Lions Clubs International Lions support for children with

Lions Clubs International Lions support for children with cancer Biljana Choneska Jovanova GST Coordinator LCI D 132 Macedonia

Lions Clubs International Helping children with cancer • Children are a gift to the world, yet every two minutes a child is diagnosed with cancer and less than half of the world’s children have access to effective care • Children who survive cancer are often left with debilitating effects that can impact their physical development and ability to learn • That’s why Lions and Leos are answering the call to expand access to life-saving treatment and support the children and families who need us most • We are working to give children with cancer a second chance at life

Lions Clubs International Childhood Cancer Chairpersons • Childhood Cancer Chairpersons serve at the district and multiple district levels, and are appointed by the district governor or council chairperson • Childhood Cancer Chairpersons support Lions and Leos engaged or interested in projects to expand access to life-saving treatment and provide support to the children and families who face childhood cancers • They may collaborate with leadership throughout the organization, including the Global Service Team (GST)

Lions Clubs International Actions • • • Learn Discover Plan Act Celebrate

Lions Clubs International Learn • Become the topic expert for your district/multiple district by learning about childhood cancer • Become familiar with childhood cancer via the World Health Organization • Explore My. LION, My. LCI, LCI/LCIF’s social media sites, and the annual Leo Video Contest to learn more about how Lions and Leos are addressing similar challenges and opportunities in their communities

Lions Clubs International Learn • Raise awareness about childhood cancer by holding an educational talk with a healthcare professional at your club or district meeting • Collaborate with a local childhood cancer hospital staff to learn about the needs of their patients and families

Lions Clubs International Discover • Bring your knowledge to the local level by exploring how childhood cancer is directly impacting your district/multiple district • Contact your local department of public health, children’s hospital, childhood cancer registry, and other relevant organizations to learn about the needs of local children with cancer and their families • Identify organizations, including Lions and Leos Clubs in your district/multiple district, which are already mobilized, and assess where there are gaps in the services provided

Lions Clubs International Plan • Based upon what you have learned and discovered, submit a plan of action for childhood cancer to the district governor/council chairperson for approval • Meet with organizations already working on childhood cancer to discuss how you might support or compliment their ongoing work

Lions Clubs International Plan • Discuss your service plan with the GST Coordinator and other leaders • It is possible they are already implementing a project that would benefit from inclusion of a childhood cancer-related service element

Lions Clubs International Act • Inspiring Lion and Leo clubs in your district/multiple district to serve and report their service to My. LCI will be critical to the success of your plan • Guide clubs in your district/multiple district through the “Learn, Discover, Act” journey – Club Education & Awareness Activities – Childhood Cancer Project Idea List

Lions Clubs International Act • Build awareness of the need, the goals and the service plan by offering a childhood cancerfocused seminar during district/multiple district convention, and hands-on service activity on February 15, International Childhood Cancer Day.

Lions Clubs International Act • Promote funding opportunities offered through LCI and LCIF that might support club/district childhood cancer projects • Matching grants (previously called standard grants), are larger-scale humanitarian projects that address unmet needs. The project must serve a large population

Lions Clubs International Act • Formalize partnerships with other organizations to enhance local impact • Organize a district/multiple district donation to LCIF for childhood cancer to increase global impact • Establish and maintain open communication with the district governor, council chairperson and Global Service Team (GST) leaders

Lions Clubs International Celebrate • Encourage clubs to report their childhood cancer projects using My. LCI • Keep the district governor/council chairperson and GST Coordinator informed. Discuss and evaluate progress of the action plan and goals • Share news about childhood cancer projects with the Public Relations Chairperson • Celebrate progress and success by recognizing all participating clubs

PROJECT IDEAS FOR CHILDHOOD CANCER - LIONS CLUBS INTERNATIONAL

Lions Clubs International ACT // BEGINNER • Identify nearby childhood cancer centers and provide craft materials, puzzles and games to children receiving therapy • Prepare healthy meals for families with children undergoing treatment • Post monthly articles about childhood cancer on your club or district website and social media accounts

Lions Clubs International ACT // BEGINNER • Provide cancer support related books and magazines to your local school or library

Lions Clubs International ACT // BEGINNER • Write cards full of wellwishes and share them with a local cancer center

Lions Clubs International ACT // BEGINNER • Give gift cards to identified families in need or a nearby childhood cancer center. Cards could cover expenses like gasoline, parking… • Make or buy new hats, caps, head scarves and blankets to donate to childhood cancer centers

Lions Clubs International ACT // INTERMEDIATE • Help coordinate travel arrangements to and from hospital for a family of a child with cancer. • Sponsor a child to attend a childhood cancer camp or activity

ACT // INTERMEDIATE • Raise awareness for childhood cancer through radio public service announcements, social media campaigns or a film about childhood cancer

ACT // INTERMEDIATE • Provide children’s entertainment at a local hospital or treatment center for children with cancer

Lions Clubs International ACT // ADVANCED • Provide funding support for essential medicines and supportive services. Crucial medical needs could include chemotherapy supplies, nutritional supplements, medical equipment, essential staff, etc. • Learn more about temporary housing options for families whose children are patients of cancer treatment centers • Volunteer at established housing facilities or develop a new one

Lions Clubs International ACT // ADVANCED • Form a support group for those affected by childhood cancer, such as patients, caregivers and survivors • Organize a childhood cancer camp • Develop a healthy meal program to ensure that children with cancer are well nourished during treatment and while in remission • Familiarize yourself with the bone marrow transplant registry. If one is not established in your country, determine what would be needed to create one

Lions Clubs International WAYS TO HELP CHILDREN WITH CANCER – LIONS CLUB EXPERIENCE

Lions Clubs International LC Zograf - Red and black ball 2017

Lions Clubs International LC Zograf donating TV sets to pediatric oncology ward

Lions Clubs International TV set at pediatric oncology ward

LC Zograf - New year gifts and decoration for pediatric oncology ward Lions Clubs International

LC Zograf - New year gifts and decoration in pediatric oncology ward Lions Clubs International

Survivors camp in Struga Lions Clubs International

• WE BELIEVE EVERY CHILD DESERVES A CHANCE AT A HEALTHY LIFE • Over the years, with the help of people just like you, the ALCCRF has raised over $10 million dollars for childhood cancer research – and has supported countless Australian organizations leading the fight against childhood cancer

LIONS KIDS CANCER Genome Project • Hundreds of Australian children with highrisk cancer will have access to new genome sequencing technologies that could guide their treatment, following the substantial Lions Club funding for the Lions Kids Cancer Genome Project • Important new component of the Zero Childhood Cancer Program for diagnosis and treatment of childhood cancer

ALCCRF Clinical Research Fellow Dr Sara Khan • ALCCRF Fellowship is a 3 year $450, 000 funding grant for: • Research project to investigate new therapeutic options for two of the most prevalent and aggressive paediatric brain tumors, Medulloblastoma and Diffuse Intrinsic Pontine Glioma.

ALCCRF Ph. D. Scholarship Dianne Sylvester • ALCCRF Ph. D Scholarship is a 3 year $150, 000 funding grant for: • Genes underpinning predisposition to childhood cancer

Lions Clubs International Thanks for your attention!