FamilyCentered Early Intervention Services for Children Evaluated for

Family-Centered Early Intervention Services for Children Evaluated for Autism: Developing a State-Wide Model to Build Capacity Jill Rigsby, M. S. Director of Early Intervention Programming Tennessee's Early Intervention System Alacia Stainbrook, Ph. D. , LBA, BCBA-D Associate Director, Vanderbilt Kennedy Center’s Treatment and Research Institute for Autism Spectrum Disorders (VKC TRIAD) 2019 OSEP LEADERSHIP CONFERENCE 1

2019 OSEP Leadership Conference DISCLAIMER: The contents of this presentation were developed by the presenters for the 2019 OSEP Leadership Conference. However, these contents do not necessarily represent the policy of the Department of Education, and you should not assume endorsement by the Federal Government. (Authority: 20 U. S. C. 1221 e-3 and 3474)

Objectives • Overview a collaborative early identification and intervention model in Tennessee • Discuss rationale for the development of each component • Share family, child and provider impact data • Consider next steps for Tennessee 2019 OSEP LEADERSHIP CONFERENCE

State Perspective 440 Miles/ 708 Kilometers wide 120 mi 196 km tall Population (2016): 6, 651, 194 Mello, Urbano, Goldman, & Hodapp (2016) 2019 OSEP LEADERSHIP CONFERENCE

Local Perspective • How is TEIS currently meeting the Individualized Family Service Plan (IFSP) goals of families with children diagnosed with Autism and/or displaying challenging behaviors? • What IDEA required services are currently being provided throughout the state? • What services are parents requesting to meet their child’s IFSP identified goals? • Met with TEIS Point of Entry (POE) staff to discuss their concerns/limitations with providing services for children with Autism and/or challenging behaviors. 5 2019 OSEP LEADERSHIP CONFERENCE

Considerations for Program Development? 1. How do we improve access to diagnostics andimprove services? 3. capacity 2. How do we access toof local providers? intervention? 2019 OSEP LEADERSHIP CONFERENCE

Program Development Timeline 2014 2015 2016 2017 2018 Caregiver follow-up Co-treating Professional Development & Tele-consultation Tele-diagnostic Consultation & Curriculum Development 2019 OSEP LEADERSHIP CONFERENCE

Increasing Access to Early Identification 75% certainty and 100% agreement Psychologists conducting an assessment Technological equipment 89% increase in total referrals 65% decrease to Nashville 15% increase in show rates 2019 OSEP LEADERSHIP CONFERENCE

Tele-diagnostic Consultation Services A referral is made: is 23 months. He tantrums transitioning between activities, is a The family travels. Milo to Jackson to connect with awhen TRIAD consultant and VUMC A TRIAD eater, consultant thewords family further screening and scheduling. selective doesn’tconnects have any with spoken andfor walks on his toes. psychologist. 6 i. 2 m 192 s e l i m 2019 OSEP LEADERSHIP CONFERENCE

Increasing Access to Specialized Early Intervention Services Caregiver training Telemedicine services Curriculum modules 2019 OSEP LEADERSHIP CONFERENCE

Early Intervention Services: Caregiver Education and Support Intervention sessions are scheduled and implemented in 20 -30 collaboration the Sophie’s mom concerned about challenges with communication. Mom is often Early Intervention providers serve several counties andwith families atwith a. Atime. Sophie lives in is Middle TN and was her recently diagnosed ASD at VUMC. TRIAD family’s early intervention provider. “playing guessing games” to figure out Sophie needs and wants. Children are eligible for services due to. EIwhat aprovider variety oftodevelopmental concerns. consultant connects to the family and plan services. 2019 OSEP LEADERSHIP CONFERENCE

Capacity Building and Teaming Provider notes Professional Development Co-treatment 2019 OSEP LEADERSHIP CONFERENCE

Capacity Building and Teaming 2019 OSEP LEADERSHIP CONFERENCE

Family Demographics 2019 OSEP LEADERSHIP CONFERENCE

Curriculum Use 2019 OSEP LEADERSHIP CONFERENCE

1 (poor) > 5 (excellent) Family functioning She believed in working as a team. Being able to help myself to give my son the best attention/help he needs. "Take home plans" were easy to follow So many useful long term tool/ideas to improve my child’s home life Child Development Diagnosis Resources/ Services How to to Help Routine Errands Community Outings 3. 8 Learning to differentiate between 3. 7 3. 3 3. 1 3. 9 3. 2 2. 9 being parents/therapists PRE 3. 8 POST 4. 2 4. 5 4. 0 4. 6 4. 2 4. 6 3. 3 3. 5 3. 1 3. 3 2019 OSEP LEADERSHIP CONFERENCE

Child Growth 1 = very much improved no challenges 2 = much some improved challenges 3 = minimally improved mild challenges 4 = no changechallenges moderate 5 = minimally worse marked challenges 6 = much severeworse challenges 7 = very much severeworse challenges **Significant at the. 01 level 2019 OSEP LEADERSHIP CONFERENCE

Child Growth 2019 OSEP LEADERSHIP CONFERENCE

Provider Impact Satisfaction/Impact Category Average Score Satisfaction with consultants 3. 95 Satisfaction with service model 3. 80 Satisfaction with family and child 3. 70 outcomes Impact on service provision 3. 34 Participation in these services has impacted my service delivery approach The consultant was knowledgeable about intervention strategies The consultant provided recommendations that were useful and feasible I was pleased with the outcomes of the services for myself and the family 2019 OSEP LEADERSHIP CONFERENCE

Why Does it Work? • Close collaboration with the Part C service system • Development of scalable pilot programs • Emphasis on program evaluation • Ongoing assessment of community specific needs 2019 OSEP LEADERSHIP CONFERENCE

Program Development Timeline 2014 2015 2016 2017 2018 Caregiver follow-up Co-treating Professional Development & Tele-consultation Tele-diagnostic Consultation & Curriculum Development 2019 Tele-extensions and district level experts 2019 OSEP LEADERSHIP CONFERENCE

Contact Us • Jill Rigsby • Jill. Rigsby@tn. gov • https: //www. tn. gov/education/early-learning/tennessee-early-interventionsystem-teis. html • Alacia Stainbrook • Alacia. Stainbrook@vumc. org • https: //vkc. mc. vanderbilt. edu/vkc/triad/home 22 2019 OSEP LEADERSHIP CONFERENCE

2019 OSEP Leadership Conference DISCLAIMER: The contents of this presentation were developed by the presenters for the 2019 OSEP Leadership Conference. However, these contents do not necessarily represent the policy of the Department of Education, and you should not assume endorsement by the Federal Government. (Authority: 20 U. S. C. 1221 e-3 and 3474)