages of the dementia journey Outcome People with dementia feel empowered and enabled to exercise rights and choice. Maintain their identity and to be treated with dignity and equity. Knowledge – understand the importance of recognising, enhancing and supporting the strengths and abilities of people with dementia. Skill – interact with people with dementia, their families and carers, in a way that recognises their wishes and priorities. Palliative and End of Life Care Framework Domain 4 – Care planning and delivery Knowledge – Know the importance of ensuring that the person, family and carers have choice and control in care assessment and planning. Skills –Recognise that people with palliative and end of life care needs, their families and carers have strengths and assets that can support their wellbeing. Domain 3 – Loss, grief and bereavement Knowledge – know about the importance of self care. Skills – engage in reflection and activities to care for yourself, and recognise when additional support is required.

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Whole group discussion: What do you think we should be doing next? And what we plan to do.

Palliative and end of life care awareness session – open badge Today’s attendees are able to work towards achieving a palliative and end of life care awareness open badge. https: //www. badges. sssc. uk. com/badges/palli ative-and-end-of-life-care-awarenesssession/ If you would like to know more about Open Badges please go to the SSSC website https: //www. badges. sssc. uk. com/

Open Badges – recognition for your continuous learning • Open Badges are digital recognition for otherwise unrecognised learning. • You can collect, manage and share them online. • You can earn Open Badges from over 3, 000 organisations across the world who want to recognise learning in new ways. Search Google for ‘Open Badges’. • Evidence of your learning, usually a reflective account, is attached to your Open Badge and visible to anyone you show it to. • Open Badges allow you to prove that you understand a subject. • They help with post registration training and learning (PRTL). • You don’t need to be registered with SSSC to earn most of our Open Badges.

Head – something I have learned from being part of today Do you feel you have learned something from today? Yes/No If yes, please share what you have learned. Heart - something I've felt/experienced from being here today Has today made a difference to you? Yes/No How? Carrier bag - something I’m going do differently and take away with me from being part of today Do you feel session/resources useful to your role and practice context? Yes/No Please give further information. Lightbulb - anything I would like to change or that was not so good about being part of today Evidence and learning: How will you share the resources and learning with others?

MAIN HEADER GOES HERE • Bullets and body text here. Scottish Social Services Council (SSSC) email contact sdsandintegration@sssc. uk. com