Jillian Mc Connell Knowledge Mobilization Lead Knowledge Broker

Jillian Mc. Connell, Knowledge Mobilization Lead & Knowledge Broker, brain. Xchange February 2016

Our Team: Karen Parrage, Resources Coordinator and Webmaster Jillian Mc. Connell, Knowledge Broker and Knowledge Mobilization Lead Kathy Hickman, Knowledge Broker and Knowledge Mobilization Lead Dr. Ken Le Clair, Co-lead Professor, Division of Geriatric Psychiatry and Department of Psychiatry, Faculty of Health Sciences, Queen’s University David Harvey, Co-lead Chief, Public Policy and Program Initiatives, Alzheimer Society of Ontario

Our Focus: • Our focus is on supporting positive change for people with or at risk of having brain-health needs related to aging and dementia, mental health and neurological conditions by fostering knowledge transfer and exchange (KTE) among researchers, people with lived experience, policy makers and practitioners who seek to work together to improve quality of life and services (move knowledge into action).

How do we do it? • We focus on the sharing of resources and knowledge (both provincially and nationally) through in-person and virtual exchange in order to support relationships among industry, researchers, clinicians, policy makers, people with lived experience, and care partners. • Using our network (www. brain. Xchange. ca) we bring together the best and brightest to: ~ Support the learning needs of people wanting to change practice ~ Facilitate quick and easy access to the best knowledge for continuous quality improvement ~ Stimulate, support and share innovations ~ Build and strengthen collaborative partnerships between stakeholders ~ Foster links between stakeholders to create new knowledge and understanding

Who are our members? • • • Researchers Educators Care partners (paid and non-paid) Policy makers / government Providers (registered and non-registered) People with lived experience (inc. persons diagnosed, family members etc. )

Knowledge Exchange and Transfer What is Knowledge Exchange? • “Mutual sharing of research and data knowledge (i. e. explicit knowledge) and/or of practice and experience based knowledge (i. e. tacit knowledge) for the purpose of improving practice…” What is Knowledge Transfer? • “Process of moving knowledge into practice. This process is successful when research and practice-based evidence is clear and relevant, the context shares the characteristics of a learning organization, and facilitation mechanisms are appropriate to the needs of the community of practice members. ” Source: Lusk E. and Harris M. (2010, April 29). Knowledge Transfer and Exchange (KTE) in Action. Presentation companion document for the SHRTN Collaborative 2010 Annual Assembly Knowledge Exchange Learning Day, Toronto, ON.

Knowledge to Action Cycle* *Graham I, Logan J, Harrison M, Straus S, Tetroe J, Caswell W, et al. Lost in knowledge translation: time for a map?

PARi. HS Framework** Promoting Action on Research Implementation in Health Services Context • Understanding and adapting KTE strategies to the situation knowledge is being used. Evidence • Integration of: Lived Experience, Practice-based, Research/literature. What evidence is needed for the context at hand? Facilitation • Use of KTE strategies that fit the needs of the situation and the available evidence. **Rycroft-Malone J, Harvey G, Kitson A, Mc. Cormack B, Titchen A. Getting evidence into practice: ingredients for change.

Knowledge Dissemination • Creating awareness and supporting spread of innovations through a variety of methods. • One of our specialties is supporting nationwide online knowledge dissemination sessions, providing professional guidance, marketing, registration and facilitation support. • Sessions are recorded and archived for either private or public access.

2005 Initiated as part of Alzheimer Transition Project to consolidate and facilitate sharing of information from strategy Background 2007 – 2012 Partnership with Senior Health Knowledge Network 2007 – 2012 Continuing support to “dementia service community” to improved service by promoting exchange between people, resources and ideas 12/31/2021 2012 - 2014 Funded for support to Behaviour Supports Ontario 2009 – 2014 Joint ventures with Canadian Dementia Research and Knowledge Exchange (CDRAKE) 2014 Merger with CDRAKE to form brain. Xchange 10

brain. Xchange network: • 6000+ Member/Subscribers: (4, 500 of which are in Ontario) • 6500+ Webinar participants / per year (averaging 20 webinars/ year) 12/31/2021 11

• Online Resource Centre ~ Visits 12, 000 / month ~ Resources 4, 000 documents, 80 topic areas, 150 archived webinars • Social Media ~ Twitter: 1, 000 followers and 750 tweets ~ Vimeo Videos: 7, 000 plays and 14, 500 loads 12/31/2021 12

Communities Of Practice • Those who seek deeper understanding and collaboration on priority topics receive supported knowledge transfer and exchange. • Surface existing knowledge and develop new ideas for positive change. • Facilitated by our professional staff

• 12 - Communities of practice/collaborations: ~ e. g. Person & Family-Centred Care, Behavioural Support Transition Units, Health Links & Primary Care, Design & Dementia 12/31/2021 • Innovation Support: ~ BSO, national behavioural guidelines, primary care memory clinics , self-management 14

Knowledge Products • Publications: ~ Shifting the Focus -25, 000 ~ BSO Capacity Roadmap & The Road Ahead • Facilitation of the process to develop tools and resources to help move knowledge into practice. • Example: Shifting Focus ~ Booklet translated in 8 languages ~ 2 versions: full and shortened version ~ Video series ~ Knowledge dissemination sessions ~ Hardcopies of the booklet available for order ~www. shiftingfocus. ca

• Events ~ People, partners and possibilities: Primary care ~ Ontario Best Practice Catalyst Event • Networks & Partnerships ~ Health Quality Ontario ~ Age-Friendly Communities ~ Canadian Consortium of Neurodegeneration in Aging ~ Canadian Coalition for Seniors Mental Health ~ National Health Charities Canada ~ Seniors Health Knowledge Network ~ Ontario Brain Institute ~ Alzheimer Society of Canada & Ontario ~ Multiple Sclerosis Canada ~ Parkinson Canada ~ MAREP 12/31/2021 16

Activities Underway: • BSO Collaboratives • CCNA Webinars • Pain Matters- a new guide for families • Self-Management Research Project • Parkinson Society, Multiple Sclerosis Society and Alzheimer Society Caregiver Series • CCSMH Seniors Mental Health events 12/31/2021 17

Innovation Support • Working closely with partners, identify promising innovations with the potential to make positive change and support development, dissemination and • spread Example: Self Managementbrain. Xchange supported, Dr. Elaine Wiersma, CERAH Lakehead University and colleagues as they developed the Self Management program.

Innovation Support cont'd brain. Xchange supporting CCNA & ASC KTE – priorities include: A. B. Conducting the rapid translation of new knowledge from dementia research into communication tools or publications Brokering relationships among dementia researchers, research teams and institutes across Canada Convening a Canadian Neurodegeneration in Aging Research Conference (CCNA) CCNA Scientist Health Care Provider Policy Public / Lived Experience

Bx. C Supports to Strategy Activities brain. Xchange Services • Advisory Committee • Working Groups • Public Events – roundtables, conferences • Intra and inter-ministerial committees • CCO • Stakeholder Relations • • • 12/31/2021 On-line forums Webinars Newsletter Microsite Document management – open access and password protected 20

Benefits and Outcomes Continuous improvement Faster Implementation Co-design solutions - across sectors, stakeholder groups Broad engagement – readiness for change 21

check us out at: brain. Xchange. ca or email: jillian@brainxchange. ca THANKS FOR LISTENING. Q?