Family and Carer Support NDIS Conversations 8 th

Family and Carer Support NDIS Conversations 8 th and 9 th June 2017

Welcome – lets set the scene Who is a carer? NDIS and carers Carer supports Advocacy Resources Lets talk

Who is a carer? “Carers provide unpaid, ongoing, care and support to family members and friends who have disability, a mental illness, chronic condition, terminal illness, an alcohol or other drug issue or who are frail aged”. Carers may be: A relative, family member (kinship), friend or a neighbour Living with or living apart from the person they are supporting In terms of NDIS the person you care for must: have a permanent or life long disability (includes psychosocial disability) be an Australian citizen or permanent resident

Does NDIS support carers and families? The aim of NDIS is to provide choice and control for the person/s you care for, known as the ‘participant’ Carers may also have their own disability and be eligible for the NDIS. Is there any direct carer support under the NDIS? ……… No However there is indirect support available Can carers still access direct carer supports ……. . Yes!

Funding for carer support which will go to NDIS Some funding that is available for carer support now will eventually move into the NDIS: Young Carer Respite and Information Service Respite Support for Carers of Young People with Severe or Profound Disability Mental Health Respite: Carer Support (MHR: CS) Home and Community Care Program (HACC) for under 65 years age Partners in Recovery (Pi. R) Personal Helpers and Mentors Service (PHa. MS)

Funding for carer support outside of NDIS Other funding for carer support Commonwealth Respite and Carelink Centres (CRCC’s) Carer Directed Respite Care packages (CDRC) National Carer Counselling Program (NCCP) Carer Information and Support Service (CISS) An Integrated Plan for Carer Supports has been proposed by the Commonwealth Government to replace the above………. watch this space! Carers Australia and Mental Health Carers Australia are lobbying to maintain funding for direct carer supports!!

Where can I get more information? Carers Australia Webpage www. carersaustralia. com. au

Where can I get more information? Mental Health Carers Australia webpage http: //www. mentalhealthcarersaustralia. org. au/

Other resources … Carer Gateway is a national online and phone service that provides practical information and resources to support carers. The interactive service finder helps carers connect to local support services. You can find more information on the website link https: //www. carergateway. gov. au/ Carers WA Peak body and provide support for all carers in Western Australia. Phone: 1300 227 377 Website link: www. carerswa. asn. au Helping. Minds Advocacy and Support for all Mental Health Carers in Western Australia. Phone: 1800 811 747 Website link: www. helpingminds. org. au

Advocacy “To advocate, ” means to promote, protect and secure a person's rights. Self Advocate - You can Advocate for your own needs and/or on behalf of the person you support Individual Advocacy - Advocates can provide you with support that is independent from service providers you may be working with. Organisations that provide individual advocacy in WA: Carers WA Helping. Minds People with Disability WA Ethnic Disability Advocacy Centre Health Consumers Council Complaints?

How can I be involved along with the person I care for in their NDIS plan? Carers Australia has developed a Carer Checklist to assist you in preparing for the NDIS type of care and support you currently provide for the person you care for help you consider all aspects of the person with disability’s needs useful in helping you prepare for the planning meeting and can be provided to the planner/Local Coordinator Carers Australia and Mental Health Australia have also developed a Mental Health Carer Checklist that can be used.

Planning Meetings You can provide information to the Local Coordinator or Planner: How the caring role affects you, Whether you are able and willing to keep caring for the person with disability in the same way into the future, What the impact of your caring role has on your own personal needs and goals, Other informal supports the person with disability has, such as family or friends Any other information that would be important for them to know when assessing supports required.

Let’s start the conversation and learn from each other

Workshop process 1. 2. 3. There are three questions you stay on the same table facilitators will bring the questions to you (1 A 1 B 1 C, etc. ) Tables will have ten minutes per question facilitators will encourage conversation a scribe will write down everyone's ideas At the end the three questions the table facilitators will get together for 5 minutes and detail the TOP THREE themes from your responses 4. One of the facilitators per question will read out themes 5. Themes will be collated and included along with the other ideas you shared in this session in the ‘book of proceedings’ which you will receive after the event.

The questions… 1. What supports would like to see for yourself as a carer and what has worked well for you in relation to NDIS or generally? 2. What unmet needs have you had as a carer of someone who is accessing or who may be able to access NDIS? 3. As a carer, what would meaningful engagement with NDIS, look like for you?

Thank you