Global Framework and Experiences on Patient Family and

“Global Framework and Experiences on Patient, Family and Community Engagement to Improve Quality of Care” Dewi Indriani Indonesia Country Office

Outlines l People Centered and Integrated Health Services (PCIHS) l What is PFCE? l Why is PFCE? l How PFCE can be implemented? l Country experiences in implementing PFE Indonesia Country Office

What is Patient, Family and Community Engagement? l Empowerment – Participation – Involvement – Engagement use interchangeably l Institute of Medicine, 2012 “ When patients, their families, other caregivers and the public are full, active participants in care, health, the experience of care, and economic outcomes can be substantially improved. A learning health care system is anchored on patient needs and perspectives and promotes the inclusion of patients, families and other care givers as vital members of continuously learning care system” Indonesia Country Office

What is Patient, Family and Community Engagement? Indonesia Country Office

Why is Patient, Family and Community Engagement? l Declaration of Alma Ata, 1978 “People have the right and duty to participate individually and collectively in the planning and implementation of their healthcare” l Better quality, better health outcomes, improved patient experience, lower costs/financially sustainable Indonesia Country Office

How PFCE can be implemented? Indonesia Country Office

How to develop “meaningful engagement”? At 4 levels of engagements 1. Policy level patients/people representatives 2. Organizational level feedback mechanisms, responsiveness to patients need 3. Direct care to have voice – shared decision making 4. Community engagement creating healthy environment Indonesia Country Office

Key issues in PFCE l Health literacy l Representation l Communication l Informed decisions/ shared decision making l Resources and systems l Capacity building l Social determinants Indonesia Country Office l Policy making l Accountability

Creating enabling environment for patient engagement l What is enabling environment? PE expected, encourage and facilitated l Identifying and engaging stakeholders l Supportive organizational governance, systems and policy l Capacity building for engagement l Accountability and ethical considerations l Advocacy and awareness raising Indonesia Country Office

Engagement and empowerment: Malaysian Experience l Malaysian Society for Quality in Health (MSQH) l In 2012, PFPS Network, capacity building patient representatives at MSQH and PS Council l In 2013, PFPS in country workshop, mixture participants l April 2014 patient network launched Indonesia Country Office

Engagement and empowerment: Malaysian Experience Success factors 1. Commitment and support of policy makers and leaders 2. Internalization and institutionalization of safety culture 3. Proactive and committed champions at national and fcaility levels 4. Smart partnership (public, private and professional associations) 5. Top down and bottom up feedback 6. Implementing WHO PS and nationwide safety goals Indonesia Country Office

Engagement and empowerment: the Thai Experience l In 2009, initiate by Healthcare Accreditation Institute (HA Thailand) l In 2014 established “Engagement for Patient safety Programme” l Use 4 approaches: “Share, Chain, Shape and Change” Indonesia Country Office

Indonesia Country Office