EHDI Information Management Les R Schmeltz MS CCCA

EHDI Information Management Les R. Schmeltz, MS, CCC-A Iowa

Looks like a simple, linear process: • Collect hospital information: • Identify hearing losses • Refer for early intervention services • Collect and report statistics

EHDI Data and Patient Information Management Then a miracle occurs Start Good work, but I think we might need just a little more detail right here. out

Joint Committee on Infant Hearing 2000 Position Statement • Uniform state registries and national information databases • Use of information generated

Uses of Information Management: • To improve services to infants and their families • To assess the quality of screening, evaluation and intervention • To facilitate collection of data on demographics of neonatal and infant hearing loss

Improving Services to Infants and Their Families • Multiple system components must be integrated • Each service provider participates • Tracking and follow-up • Monitoring of outcomes

Integrating Multiple System Components • Seamless system to infants and their families • Provider participation

Service Provider Participation • Hospitals and other birthing facilities • Primary care providers • Service providers • Early intervention and educational facilities

Tracking and Follow-Up • Timely and accurate description of services provided to each infant • Documents recommendations for follow-up and referral to other providers • Tracking

Monitoring of Outcomes • Effective information management used to promote program measurement and accountability • Factors contributing to delay in providing EHDI services • Measurement of quality indicators

Effective Information Management • Capable of aggregating data • Provides evaluation data • Centralized

Information Collection • Federal to state level • State to hospital & practitioner level • Hospital level

JCIH Quality Benchmarks & Quality Indicators • Benchmarks • Quality Indicators • Review process

CDC Pilot National Data Set • Number of live births • Number screened prior to discharge • Number screened before 1 month of age • Total number referred from initial or multiple screenings for audiologic evaluation

CDC Pilot National Data Set • Number with diagnostic audiological evaluation by 3 months of age • Number of children with permanent congenital hearing loss aged 0 -7

CDC Pilot National Data Set • Hearing loss must be classified by type, degree and laterality • Average/median age in months of diagnosis of hearing loss • Number of infants receiving intervention by 6 months of age

Handouts: • JCIH Benchmarks and Quality Indicators • CDC Data Set Items