Ellie Jane OKane Ellies Mum November 2018 Ellie

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Ellie Jane O’Kane Ellie’s Mum November 2018

Ellie Jane O’Kane Ellie’s Mum November 2018

 Ellie Old – the early years challenges New challenges What worked/works well Achievements

Ellie Old – the early years challenges New challenges What worked/works well Achievements and ambitions

Ellie (The early years) 1 st born, little early at 37 weeks gestation, 5

Ellie (The early years) 1 st born, little early at 37 weeks gestation, 5 1 bs 7 ounces & breech vaginal delivery ! Immediate mother diagnosis ! No initial health concerns except rubbish at breast feeding 1 st cousin born 4 weeks later with DS 1 st 12 mths hospital admissions with recurrent respiratory issues Met many developmental milestones ( walking and toileting) Became a “runner”

Old Challenges Worrying Health …ahead & well being Therapies input Education provision Lack of

Old Challenges Worrying Health …ahead & well being Therapies input Education provision Lack of clarity about the future Vulnerability

New challenges Worrying Lack ahead of clarity about the future Education provision Vulnerability Health

New challenges Worrying Lack ahead of clarity about the future Education provision Vulnerability Health & well -being Therapies input

What worked well ? 1) Health Issues Outcomes / so what Community Paediatric input

What worked well ? 1) Health Issues Outcomes / so what Community Paediatric input Consistent care, regular reviews Health Visiting input No Prozac needed ! Scoliosis – review/care Non surgical approach Hypothyroidism- care/medication Stable Respiratory issues – care Resolved – we hope ! Vision – care & regular reviews Reading glasses Oral health issues & intervention Lovely straight teeth

What worked well ? 2) Education Issues Additional 121 support in mainstream Outcomes /So

What worked well ? 2) Education Issues Additional 121 support in mainstream Outcomes /So what ? Safety – a priority STF with integrated approach Support with exposure to mainstream Delaying entry to college 6 th Form 16 -19 yrs 16 isn’t 16 for Ellie ! Friendships /support /time to mature/ teachers motivated to work with CYP & ALN

What worked well ? 3) Social Issues Outcomes Local Aid and Buddies Social opportunities

What worked well ? 3) Social Issues Outcomes Local Aid and Buddies Social opportunities outside the family Local Aid & Summer job Developing independence Residential trips & Youth club S/a Peer support (parent) BFF living up the road ! Sleep overs !

Ambitions Develop Happy A work opportunities – DSA Wales transition to college loving caring

Ambitions Develop Happy A work opportunities – DSA Wales transition to college loving caring boyfriend ! Later on. . Independent living with support

Most recent achievement: Head Girl !

Most recent achievement: Head Girl !

Thankyou !

Thankyou !