Its not just technology its people A conceptual

“It’s not just technology, it’s people” A conceptual model of personal health informatics for chronic illness Lisa M. Vizer, Ph. D, University of North Carolina at Chapel Hill Jordan Eschler, Ph. D, Northwestern University Bonmi Koo, Ph. D, UNC-CH James Ralston, MD, Kaiser Permanente Washington Health Research Institute Wanda Pratt, Ph. D, University of Washington

How do people manage chronic illness – with and without technology?

How do people manage chronic illness – with and without technology? How can we better support them?

Wagner et al. 1996

Stage-based model of personal informatics Li et al. 2010

Lived informatics model of personal informatics Epstein et al. 2015

29 videos (~7 hours)

29 videos (~7 hours) 20 interviews (~20 hours)

29 videos (~7 hours) 20 interviews (~20 hours)

29 videos (~7 hours) 20 interviews (~20 hours) Coding: constructs from earlier models and literature, emerging themes

29 videos (~7 hours) 20 interviews (~20 hours) Coding: constructs from earlier models and literature, emerging themes Themes distilled into Conceptual Model

ACTORS WORK

ACTORS Person with chronic illness Designated carer(s) Adult child Spouse Parent(s) Guardian(s) Friends Family Teachers Others with chronic illness Colleagues Physicians Nurse practitioners School nurse Pharmacists Nutritionist Physical therapist

ACTORS Person with chronic illness Designated carer(s) Adult child Spouse Parent(s) Guardian(s) Friends Family Teachers Others with chronic illness Colleagues Physicians Nurse practitioners School nurse Pharmacists Nutritionist Physical therapist

ACTORS Person with chronic illness Designated carer(s) Adult child Spouse Parent(s) Guardian(s) Friends Family Teachers Others with chronic illness Colleagues Physicians Nurse practitioners School nurse Pharmacists Nutritionist Physical therapist

ACTORS Person with chronic illness Designated carer(s) Adult child Spouse Parent(s) Guardian(s) Friends Family Teachers Others with chronic illness Colleagues Physicians Nurse practitioners School nurse Pharmacists Nutritionist Physical therapist

WORK Communication Information Collection Integration Reflection Action

WORK Communication Information Collection Integration Reflection Action

WORK Communication Information Collection Integration Reflection Action

WORK Communication Information Collection Integration Reflection Action

WORK Communication Information Collection Integration Reflection Action

WORK Communication Information Collection Integration Reflection Action

WORK Communication Information Collection Integration Reflection Action

“It’s not just technology, it’s people”

T H A N K Y O U ! Jordan Eschler, Northwestern University Bonmi Koo, University of North Carolina at Chapel Hill James Ralston, Kaiser Permanente Washington Health Research Institute Wanda Pratt, University of Washington Lisa M. Vizer LMVizer@unc. edu @LMVizer

Personal informatics collection of personally relevant information for the purpose of self-reflection and selfknowledge Li et al. 2010

Personal health informatics collection of personally relevant health information for the purpose of maintaining or improving health